It’s November 11th which means that it’s Day 11 of the Happy Diabetic Challenge! Today’s prompt is about go-to meals. What’s the best meal for my diabetes? The answer might surprise you…
I don’t have a go-to meal for my diabetes. Does that surprise you?
I know plenty of people from the DOC who eat virtually the same things each day for breakfast, lunch, and dinner. That seems to work well for those people, so more power to ’em!
On the other hand, I do my diabetes best when I eat a wide variety of foods. My ideal day of food will consist of a medium amount of carbohydrates, a good mix of fruits, veggies, and proteins, and probably a little something “naughty” – a square of dark chocolate or a cookie for dessert. I eat around 20-40 carbs at breakfast and lunch, and anywhere between 30-60 carbs for dinner. It really just depends on what I have on hand in the kitchen and how well-behaved my blood sugars are on a given day.
I suppose that, if I had to describe my go-to diabetes meals, it would look a little something like this:
Breakfast – Either a smoothie with protein powder, almond milk, and frozen fruit; eggs with toast/an English muffin and veggies; or plain oatmeal made with water, cinnamon, and sugar-free syrup
Lunch – Either a salad with tofu/deli meat and a piece of fruit (sometimes with peanut butter spread on it) or a sandwich with cut-up veggies and hummus with a piece of fruit
Dinner – This one varies the most, but my usual is a protein like chicken or turkey with a large serving of veggies and maybe a scoop of brown rice, quinoa, or a bread on the side, with a little something sweet to end the meal
I’ll share my current dinner obsession with you: roasted vegetables with sweet Italian sausage. I cut up a carnival squash (the yummiest variety out there – you can find it at local produce stands), bell peppers, a yellow onion, and a few baby potatoes, toss it all in olive oil, salt, pepper, and thyme, and spread it on a sheet pan. I add whole sweet Italian sausages on top and roast it all for 30 minutes at 425. Then I tear up some kale, toss it with olive oil and just a dash of salt, and throw that on top of the veggies and sausage and cook everything for an additional 15 minutes, turning over the sausages before sliding the pan back into the oven. And that’s it. It’s so tasty and easy to make, and very gentle on my blood sugars – which usually allows me to indulge a bit more on a sweet at the end of the meal.
What’s the go-to meal that works best for you and your diabetes?
It’s November 8th which means that it’s Day 8 of the Happy Diabetic Challenge! Today’s prompt is about diabetes and the workplace. Here are my top three tips on how to handle diabetes in a professional environment…
Diabetes can be the most annoying coworker in the world. It can interrupt the flow of my workday, breaking my concentration with a low or a high blood sugar that needs correcting. It can trigger alerts and alarms of all sorts that catch the attention of my other coworkers, prompting questions and confusion. And it can be a very tricky subject to bring up to management/bosses. I want them to know that for the most part, I peacefully coexist with my diabetes, but they should expect some (infrequent) occasions in which it will take my attention away from work temporarily so that I can address whatever situation I might be experiencing.
It can be really hard to walk that fine line between letting coworkers and bosses know that diabetes isn’t something they should worry about most of the time, but that it is kind of a big deal because it’s not going away any time soon.
Since joining the workforce ten years ago, I’ve had to navigate just about every situation you could possibly imagine when it comes to dealing with diabetes at work. I’ve made mistakes and learned lessons that helped me come up with the following three tips on how to navigate diabetes and work:
1) Tell at least one other person at work about diabetes as soon as possible. Through conversation with other T1Ds, I realize that the whole “I-have-diabetes-and-it’s-not-a-super-big-deal-but-I-do-have-some-special-needs-that-I-can-almost-totally-promise-won’t-interfere-with-my-work-performance” talk can be daunting, especially when it feels like your career is on the line. But I can’t emphasize enough how much it’s helped me by approaching the topic immediately before or after starting a new job.
