Tag: Dexcom

Behind the Scenes: Shooting a T1D Marketing Campaign

mollyt1d3 Comments

Last week, I had the exciting opportunity to participate in a T1D marketing campaign! I won’t say too much about the brand or product itself, because I don’t want to share more than I’m allowed, but I WILL say that there is some very cool stuff in the works for the diabetes community – and that’s a total understatement.

A couple stills from the shoot…
…I still can’t believe that’s me!

And I also wanted to share what it was like to be on a production set like that! I arrived in Atlanta late on Thursday night, woke up early on Friday, and got myself ready to head over to the shoot for 11 A.M. From there, it was a long blur of a day. I was whisked from wardrobe to hair/makeup to a holding room to one room filled with wicked bright lights and dozens of people to another room with a plain backdrop and just a few people to another room that’s best described as a closet. Actually, that latter room was where I did an audio-only interview, and I felt just like Harry Potter in the fourth book when he was being interviewed by Rita Skeeter in a broom cupboard. Except I wasn’t being grilled by a nosy reporter like he was; on the contrary, my interviewer couldn’t have been friendlier.

This whole process took about seven hours – that’s a pretty long while to be going around from room to room and having to be on my feet for varying lengths of time. But it was so exciting that I didn’t mind one bit.

But I DID mind my blood sugars; at least, as much as I could when I wasn’t having my makeup touched up or staring into a camera, responding to questions. I had no clue how it would fare after several hours on location and minimal physical activity. I was also worried about the food/drink situation: Would I have access to ample snacks and beverages?

Fortunately, that was a total non-issue. The production company had numerous snacks and bottled water in nearly every room on set, on top of a hot lunch. Around one o’clock in the afternoon (five hours after I ate breakfast), I helped myself to a serving of salmon, squash, and green beans. I was impressed with the quality and healthiness of the food, and even more pleased to discover that among the diet drinks was unsweetened iced tea and sparkling water. Score!

14789128-556D-49CF-8596-80C88D2AEABB
Not perfect, but manageable and steady. A win in my book.

This food kept me fueled all throughout the afternoon on set, and I enjoyed steady blood sugars for the duration of the shoot. Rather than stressing about my blood sugar, I was focusing on posing for photos and answering prompts from producers. It really, truly was a one-of-a-kind experience. I feel so lucky to have been invited to partake in this campaign, and even luckier to have met a diverse and welcoming group of individuals (T1D and non-T1D) along the way.

On top of all that, I proved to myself that I CAN do “crazy” and unique things like this without my diabetes getting in the way. It’s more proof that diabetes will never stop me from living a full and extraordinary life.

Favorite Things Friday: Adhesive Remover Wipes

mollyt1d1 Comment

One Friday per month, I’ll write about my favorite diabetes products. These items make the cut because they’re functional, fashionable, or fun – but usually, all three at once!

“Adhesive remover wipes” sounds about as exciting as dryer lint. But these really are a nifty invention, especially for someone like me who wears multiple T1D medical devices.

My pods stay on my body for three days at a time, and my CGM sensors can last as long as two weeks. So needless to say that they need to be equipped with super strong adhesive to ensure they stick for the necessary length of time.

IMG_5246
These adhesive remover wipes look lame, but trust me, they’re pretty impressive.

I’m grateful for the high-quality adhesive, but man, it can be difficult to completely remove from my body. Before I discovered these magical wipes, I’d rub my skin raw in an attempt to get rid of all traces of leftover adhesive. As a result, I’d either walk around with gray circles of adhesive on my abdomen and arms, or with irritated, pink skin that I needed to let heal before reusing as a site. A surefire lose-lose scenario either way, right?

A quick search online caused me to discover these adhesive remover wipes. I purchased them immediately and I can say it was a brilliant buy. I no longer scratch at my skin until the adhesive disappears; rather, I merely wipe the area with one of these towelettes and within seconds, all adhesive is painlessly removed.

If you’ve struggled in a similar manner with removing your medical adhesive, definitely look into these wipes and save your skin from stress.

Diabetes Data Overload

mollyt1d1 Comment

I’ve always been a words girl – never a big fan of numbers. So isn’t my T1D ironic, being that it’s an illness ruled by numbers?

Think about it. PWD have a ridiculous number of…numbers to be concerned about on a daily basis. Between blood sugar checks, insulin dosage calculations, carbohydrate counting, basal rate testing, and more, there’s a lot to take into account.

And as time has gone on and technology has evolved, it seems like these numbers are constantly accessible on an endless volume of devices. I can determine trends using my Dexcom CGM – using either my mobile app or my sparkly pink receiver. I can scroll through my record log of blood sugars on my meter. I can find out how much insulin I took in one day using my OmniPod. I can even download several weeks’ worth of blood sugar graphs from my Dexcom by simply hooking it up to a computer.

