T1D is like a prickly cactus (literally and figuratively), but I've learned to embrace it, thorns and all.
My diabetes journey began on Christmas Eve in 1997. That day, I became the third person with type one diabetes in my family. I was four years old at the time, so I've lived most of my life with diabetes. While some people may view this as sad, I've learned to embrace my chronic condition and live my life without limitations. You might say that I've taught myself to hug the cactus, so to speak.
When I'm not blogging, you can find me enjoying any or all of the following: time with family and friends, a quality cocktail, Harry Potter, a good book, General Hospital, pop culture from the last three decades, and tasty foods.
I love connecting with other members of the DOC (diabetes online community) - so please don't be shy, find me on Twitter or Facebook!
I can’t be the only one in the diabetes online community who is feeling apathetic (at best) for a month that I’m normally thrilled to celebrate. After all, I love being a diabetes advocate!
But this year…the mere prospect of it just feels like it’s a little much.
It’s a little much in a year in which the world is facing a pandemic.
It’s a little much when potentially the most important U.S. presidential election in history is also happening this month.
It’s a little much when I’m dealing with a HELLUVA lot of other things in my personal life – mostly good things, but ones that happen to be highly stressful.
It’s just…when I think of it…how can I approach this National Diabetes Awareness Month with all the enthusiasm that I’ve showed it in past Novembers?
I don’t know how to answer that question right now, but I do suspect that I’ll muster up some of my advocacy spirit once I start seeing posts and prompts from the diabetes online community.
Which makes sense…after all, we turn to one another when we deal with the literal and figurative lows of life with diabetes. So it’s perfectly logical to have faith in knowing that this will be a great November with the trusty DOC supporting me.
There’s no cutesy lead-in to this post…I’m going with a very straightforward statement here:
Diabetes has caused me to have a very weird and strained relationship with food.
How? Oh, let me count the ways…
Diabetes has positively impacted my relationship with food because it has helped me understand the importance of nutrition. I’ve had to learn how carbohydrates, proteins, and fats affect my levels, as well as the role that the glycemic index of foods play into the picture. I’m also grateful that diabetes has caused me to realize there are limits – I can’t mindlessly eat huge quantities of food (though on occasion I do, more on that in a minute). I must measure everything out, and I believe that this forced sense of portion control has helped me maintain a (mostly) healthy weight.
But diabetes has also, absolutely, negatively impacted my relationship with food.
For starters, I can get so fed-up with having to account for every single morsel I consume in a given day – I resent having to take insulin for foods I’d otherwise find enjoyable. Plus, there’s a lot of guilt associated with my regular food consumption. “Should you eat that?” is question I hear not just from others, but from myself as I have to think about whether certain foods are worth not just the calories, but also the amount of insulin that I have to dose for it. And don’t even get me started on how literally unsavory it is to have to eat food when I’m already full but dealing with a low blood sugar…
In a word, my relationship with food is complicated…and I don’t hesitate to blame my diabetes for that. Don’t get me wrong: At the end of the day, I loooooooove food. Really, there’s very few things that I don’t (or won’t) eat or at least try. I enjoy consuming a large variety of foods and I like to eat veggies almost as much as I like eating chocolate (that may be a bit of a stretch, but I think you get my point).
It’s just unfortunate that my diabetes forces me to overthink every food choice that I make. So I’m that much more hopeful for the day which I can eat food without having to think twice about it, without having to feel guilt, shame, doubt, anger, sadness…nothing but pure enjoyment.
Whether you’re new to using an insulin pump or a seasoned pro, you might be wondering if there’s a time of day that’s most ideal to do a pod/site change.
And I’m here to tell you…there isn’t a one-size-fits-all answer. (Sorry!)
Like many aspects of life with diabetes, the best time to do a pod change will be different for everyone.
However, I do feel pretty strongly about what works best for me, and I can explain why it does. Maybe that will help you or a T1D in your life decide what makes the most sense for your individual situation!
In my opinion, the best time to change my pod is within the 3-hour window after I’ve eaten dinner. Since I typically eat at about 5:30/6 o’clock, this means that I like to change my pod no later than 9 o’clock at night (but preferably sometime around 8).