Granted, I’ve only had two jobs – the one I worked when I was in high school at the local movie theater, and my current job as an editor – but I made sure that my diabetes was known from the outset. I got the job at the movie theater thanks to a cousin who also worked there (yay Caitlin), and while I struggle to remember details, she may have mentioned it to the general manager before my interview. It didn’t affect the hiring process whatsoever, seeing as I think my work ethic mattered more to the GM than anything else. Regardless, I can still remember talking to the assistant GM (who I’d be dealing with almost every shift I worked there) and letting her know the basics. I reassured her that I would be able to keep up with everyone else, and I figured I’d just have to prove it over time. And I sure did – I quickly garnered a reputation as an “A.P.P.” (all-purpose person) who could sell concessions, rip tickets, sweep up theaters, and swap out movie posters and times with just as much speed, if not more, than anyone else who worked there.
And with my current job, my diabetes actually came up during the interview. That’s because my resume highlighted my experience writing for an online diabetes magazine. I was asked how that came about and I remember launching into an explanation. Neither of my interviewers seemed fazed; on the contrary, they were fascinated by my obvious knowledge on it and pleased that I’d had some level of professional writing experience. Clearly, I made an impression on them…because what started out as a summer internship evolved into a full-time job at the company and I’m still there today!
So I guess I’d sum up the whole diabetes conversation by saying that it’s as big of a deal as you make it. If you approach it nonchalantly, then others will probably treat it similarly. By contrast, if you’re sweating bullets and can’t really describe what your diabetes means to your prospective employer, then they might start to doubt you when you say that it won’t hinder your work performance. Keep calm and keep all lines of communication open on the diabetes front and I bet that the odds are in your favor.
2) Keep a diabetes supply stash somewhere – anywhere – and make sure that at least one other person knows how to find it. I cannot emphasize enough how first-hand experience with this taught me that it’s crucial that others know how they can help you when hypoglycemia comes a calling. Without getting into too much detail to maintain a semblance of anonymity, a coworker from one of my gigs also has T1D. This fellow T1D experienced a severe low blood sugar one day, and the people around the T1D didn’t know how to react. Luckily, someone thought to reach out to me, and after my colleague described the T1D’s symptoms, it dawned on me that we were dealing with something pretty serious. I was able to get to them in time, but when I searched around for the other T1D’s glucometer, I realized I didn’t know how to use this particular model – and what was worse was that I couldn’t find the fingerstick device. I remember running back to grab my supplies, using a fresh lancet to check the other T1D’s blood sugar, and gasping when a 26 appeared on the screen. Things happened very quickly after that: Someone called 911, a few people came over to help me try to pour regular soda down the incoherent T1D’s throat, and I tried not to panic.
I’m happy to say that all ended well; the T1D recovered in full and thanked me profusely for my help the next day. And then it became a policy to have an emergency stash and make others aware of its location and how to use the various things in it. It went quietly unsaid that if we had known where the T1D’s supplies were kept in the first place, then perhaps we never would’ve needed the ambulance to show up, but the bottom line is preparation is key. Just get some supplies together and keep them wherever they’ll be safe. Label them with things like “do not touch – emergency T1D supplies” so nobody is tempted to lay a grubby paw on any sugary sweets that might be in there.
3) Turn innocuous comments into teachable moments. Oooh, I can’t even begin to comprehend how many straight-up stupid comments people have made over the years in regards to my diabetes…here’s a sampling of ones I can think of off the top of my head, followed by the somewhat less-than-calm responses that I gave:
Molly’s diabetes is the reason why she’s so cold around the office all the time.
Um, no, it has to do with the fact that my desk is directly under a vent that blows ice-cold air on me all day long.
Molly, you can’t eat that popcorn or drink from the soda fountain – there’s sugar in there!
ACTUALLY, I can and I will eat that popcorn. It has carbs, but I can take insulin for them. And when I’m drinking regular soda from the fountain, that probably means that my blood sugar is low, in which case I desperately need fast-acting carbs.
Molly, you have diabetes and you’re always baking sweets! You can’t eat those!