So many numbers…
…and so many graphs.

It’s information overload.

As much as I love having the ability to access all of this data, it’s also too much to swallow at times. I could drive myself nuts looking through days’ worth of graphs and logs to figure out why I was inexplicably high at 3 o’clock in the morning one day, but I can also just chalk it up to a fluke and better spend my energy worrying about my blood sugar in the present (as opposed to the past).

The point is, it’s exhausting to have my life dictated by all this data. I wish I could take a break from it sometimes, but then again, it’s helped me become more accountable for my own health. And I can still express my hatred for numbers by using my love of words, so it’s not all that bad.

Traveling with T1D: During the Trip

mollyt1dLeave a comment

A few days ago, I wrote about what it’s like to prepare for travel with diabetes. It may have surprised you to learn how many steps are involved! But the work doesn’t end when en route to the destination…

It doesn’t matter if I’m going to be stuck in a car for several hours, flying on a plane, or – my worst nightmare – waiting in the airport for a delayed flight: There are additional steps I like to take when traveling to help ensure my blood sugar is steady and I’m adequately prepared with my supplies.

At the airport…
…with my bag o’ tricks (diabetes supplies)

These steps include:

  • Checking my blood sugar often. I don’t like to rely completely on my CGM; after all, it can be inaccurate from time to time. So I tend to perform more blood sugar checks than usual while I’m waiting at the airport or sitting shotgun in a car. But if I’m the one driving, I (obviously) wait to check at rest stops as time allows.
  • Seeking healthy snacks. It’s definitely easier for me to find healthy options when I’m on a road trip – I can simply pack meals and snacks ahead of time. The airport is a little trickier for me, though. Sometimes, I’m tempted by candy or chips – comfort foods – because I’m not a huge fan of flying and like to do anything to take my mind off it. Luckily, though, even if I don’t make the healthiest choice, everything I’m consuming does have a carbohydrate count that’s easily accessible. This helps me take the correct insulin dosage and removes some extra thought from the process.
  • Getting as much movement in as possible. If this means taking laps in an airport terminal, so be it. I know that my diabetes responds well to exercise throughout the day, but it’s next to impossible to get movement in when cooped up in a car or plane. So what if I look kind of weird at a rest stop doing jumping jacks next to my car? At least I know I’m doing my body some good.

One thing I’d like to note is that the airport comes with some added fun: the TSA!!! (Insert sarcasm here.) That means I also have to be prepared for going through security. Some PWD have reported terrible experiences with the TSA, which is why I’ve devised a protocol for myself when traveling so I can (hopefully) avoid a bad interaction.

This plan consists of:

  1. Having my ziplock bag of diabetes supplies at the ready in my carry-on in case I’m asked to remove it,
  2. Telling the TSA agent conducting the body scan that I have T1D, and pointing out the locations I’m wearing my pod and CGM sensor,
  3. Knowing that I’ll probably be asked to touch my sites (over my clothing), and
  4. Allotting for the extra time it takes to get my hands swabbed.

So far, so good with this little strategy of mine. I’ve found that it works best to stay cool, calm, and collected throughout the whole TSA process. It’s a miserable one at best, but I might as well not exacerbate it by getting in a panic about my diabetes supplies.

After all that, what do I possibly have left to do once I actually arrive at my destination? Be on the lookout for my third and final post in this little series of travel procedures – but certainly not my last on traveling with diabetes, in general!

That Time I Lost my Dexcom, and a Cop Flirted with Me

mollyt1dLeave a comment

I bet that title caught your attention, huh?

Not too long ago, I was fondly reminiscing about my college days. So many stories, so many of them related to diabetes in some manner. But this one that I’m about to share is one of the funniest, most cringe-worthy stories. Hopefully, you’ll be delighted by my awkward adventure:

It was the night of the “senior ball”. This was a dance held at the Mullins Center at the UMass Campus for graduating seniors. I was particularly excited to attend mine, because it presented me with an opportunity to see all of my college friends again. Technically speaking, I didn’t graduate with them – due to extra course credits and an overloaded schedule, I was able to graduate one semester earlier than the rest of my friends. This means I last hung out with the group in December; fast-forward to May, and it had been nearly five months since I last saw my crew.

So this meant we had to celebrate! As I got ready at my friend’s apartment, we caught up on each others’ lives and drank some wine. By the time we were ready for the grand ole ball, we were feeling more than ready to dance the night away.

drink
Drinking and diabetes: Things can get a little…dicey, when celebrating special occasions.

And we certainly did. We spent several hours that evening taking pictures, laughing with friends, snacking on appetizers and sipping more wine. And in the middle of it all, my Dexcom CGM somehow managed to vanish from my purse’s strap. I didn’t realize this until I needed to check my CGM to stay updated on my blood sugar, so I had no idea how much time had passed between then and when I lost the CGM.