Here are the reasons why:
I can take my dinnertime bolus using a pod that I know for certain is acting the way it should.
That timeframe is early enough for me to verify that my new pod is acting the way it should before I go to bed.
Usually, I don’t eat much in the evenings after dinner, so even if my new pod isn’t working right, it’s not too big of a deal because it’s not like I’ll be bolusing for mealtime carbohydrates.
When I change my pod at other times of the day, it interrupts other aspects of my daily flow (e.g., my wake-up time or my work schedule).
There’s something to be said for ending my day with a fresh pod and incorporating the pod change into my bedtime wind-down routine.
Of course, I’ve had to change my pod at less-than-ideal times (I recently did a 6 A.M. pod change because I was deliberately wearing my pod for the maximum 80 hours and it was not my favorite way to start my day). Pods fail or get knocked off and I’ve learned to roll with the punches by having back-ups at all times.
But since I know my best time for a pod change, it’s really nice when I can stick with it…because any reliable aspect of life with diabetes is one that makes it ever-so-slightly more tolerable.
Life is incredibly busy lately; as a result, I don’t have as much time as I’d like to write brand-new blog posts! But I thought this would be a fun throwback to publish today: the post I wrote for ASweetLife.org on January 21, 2015. It’s all about how I got started with my first (and only) insulin pump, the OmniPod. I’ve written so much about it here in the last few years and it recently occurred to me that I’ve never gone into much detail on how my first day with it went. Fortunately, I rediscovered this post, which does a great job at capturing all the emotions I experienced that day. Read on for more…
Today marks a new beginning for me. After seventeen years of taking insulin shots, I’ve made the move to a higher form of technology: the insulin pump! My pump of choice? The OmniPod, which appealed to me mainly because it is tubeless and my mother also uses it.
As the day went on, I experienced an array of emotions. I woke up feeling pumped (ha-ha, diabetic humor) because I realized I would be taking my last shot via insulin pen for the time being at breakfast. It was pretty anti-climatic, but a major moment for me nonetheless.
Some anxiety started settling in around midday. This was partly due to the fact I knew my visit with my diabetes educator would last roughly three hours in duration. I wasn’t exactly thrilled about having to spend a good chunk of my day off at the doctor’s office. I also had a few lingering questions. When would I take my first bolus? When would I be able to eat my next meal? Would it hurt when I inserted a new pod? I was driving myself nuts with my ceaseless stream of questions.
When it came time for me to actually leave for my appointment, I felt as ready as ever. I decided it would be best to just go with the flow and be patient as I listened to everything my diabetes educator needed to say to me.
Much to my relief, the three hours flew by more rapidly than I thought they would. In that span of time, I learned not only the basics of my pump, but the finer points that I may not have necessarily understood or picked up on my own. And I was reassured when upon inserting my first pod, I learned that it’s painless – my Dexcom causes more of an unpleasant pinch than the OmniPod system.
By the time I left the office, I had three more follow-up appointments scheduled and a fully active pump stuck on my belly. I didn’t give it much more thought until dinnertime, where I tested (more diabetic humor!) its abilities. I was impressed with how simple the entire insulin delivery process was, and I liked that my PDM would beep periodically to inform me of the status of my bolus.
Post-dinner, though, brought some frustration. As I write, I am still higher than I would like to be. It could be due to anything, which makes it especially irritating. Maybe I miscalculated my carb intake, or maybe my basal rate or insulin-to-carb ratio needs tweaking. For now, all I can do is accept the fact that the beginning of this new regimen will bring lots of trial-and-error with it and monitor my blood sugars carefully – it means waking up a couple times during the night, but I know I just have to do it.
I am not looking forward to this start-up period, but I am hopeful for what it will bring and what I can learn from it. I do look forward to sharing my experiences along the way, so stay tuned for my next post about my transition!
Open enrollment season has officially started and I am officially stressed about it.
Like many employed Americans, I have health insurance through my workplace plan. My yearly opportunity to choose my benefits for 2021 kicked off on October 15th and I have until the 29th to make my elections.
