Category: Continuous Glucose Monitoring (CGM)

No More Fingerpricks Campaign

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Diabetes Awareness Month may have only started a few days ago, but boy, has it been jam-packed with advocacy and awareness efforts so far! In fact, I think this is the most active year yet for most social media platforms. I’ve seen tons of different campaigns, hashtags, and posts that were all created especially for this month, and it’s absolutely wonderful to see such inspired content as well as high participation rates.

And I hope to keep the ball rolling on this! That’s why I’m sharing my #NoMoreFingerpricks post today. This campaign was launched by Dexcom and Beyond Type 1. Participants are encouraged to take a picture or video wearing the foam finger from Dexcom, or to draw an “X” on an actual finger (if they don’t have a foam finger). For every photo or video posted on Facebook/Instagram with an @Dexcom and #NoMoreFingerpricks, Dexcom will donate $1 to Beyond Type 1.

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Here’s my #NoMoreFingerpricks campaign photo! And yes, I deliberately wore blue – the color of diabetes awareness.

Yup, it’s that easy to do! And it’s exactly the kind of social media campaign that can catch on quickly. Recruit your family and friends to take photos and get posting! And be sure to teach them a couple of diabetes facts and what the whole #NoMoreFingerpricks hashtag is all about. For instance, you could mention that:

  • 34% of people with T1D know nothing or little about CGM
  • 80% of people with T1D still prick their fingers more than 3 times a day
  • 96% of CGM users would recommend CGM

You could even direct inquiring minds to visit nomorefingerpricks.com to learn more about continuous glucose monitoring technology and this campaign.

So…what are you waiting for?! Draw an “X” or grab that foam finger and post your photo to educate, advocate, and celebrate living beyond!

I Want to Love my Dexcom G6, but…

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…this keeps happening on Day 9 of wear:

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I don’t understand why the sensor error occurs. But it almost ALWAYS happens on the ninth day: My sensor will work wonderfully and provide me with extremely accurate data, but then BOOM it’ll sporadically stop working and produce graphs like the one above that are virtually useless. Even worse, there’s no telling when exactly it’ll start communicating again with my receiver. The error message SAYS I’ll get data back within 3 hours, and I normally do, but there’s a big difference between going 10 minutes and going 2 hours without any readings.

This device has so many good things working in its favor: longer wear, painless insertion, increased accuracy, compatibility with acetaminophen, slimmer profile. But I’m of the opinion that if something says it will totally function for a certain length of time, then it WILL. The fact that it doesn’t, and that this has occurred more than once to me, is alarming and frustrating.

The only possible explanation I’ve come up with is that maybe the upper arm isn’t a great place to wear the G6. As we all know, Dexcom devices are FDA approved to be worn on one location, the abdomen. However, that hasn’t stopped the cheeky diabetes community from wearing it elsewhere. Besides the upper arm, I’ve seen people with it on their forearms, thighs, and calves. I even know one clever person who chooses to wear it on the upper bum during the summer months to prevent tan lines (hilarious and brilliant, IMO). I choose to wear my CGM on my upper arm most of the time because it’s comfortable there, and I like to give the sites on my belly a break. But maybe it’s time I start wearing it more frequently on my stomach, the “officially okay” site, to see if that prevents these ridiculous sensor error scenarios.

What I’d like to know in the meantime, though, is has this happened to you or anyone you know using the G6? Has anyone pinpointed a cause, and is it worth notifying Dexcom of this issue? I’d love to hear your stories and thoughts – drop a note in the comments or get in touch with me directly!

A Not-So-Sticky Situation

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There’s nothing worse than medical adhesive that just won’t stick.

If an infusion site or CGM sensor fails to stick to the body, that almost always means that there’s no choice but to dispose of it prematurely. And that is the definition of a total waste, which is a horrible feeling when it comes to exorbitantly expensive diabetes supplies.

So you can probably imagine my vague sense of panic when less than 12 hours after inserting a recent CGM sensor, it started to peel around the edges. Actually, that’s phrasing it a bit lightly – one half of it was practically flopping off my arm. No matter how much I pressed it back against my skin, it wouldn’t stick. I knew that I needed to save it somehow, and fast.