What I do know for sure, though, is that I instantly panicked when I discovered it was gone. I rely heavily on my CGM when I’m at an event like this. It’s really useful for me to stay alert of how I’m trending, especially when I’m drinking alcohol. Typically, I know what to expect in terms of my blood sugar when I’m imbibing in different kinds of alcohol, but having my CGM handy makes me feel more secure.

So that’s why I freaked out. How the hell was I supposed to find my CGM in the Mullins Center? For context: It’s an arena that can hold almost 10,000 people. There weren’t quite that many attending the ball, but there were enough bodies in there to guarantee that searching for my CGM wouldn’t be easy.

I admit it, I was a little tipsy, so that definitely didn’t help in the situation.

After telling my friends what happened, and a brief group effort to search for my CGM, I knew I needed more manpower. So I found a police officer and told him what was going on. Once he found out I was a diabetic, he sat me down in a chair – he must’ve been afraid I’d pass out or something – and he assured me that we’d locate it by the end of the night. He struck up conversation with me while we waited for news from the other officers who were on the case. I had nothing else to do, so I gamely chatted with him.

I have no idea how much time passed. It could’ve been 20 minutes or 2 hours, but in a matter of time, my CGM was found. I jumped for joy when it was returned to me, cradling it in my arms. Meanwhile, the police officer seemed kind of bummed. He took something out of his pocket – a card – circling a number on it before handing it to me. “That’s my number,” he said, “just in case you need me again.”

I took it, nonplussed, and thanked him for his assistance. He nodded, and watched as I walked away to rejoin my friends. We all walked home and passed out soon after, exhausted from the fun but chaotic night.

The next morning, I woke up and rummaged through my purse to get my meter and CGM so I could do my first BG check of the day. As I looked through, I found a card in my bag – the cop’s card. I chuckled out loud, explained what happened to my friends, who laughed riotously as I relayed my interaction with him the night before.

“Molly, face it – you got hit on by a cop while you nearly had a medical crisis.”

Yup. True story.

Why it’s Worth it to Work Out Your Ratios

mollyt1dLeave a comment

It’s not easy to figure out the insulin-to-carb ratio and basal rates that work best for you. In fact, it involves commitment, communication with your diabetes care team, and solid carb counting skills. But the work is so, totally worth it, because your blood sugar readings can look like this:

These 12- and 24-hour graphs were the result of me kicking it into high gear with my diabetes management in recent days. I can’t explain how awesome it felt to achieve graphs like this. Yes, I dipped a little lower than I would have preferred a few times, but the main accomplishment here is that I avoided the sticky highs that were frustrating me in the afternoons and in the middle of the night. Just looking at those smooth, nearly straight lines overnight brings a smile to my face.

I’d like to note that I did this WITHOUT making any special changes to my diet. In a single day, I ate fairly high carb for a PWD: around 30 grams of carbs at breakfast, another 30 at lunch, and between 40 and 50 at dinner. And depending on what my blood sugar is before bed, I’ll have another small snack, between 10 and 15 grams of carbs. So I think the main factors at play that lead to these beautiful graphs are 1) I bolused for my meals 10-20 minutes before eating them, 2) I ate the right balance (for me) of carbs, fats, and proteins, and 3) My insulin-to-carb ratios are spot-on at this time.

As long as I continue to put forth the right amount of effort, I think I’ll continue to have graphs like this. Of course, I know I’m going to slip up from time to time – occasions during which meals are a little more difficult to predict, or periods in which I experience higher stress levels – but this is okay. I constantly remind myself that diabetes is not something that can be completely tamed, no matter how hard I try. I accept that mistakes will happen along the way, and the best thing I can do is to learn from them to avoid making the same ones in the future. This acceptance, combined with perseverance and a willingness to always learn more about how my body reacts to certain foods and events, will help me meet my blood sugar goals on a more regular basis, which makes it an incredibly worthwhile pursuit.

Hypoglycemia Strikes Again

mollyt1dLeave a comment

I rolled over onto my stomach and groggily opened my eyes. I checked the time – 1:30 A.M. I felt beads of sweat form on my forehead and back. I kicked my blankets off my body just as I heard my CGM vibrate: five urgent, successive buzzes, a grating sound. I knew what it meant without looking at the screen. My blood sugar was low, and I had to do something about it.

lowbg
Low blood sugar is never fun, but especially when it happens in the middle of the night.

Blindly, I groped around in the dark, my arm hanging off my bed as I searched the floor for my purse. Once I located it, I rummaged through the inside, looking for a miniature box of raisins that I knew would boost my blood glucose up. I found them and ate them quickly, sitting upright in bed. As I chewed, I registered the sensation that occurs once in a blue moon with these middle-of-the-night lows…

…Raging hunger.