OMG *palm, meet face* I really enjoy baking just as you might enjoy watching a particular TV show or gardening. It’s a hobby of mine. And guess what? Just because I have diabetes doesn’t mean I can’t indulge on the treats I make! I just have to rely on portion control and taking the right amount of insulin.
Molly, you’re beeping again – does that mean you’re going to explode?! LOLOLOLOL.
NO DAMMIT I’M NOT GOING TO EXPLODE AND I’M SICK OF THAT JOKE. *Ahem* Very funny, but those beeps and alarms are nothing to worry about. It’s just a reminder that my insulin pump will need to be changed in a few hours, or that my blood sugar is creeping above/below my target thresholds.
Okay, I think that’s enough of a sampling – you get the idea. Basically, my advice is to treat any ignorant comments with a smile and the truth. I think that one of the best ways to fight against diabetes stigma is to take the time to explain things to people who just don’t get it or who aren’t familiar with it. More often than not, what starts out as a ridiculous comment turns into a genuine conversation in which I can help someone learn about diabetes, and then it turns into a win-win.
Diabetes in the workplace is one of those subjects that I could go on and on about (clearly). I guess the most important thing is to be honest and open to conversation about it. When people doubt your ability to do your job well with diabetes, prove ’em wrong by showing that it doesn’t prevent you from doing anything – it just means you’ve got an extra thing to consider when making everyday decisions. NBD, right?
It’s November 6th which means that it’s Day 6 of the Happy Diabetic Challenge! Today’s prompt asks us to name our diabetes hero/heroine. Well, I have more than one…
My diabetes hero is not just one person. It’s a small group of people that I call my family. (Awwwww, how sweet.)
My mom, dad, and brother are all-too familiar with diabetes. My mom is T1D, like me, and my dad and my brother were the lucky ducks who got to live under the same roof as us for many years. All three of them are diabetes heroes to me, but in some very different ways.
Let’s start with my brother. He is three years older than me and I’d say we were fairly close to one another in our shared childhood. Though he doesn’t share a diabetes diagnosis with me, he grew up with diabetes just as much as I did. And do you know what’s amazing about that? I’ve never once heard him complain about it. If he has ever felt any fear or worry for my mom and I, he definitely has done a good job of internalizing it. He treats us like we have normal, functioning pancreases, and I think the reason for that is he knows that we are more than capable of taking care of our diabetes ourselves. Although his thoughts and feelings about our diabetes have yet to be verbalized, I appreciate his unique brand of support for us and I continue to be wowed that he never seemed to be bothered by the extra attention I got as a child due to my diabetes. No unhealthy sibling rivalry there!
Next up is the other Type None in our family: my dad. I’ve written about my dad in a couple of previous blog posts. He is truly the Mr. Fix It in our family. If there is a problem, he wants to solve it – especially if it is something that is causing his loved ones emotional distress. He has had more than his fair share of situations in which my mom or I were seriously struggling with our diabetes. I can only imagine how he feels when all he can do is just stand by and let us work through our issues: It’s probably a combination of helpless, angry, and worried. He’s said numerous times over the years that he’d give my mom and I his healthy pancreas if he could, and I’ve never questioned the sincerity behind that sentiment. I know he means it, and to me, that’s the kind of heroism that nobody else in my life can even begin to compete with.
And then we’ve got my diabetes partner-in-crime, my mom. How on earth she managed to deal with her OWN diabetes, in addition to mine, all throughout my childhood is completely beyond me. Besides being there for me as a source of unwavering emotional support as someone who really “gets it”, my mom’s attended practically every single endocrinology appointment with me, encouraged me to start using an insulin pump, ordered alllllll of my supplies for many years (and kept track of the stacks of associated paperwork), and helped keep me as calm as humanly possible throughout my terrifying insurance transition that took place late this past spring. Let me just restate that she did all of this and still does all of this while still dealing with her own diabetes!!!!! It’s sort of mind-blowing to me that she can stay so much calmer about her diabetes than I ever could when it comes to either of ours, but she does it, and that makes her a heck of a diabetes hero to me.