What, exactly, makes me so anxious about open enrollment? Well, for starters, I’m never certain that I’m choosing the best plan for me. I know that I’m extremely lucky to be able to choose between three different options – many others aren’t so fortunate – and truly, my company offers tools to make the process as smooth and understandable as possible.
But…health insurance matters are confusing!
There’s too much math involved for me, a person who considers herself allergic to basic arithmetic!
There’s too much unpredictability in it all – how am I supposed to know how many times I may need to meet with specialists next year? How am I supposed to forecast any possible health issues besides my diabetes? How do I go about guessing things that are impossible to guess?
Do I stick with the plan that I’ve been on for the last year and a half or so, that has high co-payments for my doctor appointments but the lowest deductible? Or do I change it up and go on a high deductible plan with a lower premium?
Please reassure me that I’m not the only person with diabetes who absolutely loathes this entire process and overthinks it every step of the way…
The thought occurred to me that I should write a blog post on this subject sometime around 3 A.M. after I shoveled a slice of cheddar cheese into my mouth.
Low blood sugars combined with odd hours of the night aren’t foreign to most people with diabetes, but they can be…interesting when you aren’t prepared to handle them with low snacks stashed away in or on your nightstand.
To elaborate, I almost always have a box of raisins or a bottle of glucose tablets sitting on top of the nightstand next to my bed – but there are those times that I run out and forget to replace them.
In those situations, I really have no choice but to eat everything in the kitchen head downstairs and scavenge in the kitchen for something that will bring up my low blood sugar.
Usually, I consume things that make sense – a handful of cereal, a glass of juice, a few marshmallows…whatever the kitchen is stocked with that will work fast. And this is absolutely the best tactic when dealing with a middle-of-the-night low because it helps ensure that I will be able to get back into bed (and hopefully fall asleep) as soon as possible.
But every so often, I go absolutely apeshit in the kitchen and EAT ALL THE THINGS!!!!!!!!!!
Okay, not ALL the things, but definitely way too many things.
I blame it on the fact that my body is in that savage, must-eat-food now mode: Hungry and full cues aren’t a “thing” in that state. So I kind of mindlessly eat junk until the symptoms of my low blood sugar go away. This can take at least 15 minutes, so as you may be able to imagine, I can go overboard with food consumption.
And my choices can get more than a little weird.
Here are the most bizarre food items that I’ve eaten when dealing with a middle-of-the-night low blood sugar. I classify them as “strange” because either 1) they don’t do anything to help low blood sugar because they’re low carb, 2) they’re kind of disgusting, 3) the quantity is odd, or 4) a mix of all of those qualities:
A slice of cheddar cheese (mentioned in this post’s introductory sentence)
About one-third of a Nutella jar (that was so yummy but damn I shudder to think about the calories and fat in that serving)
Too much peanut butter to quantify (please see above comment RE: Nutella)
SUGAR-FREE syrup (emphasis on the sugar-free because WTF was I thinking when I straight up drank two swigs from the bottle)
Exactly three frosted mini wheats (I don’t even LIKE this cereal but I guess in this situation I thought that consuming no more, no less than three was a brilliant idea)
Pickles (not weird at any other time of the day because I love pickles but maybe not the best snack in the early morning hours)
Welp, now my stomach is churning slightly as I think about all the junk I’ve eaten at ungodly hours of the night…if you don’t mind me, I’m off to go restock my low snack supply on my nightstand so I don’t have to make any early-A.M. hour trips to the kitchen any time soon!
This blog post was originally published by Hugging the Cactus on September 12, 2018. I’m reposting it today because it is still incredibly important and relevant: We ALL must work together and treat one another with respect. Life with diabetes is hard enough on its own! Diabetes online community, I love and value you so much…please just remember to be kind to others. Continue reading for my thoughts on why I think it’s fruitless to debate one another regarding diabetes…
I found the diabetes online community (DOC) a few years ago – or perhaps it found me – and to this day, I’m incredibly grateful for it. It’s introduced me to new friends and it’s always been a reliable source of information. Whether I’m lamenting a low blood sugar at 2 A.M. or asking if anyone has advice on a pod problem at 2 P.M., odds are I’ll have someone reaching out to me within minutes in some form or fashion. That kind of on-the-fly support is invaluable.