My first resort was a Patch Peel – it’s cut to accommodate the CGM transmitter; as such, it was the most secure option I had available to me. But seconds after applying the patch, it started peeling all around the edges. WTF?! It was definitely the same strong adhesive that Pump Peelz uses on all of their products, so I didn’t understand why it wasn’t sticking. I cursed under my breath as I racked my brain, thinking of anything else I could use to salvage the sensor. I couldn’t bear the thought of throwing it away after less than a full day’s worth of use.

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Smiling big with my salvaged sensor.

Then I remembered I had SkinTac, which is so strong and glue-like that I normally avoid using it. But desperate times call for desperate measures, right? I lifted up the edges of my patch and wiped the SkinTac all around my skin, patting the patch gingerly back into place as the SkinTac dried. And…it worked! My patch got wrinkly as hell as the adhesives bound together, but I didn’t care because I’d managed to save the sensor. Will it hurt in a few days when I peel off all those layers of adhesive? Oh yes. But I won’t mind at all because I didn’t have to waste a sensor with a retail value of about (cue the gasps) $165.

Feeling Pretty with Diabetes

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Diabetes can be an ugly disease.

It’s defined by finger pricks, drops of blood, infusion site bruises. Diabetes rarely leaves beautiful markings behind on the body; rather, it can make me feel unsightly.

Needless to say, diabetes occasionally makes me feel worse about my body. I try to project body confidence when around others, but on the inside, I’m terribly self-conscious about the way I look.

So that’s why it was wonderful to feel pretty with diabetes this past weekend.

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Unicorns on my patch and in the background. Because you can’t be surrounded by too many unicorns. If only someone would tell that to my blood sugar…

I got all dressed up to go to a “punk prom” that my friend helped organize. The night was all about singing along to the angst-filled tunes of our youth, listening to local bands jam out onstage, and getting glamorous so we could pose for an endless number of photos with fellow attendees.

In the hours leading up to the event, I was a bit anxious about wearing my insulin pump and CGM in visible spots. They didn’t exactly match the dress I’d dug out from the bowels of my closet (and that I’d last worn in the 9th grade). But as I applied hairspray to my carefully coiffed curls, it hit me that I should just own the look. Sure, nothing about boring medical adhesive or the words “Dexcom G6” screams formal wear, but I had a couple tricks up my sleeve that could doll up my gear nicely.

Namely, I had Patch Peelz. Created by the folks over at Pump Peelz, this patterned tape could make my CGM look fancy. Between the unicorn print and the dark purple and blue color scheme, the patch would look like it was styled to match my dress. I couldn’t help but beam once I was 100% ready for the evening. Coordinated aesthetics aside, I felt like one of the unicorns on my patch: magical, vivacious, and yes, pretty.

The One Good Thing about a CGM Hiatus

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All was quiet. A little too quiet…

No beeps. No buzzes. No alarms.

And the silence was refreshing. I didn’t like being without my CGM for a week, but there’s no doubt about the one positive effect that its absence had on me: It gave me a much-needed mental break from an audible aspect of diabetes.

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Diabetes can be LOUD sometimes. Especially in hypo repeat mode.

It was a blissful reprieve from my diabetes literally screaming at me like a needy baby. A week-long vacation from my CGM hollering at the top of its lungs “HEY YOUR BLOOD SUGAR IS HIGH DO SOMETHING ABOUT IT” or “WAKE UP YOUR BLOOD SUGAR IS LOW YOU BETTER TREAT IT RIGHT NOW.”

It’s rare that I can describe diabetes as peaceful; in this case, it was, and the experience will make me consider putting diabetes on mute a little more often.

 

Dexcom Delivered When I Needed it Most

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Last week, I received not one, not two, but FIVE packages in the mail. No, I didn’t go overboard with some online shopping – it was all deliveries from Dexcom to help me get my CGM up and running again.

You might be wondering: Why were there so many packages? In theory, I just needed a couple of replacement sensors and a new transmitter – couldn’t it all go in one box? Well, I wound up getting a little more than just the aforementioned supplies…

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Not pictured: another two boxes I received from Dexcom. Not sure why they couldn’t send everything in one large box, but beggars can’t be choosers.

That’s because I had the stupendously (emphasis on the STUPID-sounding part of that word) great idea to power up my old G5 CGM while I waited for my G6 materials. I had a few G5 sensors leftover from before I made the transition to the G6, and to my knowledge, I had a working G5 transmitter. So I followed the procedure to get my G5 going: I inserted a G5 sensor (ouch!), snapped the transmitter into place, and started the warm-up on my G5 transmitter.