What’s really neat about my diabetes heroes, as a collective unit, is that diabetes has never and will never define our family. It’s something that lingers there in the background, for sure, but it almost never steals our attention away from our time spent together. I can’t recall a single instance in the last 22 years that diabetes really, truly disrupted our family rhythm (maybe my parents would disagree with that and count in my diabetes diagnosis, but I barely remember that).
It just goes to show that even as something as life-altering and disruptive as diabetes only made my family stronger when it hit us with a double dose.
It’s November 4th which means that it’s Day 4 of the Happy Diabetic Challenge! Today’s prompt is called Motivation Monday, so today’s blog post is all about how diabetes motivates me…
Diabetes is exhausting. It’s 24/7, 365. At times, it’s frustrating, depressing, frightening, and generally upsetting.
Considering all that, how the eff could diabetes also be motivating?
Let me explain the ways.
Diabetes tries to knock me down – not on a daily basis, but often enough that I have to fight back against it. I’m not about to let it keep me on the ground, so my diabetes is constantly forcing me to hit back at it harder and harder. It instills a determination and a ferocity within me that I might not have ever developed on my own.
How else does diabetes motivate me? Well, it’s constantly challenging me to strive for thebetter: Better “control” over my blood sugar levels, better management of my diet and exercise regimen, and better care of my entire body, in general. While it involves a lot of work, it’s extremely motivating because I know that anything I do for the better of my diabetes and my body now will pay dividends in the future. And that’s the answer to a question I am often asked by others.
How do you live such a normal life with diabetes?
It’s fairly simple, really. I’m just motivated to live my best life despite my diabetes. It can be my biggest headache, but also my greatest motivator, and I think it’s important for me to embrace the beauty of that.
It is November 1st – the latter half of 2019 is really flying by, isn’t it – and you know what that means: It’s officially National Diabetes Awareness Month (NDAM)!
All month long, the diabetes online community is bound to go into overdrive as we make advocacy and awareness our number one priority. I know that one way in which I’ll be partaking is through daily social media posts on my Instagram account – thank you to Leah (@the.insulin.type) for creating that annual Happy Diabetic Challenge! I plan to use many of the Happy Diabetic Challenge prompts for my blog posts, too, so if you’re not an active Instagram user, you’ll still see posts related to the challenge here.
Before I launch into day one’s prompt, I have a little something to say about advocacy all month long. It can be a lot to see, read, and hear. As someone who’s been told more than a few times in her life that she talks too much about diabetes, it can be a bit difficult for me to get really pumped up about NDAM. Whether people realize it or not, comments like that can really deflate me – it’s even made me question whether I should continue making my voice heard in the diabetes online community and in other spaces.
Thankfully, I’ve had several type 1s and type “nones” alike encourage me to keep going and reassure me that my voice does, indeed, matter. The “I Hear You” campaign that my friend, Heather Walker (she’s a gem of a human being), initiated a few months ago woke me up to the fact that it’s important to acknowledge all voices and perspectives. It’s important for people to feel heard as well as to hear others because that’s what leads to personal growth and educational opportunities.
So if you think that someone talks too much about something – not just diabetes – then I ask you to use this month to shove your feelings to the side and just listen. Take just a minute to understand why that person might be so fired up about a topic and you might just learn something valuable. (And if you can’t bear to do that…remember that most social media platforms have “mute” buttons. Simply do that rather than tear into someone in a comment thread. Because that’s just straight-up bullying.)
Anyways, off my soap box and onto the first prompt of the 2019 Happy Diabetic Challenge: It’s time to introduce myself!
If you haven’t figured it out by now, I’m Molly. And I have diabetes! Type 1, to be exact. This Christmas Eve will mark 22 years since my diagnosis. (You can read my bio to learn a bit more about my diagnosis story.)
