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Why I’m Thankful I DIDN’T Attend Diabetes Camp as a Kid

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Growing up, the notion of diabetes camp was gently nudged into my brain each Spring. My endocrinologist and my parents would ask me, “Do you want to give it a try this year?” and my annual response, unfailingly, was “NO!”

To this day, I still don’t really know why I was so against diabetes camp. Part of the reason may be because I was a bit of a nervous Nelly growing up (okay, okay, I still am) and didn’t like the thought of sleepaway camp: It meant being away from home for an extended period of time, which made me feel nothing but anxious.

But my best guess as to why I didn’t want to go is that I felt that camp wouldn’t benefit me in any way. Both my mom and my aunt have type one diabetes, so they were (and still are) my go-to sources whenever any sort of diabetes issue crops up for me. I didn’t see how meeting kids my own age with diabetes would help me; after all, I thought I had everything I needed in my mom and aunt.

Things changed drastically for me when I started college and made the transition to caring for my diabetes independently. I got wind of a diabetes student organization on my campus and was interested in attending a meeting. That was it for me: for the next three years, I was very involved with this organization (the College Diabetes Network), eventually becoming the President of my school’s chapter and continuing to this day to volunteer for them whenever I can.

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I wasn’t ready for any kind of diabetes camp as a kid…but it’s a different story now that I’m an adult.

My involvement with the CDN has resulted in me meeting countless other T1Ds my own age, and it’s been amazing. I love sharing stories and learning from them. And as it turns out, most of these individuals went to diabetes camp when they were young and loved it. In many cases, diabetes camp is where they thrived and met some of their closest friends. They learned a lot about caring for their own diabetes and became more independent with diabetes management at a younger age.

But even after hearing the rave reviews about diabetes camp…I’m still thankful that I didn’t go to it when I was a kid.

Why? Because I think that a person’s journey with their own diabetes is highly personal. Like insulin-to-carb ratios or multiple daily injections versus insulin pumps, diabetes is often a disease about choices and responsibility. As an individual with diabetes, I hate being told how to handle my condition by someone who thinks they understand it better than me. I’m the one person in this world who understands MY diabetes better than anyone else. I know my body and I know what diabetes treatments and decisions are best. And for those few years of my life, I thought it was best for me to not go to camp. It was out of my comfort zone, and I refused to be coerced into going.

Perhaps in the back of my mind, I knew I’d have an opportunity later in life to connect with people my age who have diabetes. And I’m so thankful that I did because it came at a time in which I felt ready and was more accepting of my diabetes overall.

So there are no regrets for me when it comes to my choice to not attend diabetes camp. You could say that my decision to stay at home during those summers made me a happy camper…

Sorry, not sorry for the bad pun.

 

Training for my First 5K

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At the start of the year, I told myself, this is your year. You’re going to be in the best shape of your life and finally run a 5K. I’ve never particularly enjoyed running, which is why the challenge of a 5K was more alluring than a different fitness goal. I felt that doing something I practically dreaded would make accomplishing it that much more gratifying.

But just a few short weeks into 2018, I broke a bone in my arm. I was crushed, because the kinds of physical activity I could do suddenly became severely limited. Instead of taking the injury in stride, I spent a long length of time moping over it. My exercise levels decreased and I stopped caring (for a short while, anyways) about my lean and mean pursuits. All I wanted was to heal, and heal swiftly.

Fortunately, I’ve fully recovered from the fracture, and so have my spirits. A renewed vigor took hold of me in April, and I spent many weekday mornings waking up early to complete a variety of workouts. I started to feel stronger and more confident in my athletic ability. So in the second week of May, just a few days after my 25th birthday, I decided the time was right to register for my first 5K.

And so I did, and I’ve devoted time training for it since then. It’s far from easy, but I must admit that each time I successfully complete a run, the feeling of accomplishment and pride that courses through my body makes it all worth it. It’s doubly wonderfully when I’m able to achieve in-range blood sugars before, during, and after each run.

An example of my blood sugar during a run…
…and some of the metrics from the same run.

I don’t have a convoluted strategy for stabilizing my blood sugar while running; rather, it seems to work best for me if I simply complete a fasting workout first thing in the morning. This eliminates a few variables affecting my blood sugar, including carbs consumed during a meal or insulin on board. I’ve found that I don’t even need to run a temporary basal or suspend any insulin – my body seems to do well if I’m running my normal basal rate. But with diabetes being a fickle fiend, I’m always prepared for a potential high or low blood sugar to occur on a run. In other words, portable glucose and my PDM are my constant running companions.