But something was…off. The Bluetooth icon was blinking in the upper left-hand corner, and I couldn’t see how much time had elapsed in the two-hour warm-up period. At a loss as to what to do next, I left the receiver on overnight to see if it would ever pick up a signal from my G5 sensor/transmitter, to no avail.

That’s when I made the “fatal error” of shutting the system down and trying to restart it. This triggered the G5 receiver to enter a reboot cycle that wouldn’t stop. Any time I pressed the circular home button, the system would buzz and the screen would light up, as if it was about to start working. After 45 seconds or so, the screen would go black again. There was no way to interrupt this reboot loop – even sticking a paper clip into the tiny hole in the back of the receiver wouldn’t correct the faulty software.

So now, not only was my G6 out of commission, but my G5 was a goner, too.

After a few phone calls to Dexcom technical support, I had answers as well as supplies sent my way. I learned that there’s a known error with the G5 system that causes the reboot cycle to launch. I should have waited longer for the G5 transmitter to connect with the Bluetooth on my receiver (i.e., I should’ve waited for the Bluetooth icon to stop blinking), but it wasn’t necessarily my fault for having a device with a known software issue. I would receive a new G5 receiver because my old one was still under warranty, as well as a G5 replacement sensor. I would NOT get a G5 transmitter, because I’m convinced the battery on the current one is still good, but I was informed that once a transmitter is activated, the battery keeps going until it runs out of juice. Interesting. That means that it could, in theory, stop working any day now, because the transmitter was activated and last used in April 2018.

Hopefully, I’ll never have to get another G5 transmitter because I’ll be able to rely on my G6 from here on out. It gives me comfort to know I have backup G5 supplies, but I’m pretty much married to my G6 at this point. Dexcom kindly sent me the required new transmitter for the G6 system, which arrived on Thursday of last week. I got a return kit for the old G6 transmitter the previous day, and on Friday, my new sensors came in along with a return kit for my defunct G5 receiver.

Sure, it was a lot of packages to sort through in the mail. And it was mildly frustrating that I had to wait two days between getting my new G6 transmitter and compatible sensors. But the most important thing is that I’m now reconnected to my G6 and feeling thankful that Dexcom delivered when I needed it most.

 

What to do When Diabetes Technology Fails (at the Worst Possible Time)

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This past Saturday afternoon, my Dexcom G6 sensor stopped working. It wasn’t sending data to my smartphone app or my transmitter, so I was forced to fly blind…at a party with tons of people I’d never met before, an impressive food spread, and few beverage options other than beer from a keg or spiked punch.

Definitely not a good time for my Dexcom sensor to go kaput, especially considering I was getting on a plane the next day and didn’t have a backup. And I wouldn’t get my hands on a fresh sensor for a couple more days, when I would return home from my adventures in Washington, D.C. and Nashville, Tennessee.

So yeah, it was pretty much the worst timing ever for my heavily-relied-upon diabetes technology to fail.

How did I handle it? It might sound incredibly obvious, but…I just reverted back to life before a CGM, meaning that I tested my blood sugar much more often than I do when the ol’ Dexcom is up and running. At the aforementioned party, I sucked it up and pulled myself away from conversations to check my numbers every so often with my meter. I still participated in barbecue and beer consumption, but I dialed it back because I couldn’t be sure of what direction it would send my blood sugar in, or how quickly it would happen.

As for the rest of my trip, and my travel days, I remained diligent. I’d test and correct as needed approximately every two hours. I set alarms for the middle of the night so I could be certain that I wasn’t too high or too low. I went back to relying on sensation – was I feeling thirsty because my blood sugar was high? Was my shakiness a sign of an oncoming low? It surprised me how easily I slid back into those routines, but I guess that after so many years of practicing them, it makes sense that I was still in tune with my body.

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No data…no problem.

And, perhaps most shocking of all, I remained pretty calm about the whole situation. Normally, it’d send me into a panic and I’d chide myself over and over for not having a backup sensor. But, really, I carry around enough diabetes junk – adding a clunky sensor insertion device into the mix sounds excessive. After all, the sensors are supposed to WORK for the full ten days that they guarantee. It gets exhausting, having to anticipate technology failures when they should never happen, so I shouldn’t be upset with myself for not carrying more than the essentials.