I use a Dexcom CGM, OmniPod insulin pump, and Verio IQ meter to dose my insulin and check my blood sugar levels. I used to be super against technology, but eventually I discovered just how much it improves the quality of my life with diabetes…and I haven’t looked back since.
I also used to be against meeting other people with diabetes – yes, really! As a child, I’d defiantly say NO YOU CAN’T MAKE ME GO I REFUSE whenever my parents or my endocrinologist gently asked me if I was interested in diabetes camp. I figured that it was overrated; after all, I already had two T1Ds in my life (my mom and my aunt). How much more diabetes could I really need in the form of other human beings?
It turns out that I would need – crave, actually – a lot more as I entered my adult years. My mom dragged me to an educational talk aimed towards parents and their soon-to-be-college-freshmen that would offer some advice with how to deal with this massive transition. It was there that I met the CEO and founder of the College Diabetes Network, Tina Roth. We struck up conversation and I learned that my college had a CDN chapter on its campus…though it needed someone to take over control of it.
That’s when I was immersed in the world of making diabetes connections. I took it upon myself to become that CDN chapter’s president, and before long, I was meeting T1D students all over campus. Quickly, I discovered just how magical it was to meet people who understood me in ways that my other friends simply couldn’t. It was awesome, and I felt foolish for depriving myself of it for so many years of my life.
My involvement with CDN lead to many other opportunities and friendships; in fact, I think you can make a dotted line from CDN to this very blog. It changed so much for me, and it’s one of the reasons why diabetes advocacy has been such an integral part of my adult life.
That’s the “diabetes” side of me in a nutshell. My other sides, well, they can’t be described in such a succinct way, but here are some “fun facts” if you’re curious to know me outside of diabetes:
I love crafting! I get called a grandma sometimes by my oh-so-funny friends, but I know that they appreciate my creative side (as evidenced by the scarves I’ve knit for them that keep them warm all winter long). I like knitting, party planning (and creating decor/games for said parties), baking, and just about any other activity that allows me to produce something from scratch.
I was almost on an MTV reality show when I was a sophomore in high school. Ever hear of Made? (Here’s a brief primer on it if you haven’t.) I was the only student in my high school chosen to proceed to semi-final rounds of auditions, which meant a cameraman from the network had to follow me around and document my life for a week. It was about as weird, embarrassing, and, erm, unique as it sounds. Oh, and I wanted to be “made” into a salsa dancer. I’m BEYOND RELIEVED I didn’t have to humiliate myself by dancing on national television…
I have an obsession with pop culture. I used to religiously watch shows that documented the 70s, 80s, and 90s. I loved learning about the fads of those eras and the types of shows and movies that were most popular then. This makes me semi-useful when I play pub trivia with friends – every now and then, even I’m surprised by the random facts I know.
My actual job is not this blog – I am a full-time associate editor for a financial company that offers a suite of products that financial advisors subscribe to in order to maintain relationships with clients and draw in prospects. On a daily basis, I’m reading through our library of content to make sure it’s up-to-date, researching for projects, and maintaining my reputation as the content team’s resident millennial/social media expert.
I am an introverted extrovert. I love meeting new people but tend to clam up in unfamiliar social settings. It’s a total conundrum! I’m always stepping out of my comfort zone in order to not be a hermit. It’s worth it, but if you ever happen to see out in a public setting, please be the first to break the ice – I’m so bad at it because I get freaked out, but if someone approaches me first, then I can come across as calm, cool, and collected (even though I’m still probably internally freaking out).
Well, that’s all I’ve got for now. Probably for the best, because we’ve got a long month of diabetes advocacy ahead of us! Let’s make it a great month and remember to hear one another rather than shut people out.
In Vlog #5, I share Halloween well wishes to the DOC…as well as a frightening tale fit for the season. You won’t want to miss this spooky little video. You’ve been warned!!! Press play now and let me know what you think by leaving a comment.