It’s that feeling that you have when your blood sugar gets below a certain point.

That feeling of utter starvation.

That feeling that deprives you of good common sense.

That feeling that forces you to get out of bed, even though the rational part of your mind just wants you to go back to sleep.

Damn it. I’ve succumbed to it, again.

It’s not like this happens every time I have a low at ungodly hours of the morning. In fact, it probably only happens to me four or five times throughout the year. Maybe because I fight against it so hard, since I know that it’ll lead to nothing but high blood sugar and regret.

These thoughts cross my mind, but it’s fleeting. I make my way down the stairs, pausing to grab my bathrobe to keep me warm (the sweating will stop soon and it will be replaced by nonstop chills). Hey, at least I have enough logic at this moment in time to remember the BATHROBE of all things!!!

I turn the light on in the kitchen, blinking rapidly to clear the sleep from my eyes. And then I raid the cabinets.

Fistfuls of Smart Food popcorn are devoured one minute, and in the next, I’m swallowing spoonfuls of crunchy peanut butter (my dear, delicious vice). I take a pinch of Parmesan from the fridge and a tiny tower of Toasteds crackers to complete my smorgasbord. I wash it all down with sparkling water and remove myself from the kitchen before I can do any more damage.

I don’t know what’s more sad – the fact that I gave in to these carnal hunger pangs even though I knew my blood sugar would be fine after having the raisins, or that my snacking was absurdly out of control for 1:30 in the morning. Truly, the knowledge that I must’ve consumed close to 400 calories – roughly how much I eat at lunchtime each day – was disgusting to me.

I could blame it on my lack of self-control. I could blame it on the early morning hours and my sleepy state. I could blame it on the peanut butter for being so addicting.

But instead of beating myself up for a snack attack in the witching hours, I’ll just accept it happened and blame it on the hypoglycemia for striking me when I was vulnerable. It happened, it’s over, it’s time to move on and try harder next time.

 

Dexcom Drama: Waiting for a New CGM

mollyt1dLeave a comment

It all started when I realized my Dexcom CGM wasn’t holding a charge. It went from needing a charge twice a week to practically every day. I knew this wasn’t right, so during the first week of July, I found myself reaching out to Dexcom support to see how I could go about getting it replaced.

Three months later, I finally have my new Dexcom G5 CGM.

Of course, it shouldn’t have taken most of July, all of August, and part of September for me to get my new CGM. But it did, and resulted in my mother spending hours on the phone with Dexcom and our insurance provider on my behalf as well as countless communications exchanged between me and my endocrinologist’s office.

What was with the holdup? There were a few factors at play here, which is why I thought it was important to share this ordeal with you all. That way, if you or a loved one encounter an issue like this in the future, maybe you can learn from my mistakes and get your CGM sooner rather than later.

IMG_4162
At last, my new (pink!) Dexcom has arrived.

Factor #1: The CGM was out of warranty. Normally, I would’ve had it replaced much faster if my Dexcom drama happened within one year of initially receiving the device. But I’d been using the same receiver (the handheld component of the CGM that displays blood sugars in real time) for like…four years. That was issue number one because Dexcom can’t do anything about products that have an expired warranty. Now, I know to get in touch with them every year to get a new receiver and to ensure that I’ll always have one that can be replaced.

Factor #2: My medical supply providers have changed recently. This one’s a bit out of my control, but a couple years ago, Neighborhood Diabetes was divested and sold to Liberty Medical. This meant I wouldn’t receive my sensors or any other CGM supplies from Neighborhood, like I had for a few years. So from then until now, I was getting my sensors from Express Scripts, which also ships my insulin to my home. But for other reasons, my mom and I discovered back in August that we would need to use Better Living Now to supply my Dexcom sensors. Getting confused yet? Yeah, this all went over my head, too. I’m extremely lucky that my mom helped me out and solved this confusing insurance situation.

Factor #3: Communication was poor. And I have to take some blame here, because I should’ve been checking the inbox that my endocrinologist’s office uses to communicate with me. I missed a couple of messages sent by a nurse at the office, and when I did finally see them, I was in a rush to reply and didn’t read his messages as thoroughly as I should have. This resulted in, I’m sure, frustration on both ends as we tried to explain what was going on to one another. There’s a reason why people say that communication is key, and I bet we would’ve had answers a little sooner if we had been on top of things.

That’s the story, in a nutshell and without getting too much into the insurance side of things. I’m just relieved that I finally have my new CGM, and it works great. It’s pretty cool to see my blood sugars displayed on my iPhone, too, using the Dexcom app. And I’m pretty grateful that I have an awesome mother who really came through for me, as well as an endocrinology team that was willing to bear with me through all this Dexcom drama.