The lesson in this experience, I think, is to be unafraid to depend on my intuition. I literally grew up managing my diabetes with hardly any technological aid, and I can do it again now in a heartbeat as long as I trust myself and the process.

My One-Month Dexcom G6 Review

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My first month on the Dexcom G6 went by so quickly. The G6 entered my life during a particular hectic period: between a trip to Vegas, my 25th birthday, family gatherings, and work obligations, May was marked by constant activities…which made me that much more grateful to have my G6.

Before I continue with this review, I’d like to note how I got priority access to the G6. Approximately one year ago, I applied on Dexcom’s website to be a “Dexcom Warrior”. Basically, this just means that I filled out a form with my information and some background on my diabetes story. I didn’t expect anything to come of this; if anything, maybe I’d be contacted for someone to write a bio piece about me.

Fast-forward to January 2018: I receive an email informing me that I’ve been selected to participate in a Dexcom marketing campaign. There weren’t too many details other than that a shoot was taking place over two days in Atlanta, Georgia in February and that Dexcom would pay for my flight and hotel if I gave them my time that weekend. I was thrilled to receive the offer and gladly accepted. And I’m grateful I got to have such a unique, fun experience.

I didn’t learn until several weeks later that my participation in the marketing campaign would allow me to receive early access to the G6. In other words, I was going to be one of the first in the world to try this technology. My head is still spinning from that fact, and it’s not something that I take lightly. I understand that I’m fortunate to have access to it, and in return for this special privilege, I am putting as much truth and transparency as possible into my reviews of it.

Onto my one-month evaluation…new observations include:

  • The whole 10-day automatic shutoff thing bothers me a little more than it did in the beginning. There’s no workaround, so I’ve got to know exactly when my sensor is going to expire so I can have a fresh one on hand. This can be irritating, especially when *life happens* and I forget about changing my sensor.
  • The adhesive seems to be one thing that has made zero improvement (but it’s not like it’s gotten worse, it’s the same). I think the surface area of it is a little smaller? But it’s held up fairly well for me for the full 10 days. I’ve only had to use OpSite FlexFix tape on it once, and that was on the ninth day.
  • I am LOVING not having to calibrate the receiver after the two-hour warmup period. My blood sugars automatically start getting recognized by the receiver after the two hours have elapsed, and it’s awesome.
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A view of the G6 mobile app.
  • I’m still experiencing an utterly painless application. I’ve yet to try a site other than my abdomen, though. I don’t think a different site will hurt more, though I’m curious to see if readings are less accurate.
  • Speaking of readings, I’d say that they’re within the ~15 point range compared to the blood sugars my meter reports. Not bad at all.
  • The battery on the receiver is kind of weak. I have to charge it at least twice per week, which is slightly annoying. But I also have the G6 app downloaded on my phone, so it’s not a huge deal if the battery on my receiver depletes completely.
  • The G6 app works well. Aesthetically speaking, it’s clean and modern looking, and very easy to read. It works better for me than the G5 app did, but I had a myriad of issues going on with it that affected my user experience.

I’m pretty satisfied with my G6 experience so far. I’m hopeful for the future – perhaps it’ll be possible to extend a sensor’s lifespan or easily recycle the chunky plastic applicators.

But I’m interested in questions you might have – are you still wondering about something regarding the G6 that I haven’t addressed? Please let me know. I’d be happy to provide insight.

The CGM Experiment: Comparing the Dexcom G5 to the G6

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I have the extremely good fortune of being one of the first people in the world to receive the Dexcom G6, the latest in continuous glucose monitoring (CGM) technology. After spending almost two years eagerly anticipating its FDA approval, I could scarcely believe that I finally had it in my hands when it first arrived a few weeks ago.

I am partway through my second-ever G6 sensor, so I’ve had enough time to come up with some initial opinions on the system as a whole compared to the G5.

Let’s start with what I knew going into the first insertion of the G6. I knew that the transmitter would have a sleeker profile than the G5. I also was aware that the insertion process would be much more streamlined – all I would need to do is push a button and it would be on my body.  Plus, the G6 required 0 finger sticks or calibrations, could be worn for 10 consecutive days, and would no longer block acetaminophen (Tylenol) like its predecessors did. So far, me and the G6 were off to a solid start.

Then, it came time for me to actually put it on. Rather then end my current session with my G5, I decided to leave it on so I could see how accurate it was compared to the G6.