It was the statistic that impelled me to learn more information:
“Approximately 1 in 50 people with diabetes have monogenic diabetes.”
I was staring at the giant banner bearing this statistic in the exhibition hall of the Friends for Life Falls Church conference. I read it a few times before I finally walked over to the table at which two women were seated. One of the women was an associate professor at the University of Maryland School of Medicine and a human geneticist. The other woman was a typical T1D for several decades of her life before she received a proper diagnosis of monogenic diabetes. Ever since that revelation rocked her world, she’d gone off insulin and took sulfonylureas (a type of drug that stimulates the pancreas to release insulin) to maintain healthy blood sugar levels.
Naturally, the whole concept was simultaneously foreign and fascinating to me. I wanted to know more.
As I discovered that evening, monogenic diabetes is best explained by its name. “Mono”, of course, meaning “one”, and “genic” meaning “relating to genes”. Therefore, it’s a type of diabetes that is caused by changes in a single gene.
Here are some “fast facts” that I learned about monogenic diabetes:
Most cases of it are misdiagnosed as type 1 or type 2 diabetes
Proper diagnosis of monogenic diabetes sometimes changes treatment from taking insulin to a pill, or no medications at all
There is an emerging clinical spectrum when it comes to genetic testing for diabetes. At the time of this writing, the following situations are when it’s recommended to undergo a genetic test to determine whether an individual has monogenic diabetes:
The individual received a diabetes diagnosis within the first 6 months of life
The individual’s diabetes does not follow typical characteristics of type 1 or type 2 diabetes – this might mean that the individual is non-obese or has a strong family history of diabetes
The individual has a stable fasting blood glucose between 100 and 150 mg/dL
From the pamphlet I picked up that featured stories from individuals with monogenic diabetes: “I was 21, taking metformin and aspirin daily and sitting in a type 2 diabetes class with three much older participants. Despite dropping my BMI from 26 to 23 my A1c had risen to 6.4%, not a high number, but certainly one worth watching. I knew of no one else in my family with diabetes. Eventually I did get that dreaded diagnosis, and because it didn’t seem to be type 1, they said it was type 2. Fast forward 2 years and my sister now had ‘GDM,’ (gestational diabetes mellitus) twice, my dad finally admitted to having ‘borderline sugars’ since he was in college, and I got my genetic results back saying I had GCK-MODY (GCK being a gene that can have a variant that triggers monogenic diabetes, MODY being maturity onset diabetes of the young). It changed everything: gone were the pills, gone was the restrictive diet and exercise plan, and when my son was born with high blood sugars, we did nothing, because he was like me, and there is nothing that needed doing.”
Now, if YOU are like ME, all of that might read like some mumbo-jumbo. It took a few weeks of me reflecting on it to decide whether I should even write this post, because I feared that it might cause some people to be paranoid about whether or not they were misdiagnosed with their diabetes (I admit that I was worried about that for myself in the days after learning about monogenic diabetes).
But the big takeaway here that I thought should be captured in a blog post is that it’s important for patients to advocate for themselves when things just don’t add up. There were a few more stories from individuals with monogenic diabetes in the pamphlet I got, and there was a recurring theme in all of them: Doctors kept telling these patients that their diabetes was atypical, but it wasn’t until these patients sought genetic counseling that they began to understand why.
It goes back to what I said at the beginning of this blog post: I find this variant of diabetes to be intriguing. It makes me wonder whether we should continue to define diabetes in such a black-and-white manner (either you have type 1 or type 2). I’m curious if diabetes is more of a spectrum of diseases that present similar symptoms, but require different levels of treatment and management. It’s certainly interesting food for thought, and considering that diabetes continues to be a semi-mystifying condition to many researchers and doctors, it won’t surprise me if future studies eventually uncover more types of diabetes.
Anyways, enough of my musings on genetic testing and speculations on how many types of diabetes are really out there. If you’d like to know more about monogenic diabetes, I was guided to several different resources. Check them out below: