T1D and Emotional Support: The Best Support Comes from my Online Community

Yesterday, I admitted something via Twitter:


Without going into a ton of detail, I’ve had higher-than-normal blood sugars in the past week or two. Nothing super alarming, but enough for me to notice and feel discouraged about this new pattern. And enough for me to feel that I needed to tell someone about it.

But why post this on Twitter, and not tell my family or my friends? I chose Twitter as my outlet because my network there is composed primarily of people with diabetes. They’re the ones who completely understand where I’m coming from. That’s not to discount my family and friends – they know me and my diabetes well, and I know that I could reach out to any one of them whenever I need to – but truthfully, sometimes it’s easier to talk to people who know exactly what I’m experiencing. I don’t have to explain myself as much, and it’s understood immediately that my feelings are valid and warranted. And just the acknowledgment, the “hey, I’ve been there, too” or the “I know what that’s like”, is all I really need.

I was blown away by the responses I received on Twitter. Many people took the time to reply to me, and I continued to receive tweets for hours throughout the day. Each message encouraged me and motivated me, and some even applauded me for admitting my troubles to my Twitter network. I also received a couple of really great GIFs; in particular, the beaming cactus put a big old grin on my face.

So thank you, DOC, for being there for me when I needed to be lifted up. I’ll keep you all updated as I try to figure out what’s going on, but for now, thank you for reinvigorating me and for caring. No words can truly express my gratitude, but damn, this community is incredible.

I’m reminding myself, and you, that I’ve got this – and you do, too.


3 thoughts on “T1D and Emotional Support: The Best Support Comes from my Online Community

  1. It does feel nice to hear from someone who actually knows what you are going through. Most of my friends have known for decades that I’m diabetic yet only a few actually are and out of them 2 are type 1. Small world. You hear in management classes you should give at least 10 positives for every negative comment. Sadly that is not the case. It happens the same in diabetic care as well. I rarely hear you are doing that good or your getting better at this. Most comments are like you need the this instead to get those numbers down. You need quit doing that as it affects your blood sugars. I understand I make mistakes. I’ve never met a perfect person in any form. A while ago I got into a heated twitter argument with a guy who said I was over dosing myself with insulin, it is why I was going low so much. We then preceded to get into it over CGMs being better indicators of blood sugars than A1C testing. Not going to get into the detail except that neither one actually tests blood sugar, just related issues. I was highly upset over the overdosing comment. It made it sound like I was intentionally injecting extra insulin. There are many reasons for the lows and non are the same cause. The language matters hashtag popped into my mind with his comment. Maybe I have done something similar but never on purpose. Support like that I can really do without.


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