That being said…the DOC is not always a perfect safe haven.
In fact, if there was one thing I could change about it, it would be to make it a judgment-free space: because all too often, people are unfairly judged for how they choose to manage their own diabetes.
I’m not saying that people aren’t entitled to opinions. Of course they are! But what happened to respectfully disagreeing with people?
I’ve seen situations like the following across different social media platforms:
People getting attacked for following low/medium/high-carb diets
People getting criticized for sharing “good” and “bad” blood sugars/A1cs
People getting judged for dealing with diabetes burnout – as well as people getting judged for sharing their diabetes triumphs
People getting discouraged from posting only the pretty parts of diabetes
We can’t keep doing this to each other. Just because a certain diet or T1D management strategy works out well for one person, doesn’t mean that it will work the same for another. That’s because diabetes is not a one-size-fits-all condition.
And we shouldn’t be judging one another for our differences. In fact, our differences can teach us so much more than our similarities can. We should celebrate one another for living with diabetes: doing the best we can, day after day, whether it yields “ideal” or “not ideal” results. Because it’s damn difficult to manage, and anyone who says otherwise is being judgmental.
We can learn and grow from one another, which is pretty powerful, as long as we refrain from this “I’m right, you’re wrong” attitude.
I can’t be the only one who feels that it takes five-ever (which is even longer than FORever) for high blood sugar to come back down to normal levels.
I don’t use any super-fast-acting insulin (such as Afrezza or Fiasp), so typically, I have to wait about an hour for my good ole Humalog to kick in. And an hour can feel agonizingly long when it comes to diabetes.
Fortunately, I’ve used different tips and tricks over the years to help make that hour fly by:
Blast some music and dance around in place. You might feel dorky when doing this, but I honestly swear by it – not only is it fun, but it can also help my blood sugar come down faster because yes, dancing around is still exercise!
Sip water over the course of the hour. I challenge myself to drink at least one full water bottle (I’m talking my 25 ounce reusable water bottle, here) in this hour of time. It’s my opportunity to rehydrate myself, and it’s also a good way to flush out the system when trying to bring a high blood sugar back down.
Watch episodes of “comfort” television. I know that I can watch exactly one episode of The Boys, two episodes of Sex and the City, or three episodes of Community (yes my taste in TV is eclectic) and allow myself to get totally immersed in the shows as opposed to stressing about my blood sugar. I call these shows “comfort” TV because I’ve seen all the episodes before, but I enjoy them still and I know how much of them I need to watch in order to stay distracted.
Read a magazine or a few book chapters. I’m kind of a hoarder and I save old magazines that I’ve purchased at airports over the years…but my magazine stash comes in handy when I need an hour of time to go by faster because I can pretty much read one cover to cover (depending on how big it is, of course) while I wait for my blood sugar to come down. Or I can turn to my book collection, select a piece of “comfort” literature (like the comfort TV described above), and get lost in the words for awhile.
Get into an arts and crafts project (or anything that requires focus). For me, this is knitting. Depending on the knitting project, it can take anywhere from a day to weeks to complete something. So if I need to wait for a high to come back down, I can focus on making knitting progress as opposed to what my blood sugar’s doing for an hour – and honestly, I sometimes get so into my work that I don’t stop for a few hours. Time goes by quickly when knitting!
Make it impossible to keep checking the CGM app. Sure, I could torture myself by checking my app literally every 5 minutes for updates, but that’s one guaranteed way to drive myself crazy for a full hour (or longer, because there’s a 15-minute delay with my CGM). So I force myself not to check it by putting my phone in a different room, silencing it, or turning it off altogether. Removing the temptation to check my blood sugar is majorly helpful when waiting for it to drop down because I’m not constantly stressing over how long it’s taking for the insulin to start working.
It might seem kind of ridiculous that I rely on these strategies to make time go by faster when I have a high blood sugar, but they work – and feel a heck of a lot better to do than anxiously staring at my CGM for a full hour!