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I was amazed by how easy it was to insert the G6. All I had to do was input a 4-digit code located on the sensor into my receiver. Once the code was accepted, I peeled the adhesive off the sensor, placed the system on my abdomen, folded the orange safety clip until it snapped off, and pushed the big orange button. I cringed when I did it for the first time; truthfully, I was prepared for it to hurt. It made a ka-shunk sound as the sensor inserted itself into my skin, and I…didn’t feel a thing. I marveled at how ridiculously comfortable it felt as I snapped the sleeker transmitter into place. I pressed one more button on my receiver to get the sensor warmed up, and that was it. Once two hours elapsed, my G6 system would be fully operational and could determine my blood sugar without requiring manual calibrations.

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While it felt great to know that I didn’t need to worry about calibrating my new device, I was more interested in seeing how well it matched up with my G5.

And I was a little let down…at least, I was in the beginning.

Initially, I was not impressed at all by the G6’s reports. They matched pretty damn closely with my G5. I was beginning to wonder whether the technology really was that excellent, and then my G6 proved to me that it was, indeed, kind of a big deal.

That moment came when it caught a low blood sugar sooner than my G5. I was feeling the early signs of a low, so it wasn’t much of a surprise when it alarmed. But what was particularly neat to me was that it was able to tell me that a serious low blood sugar (below 55 mg/dL) was oncoming in the next 20 minuets or less. In other words, it knew that I needed to treat my blood sugar right away to prevent a more urgent hypoglycemic event. That predictive feature was definitely a pleasant surprise.

As I wore my first G6 sensor for a few more days, it seemed to adjust better and better to my body. As evidenced in the above picture, it proved to be spot on when I compared it to the blood sugar readings I got from my meter. There’s absolutely still a bit of the classic CGM lag, as it takes about 15 minutes or so to catch up to what’s actually going on in the body, but that was to be expected.

I’m already on second sensor and I think it’s safe to say that I’m sold on the G6. But I don’t think that any product comparison/review is complete without a list of pros and cons, so here’s what I’ve come up with:

Pros of the G6 (compared to the G5)

  • Slimmer transmitter profile
  • 0 fingerstick calibrations (which I really loved when I didn’t have to wake up in the middle of the night to calibrate a sensor I inserted before bed)
  • Predictive low feature
  • Modern touchscreen receiver
  • Absolutely painless and foolproof application – honestly, it was THAT good that it might win me over from the G5 if that was the sole difference between the two

Cons of the G6 (compared to the G5)

  • Clunky applicator – as many other members of the DOC have noted, the system is comprised of a lot of plastic. Probably not very environmentally friendly. I wish it was possible to recycle it somehow
  • Automatic expiration after 10 days – with the G5, you could restart a sensor after a week had elapsed, and in theory, you could use the same single sensor more than once for a few weeks in a row. The G6 automatically shuts down after 10 days, so you’re forced to put on a new sensor. This medical device is already pretty expensive, and you could at least get your money’s worth with the G5
  • No super noticeable improvement in blood sugar reporting capabilities

The bottom line is that the G6 is unquestionably an upgrade in diabetes technology. It requires fewer blood sugar checks and allows for greater discretion with its smaller size. The G6 is far from perfect, but it’s still a valued component of my diabetes toolkit. I’m excited to continue on this journey with it and discover just how much it helps me take the best possible care of myself.

So THAT’S How Long and Sharp the Dexcom G5 Insertion Needle is…

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Oh, I cringe just looking at that.

This is a rare photo of the Dexcom G5 insertion needle. Yikes! I only captured it because somehow, my last sensor change with the G5 went awry and I wound up being unable to use this particular sensor. Before I threw it away, though, I played with it a bit to see if I could get a closer look at the needle that helps secure the sensor to my skin.

Obviously, the mission was accomplished. Even though I was slightly horrified by the needle’s pointy length, I was also relieved to know that it would be the last time it would puncture my skin. That’s because I knew my G6 was on its way and that one of the major improvements to it was making the whole process painless. Little did I know how true that would be until I put my first G6 sensor on…

In a couple days, I’ll *finally* publish a post that reveals my initial thoughts on my brand-new Dexcom G6. I’ll compare it to my experience with the G5 and share whether I think the G6 is worthy of all the hype it’s received.