Race day is just a few short weeks away, and I can honestly say that I’m looking forward to it. Sure, I’m a little anxious, but I’m choosing to focus on the fact that I’m finally taking on something that tests me – and my diabetes – in all the right ways. I should be proud of that alone, but I must say, I’ll be over the moon when I get to cross that finish line.

Favorite Things Friday: Lauren’s Hope Medical IDs

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One Friday per month, I’ll write about my favorite diabetes products. These items make the cut because they’re functional, fashionable, or fun – but usually, all three at once!

I’d been meaning to replace my medical ID for ages.

It was in rough shape. The medical snake symbol (a quick search on Google told me that the technical term for it is “Caduceus”) was scarcely recognizable, for the red paint that once made it stand out had peeled off a few years ago. The etching on the charm was nearly illegible due to age, and the bracelet itself was a Frankenstein creation: The original clasp it came with broke last year, so I had to transplant a mismatched clasp from an old bracelet onto it to be able to continue to wear it. All things considered…it’d seen better days.

Fortunately, I knew exactly where I should look for a new one: the Lauren’s Hope website. I’d heard about Lauren’s Hope a few years ago at a diabetes conference, and made a mental note to check it out some point down the road. Fast forward to the present and I’ve finally had a chance to shop on the site.

I was very pleasantly surprised to discover that there was a wide variety of medical IDs available. There were bracelets, charms, tags, and necklaces that ranged in style from fancy to simple. The choices were so varied that I decided to cut to the chase and check out bracelets only, since I knew that was the kind of ID I wanted.

 

But there was still quite a selection under that subcategory: I could choose from different metal tones, bracelet styles (cuff, stretch, woven, wrap, beaded, etc.), material types, and colors. Rather than go with something loud and flashy, I decided to stick with a basic silver link bracelet that came with an ID tag that allowed up to six lines of text to be engraved on it. I was thrilled that the space on the tag permitted so much information – I was even able to put a line on it about where I keep my glucose tablets stored.

And the part that’s really cool? The fact that the ID tag is interchangeable. This means I can go back to Lauren’s Hope whenever I want, order a new bracelet, and swap the tag from the old bracelet to the new one. It’s really refreshing to see a company understand the wants and needs of its customers so well; obviously, Lauren’s Hope gets that customization and options are important to people with medical conditions.

I’m loving my shiny, high-quality bracelet from Lauren’s Hope. It feels good to finally wear a piece of medical equipment (yes, I consider it medically necessary) that is both stylish and practical.

Mom Appreciation Post

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I know Mother’s Day was yesterday, but mothers deserve more than a Hallmark-card holiday in order to be adequately recognized. (They also deserve more than just this blog post; however, I can only express my admiration for moms using my words.) Let me explain my appreciation for moms.

All of the mothers I know, especially my own mom, work tirelessly to support their families in multiple ways. This is especially true of mothers of children with diabetes. They spend so much time counting carbs, losing hours of sleep, injecting insulin, attending doctors’ appointments, and dealing with difficult diabetes emotions all on top of normal mom duties. And many of the diabetes moms I know work(ed) full-time jobs, to boot!

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My mom is so wonderful that Chewbacca (yes, the famous Wookiee) embraced her admiringly within the first few seconds of being in her presence.

I think my mom is particularly amazing because she did all of the above, all while managing her own diabetes, too. Now that I’m an adult, I can’t help but marvel over how she did it all with such capability, humor, and unconditional love. I’m blessed to have an incredible mom who taught me what it means to be a dia-badass.

I love you, Mom!!!

 

The CGM Experiment: Comparing the Dexcom G5 to the G6

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I have the extremely good fortune of being one of the first people in the world to receive the Dexcom G6, the latest in continuous glucose monitoring (CGM) technology. After spending almost two years eagerly anticipating its FDA approval, I could scarcely believe that I finally had it in my hands when it first arrived a few weeks ago.

I am partway through my second-ever G6 sensor, so I’ve had enough time to come up with some initial opinions on the system as a whole compared to the G5.