One of my Instagram followers recently reached out to me and asked for some advice.
…can you make a blog post about how to reduce temptation when blood sugars are high. Whenever my blood sugars are low, I [don’t] really want to eat but of course I have to but for some reason when they are high, I’m soooo hungry and I’m just tempted to eat tons of carbs! Help!!
I liked this comment for several reasons. One, this person told me it was tough for her to ask me about this in such a public forum, so I applaud her for stepping out of her comfort zone. Two, it’s an excellent blog topic suggestion. Three, I can absolutely relate to feeling hungrier than normal when my blood sugar is high. And four, I’m sure others can, too!
I’ve always kind of assumed that I get hungry when my blood sugar is high because at that moment in time, food is practically forbidden…so it becomes incredibly appealing, even though it’s not always advisable to eat with a high blood sugar (because depending on what food it is, it could make high blood sugar go up even more).
So thanks to this comment on my IG profile, I started thinking about the ways I fight off hunger pangs when my blood sugar is high and came up with these 4 tried-and-true tricks I’ve learned over the years:
#1: Make a smorgasbord of low carb snacks. My mom will appreciate my use of the word “smorgasbord” in this tip because that’s exactly what she used to call the plate of snacks she’d fix for me when my blood sugar was high throughout my childhood. She’d assemble an array of low carb goodies – cheese, pepperoni, olives, nuts, pickles – that would satisfy my hunger without raising my blood sugar even further. As a child, I felt special because I was virtually getting my very own charcuterie board (just minus the crackers) and that made high blood sugars much more bearable.
#2: Drink plenty of water (or other low/no carb beverage). I’ve heard medical professionals, nutritionists, fitness experts, and the like say time and time again that one reason we might feel hungry at a given moment in time is because our bodies are trying to tell us that we’re actually thirsty, not hungry. So it makes a lot of sense to stay super hydrated when dealing with a high blood sugar because it can stave off hunger as well as help flush out our systems.
#3: Seek distractions. I write more about this in an upcoming blog post, but when my blood sugar is high, it’s important for me to not dwell on it too much because it seems like it takes it that much longer to come back down. So I distract myself in every possible way: I find an activity to do, TV to watch, a family member or friend to talk to…this helps me forget about the high as well as any cravings for food that may come along with it.
#4: Remember…this too shall pass! Again, I gotta give my mom some credit for this one because she says this motto to me all the time. When I’m feeling extra hungry and experiencing a high blood sugar, I just try to remind myself that both the high and the desire to snack are fleeting. Sure, they’re not fun to deal with at the same time, but knowing that they’re only temporary makes everything easier.
This blog post was originally published on December 17, 2018 at Hugging the Cactus. I decided to repost it today because this is something that will ALWAYS be relevant – in fact, someone just said to me earlier this month that they are sorry I have diabetes!I wish people would stop apologizing for something that nobody can change, and something I accepted long ago…read on for more about why I never want people to feel sorry for me because I have diabetes.
Today’s blog post is going to be short and sweet, and about a subject that I think every person with diabetes deals with whenever they tell someone new about their diabetes.
It doesn’t matter how diabetes comes up in conversation. Whether it’s in a joking, serious, educational, happy, sad, or angry manner, the person I’m talking to almost always says…
Sometimes, I think it’s because society has instilled this weird reflex in people to apologize for something that they didn’t do. Other times, I think it’s because people just don’t know how else to respond to something that may be sobering or grounded in reality. But the simple fact of the matter is…
People need to stop apologizing to me, and other people with diabetes, for having it.
It doesn’t make sense.
We weren’t given a choice – it’s a simple truth that we’ve learned to accept.
It makes me feel strange, because it’s almost like the other person is taking accountability for my diabetes.
I believe that human beings apologize too much, in general, and it diminishes apologies when they matter most or are most sincere.
I’m not sorry that I have diabetes, so why should someone else be?
While I genuinely empathize with and appreciate people who apologize as a knee-jerk response, I’m just here to gently tell them that it isn’t necessary. Save “I’m sorry” for times that it’s warranted, and not for something like having diabetes, a matter in which no one has a choice.