Let’s start with what I knew going into the first insertion of the G6. I knew that the transmitter would have a sleeker profile than the G5. I also was aware that the insertion process would be much more streamlined – all I would need to do is push a button and it would be on my body.  Plus, the G6 required 0 finger sticks or calibrations, could be worn for 10 consecutive days, and would no longer block acetaminophen (Tylenol) like its predecessors did. So far, me and the G6 were off to a solid start.

Then, it came time for me to actually put it on. Rather then end my current session with my G5, I decided to leave it on so I could see how accurate it was compared to the G6.

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I was amazed by how easy it was to insert the G6. All I had to do was input a 4-digit code located on the sensor into my receiver. Once the code was accepted, I peeled the adhesive off the sensor, placed the system on my abdomen, folded the orange safety clip until it snapped off, and pushed the big orange button. I cringed when I did it for the first time; truthfully, I was prepared for it to hurt. It made a ka-shunk sound as the sensor inserted itself into my skin, and I…didn’t feel a thing. I marveled at how ridiculously comfortable it felt as I snapped the sleeker transmitter into place. I pressed one more button on my receiver to get the sensor warmed up, and that was it. Once two hours elapsed, my G6 system would be fully operational and could determine my blood sugar without requiring manual calibrations.

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While it felt great to know that I didn’t need to worry about calibrating my new device, I was more interested in seeing how well it matched up with my G5.

And I was a little let down…at least, I was in the beginning.

Initially, I was not impressed at all by the G6’s reports. They matched pretty damn closely with my G5. I was beginning to wonder whether the technology really was that excellent, and then my G6 proved to me that it was, indeed, kind of a big deal.

That moment came when it caught a low blood sugar sooner than my G5. I was feeling the early signs of a low, so it wasn’t much of a surprise when it alarmed. But what was particularly neat to me was that it was able to tell me that a serious low blood sugar (below 55 mg/dL) was oncoming in the next 20 minuets or less. In other words, it knew that I needed to treat my blood sugar right away to prevent a more urgent hypoglycemic event. That predictive feature was definitely a pleasant surprise.

As I wore my first G6 sensor for a few more days, it seemed to adjust better and better to my body. As evidenced in the above picture, it proved to be spot on when I compared it to the blood sugar readings I got from my meter. There’s absolutely still a bit of the classic CGM lag, as it takes about 15 minutes or so to catch up to what’s actually going on in the body, but that was to be expected.

I’m already on second sensor and I think it’s safe to say that I’m sold on the G6. But I don’t think that any product comparison/review is complete without a list of pros and cons, so here’s what I’ve come up with:

Pros of the G6 (compared to the G5)

  • Slimmer transmitter profile
  • 0 fingerstick calibrations (which I really loved when I didn’t have to wake up in the middle of the night to calibrate a sensor I inserted before bed)
  • Predictive low feature
  • Modern touchscreen receiver
  • Absolutely painless and foolproof application – honestly, it was THAT good that it might win me over from the G5 if that was the sole difference between the two

Cons of the G6 (compared to the G5)

  • Clunky applicator – as many other members of the DOC have noted, the system is comprised of a lot of plastic. Probably not very environmentally friendly. I wish it was possible to recycle it somehow
  • Automatic expiration after 10 days – with the G5, you could restart a sensor after a week had elapsed, and in theory, you could use the same single sensor more than once for a few weeks in a row. The G6 automatically shuts down after 10 days, so you’re forced to put on a new sensor. This medical device is already pretty expensive, and you could at least get your money’s worth with the G5
  • No super noticeable improvement in blood sugar reporting capabilities

The bottom line is that the G6 is unquestionably an upgrade in diabetes technology. It requires fewer blood sugar checks and allows for greater discretion with its smaller size. The G6 is far from perfect, but it’s still a valued component of my diabetes toolkit. I’m excited to continue on this journey with it and discover just how much it helps me take the best possible care of myself.

So THAT’S How Long and Sharp the Dexcom G5 Insertion Needle is…

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Oh, I cringe just looking at that.

This is a rare photo of the Dexcom G5 insertion needle. Yikes! I only captured it because somehow, my last sensor change with the G5 went awry and I wound up being unable to use this particular sensor. Before I threw it away, though, I played with it a bit to see if I could get a closer look at the needle that helps secure the sensor to my skin.

Obviously, the mission was accomplished. Even though I was slightly horrified by the needle’s pointy length, I was also relieved to know that it would be the last time it would puncture my skin. That’s because I knew my G6 was on its way and that one of the major improvements to it was making the whole process painless. Little did I know how true that would be until I put my first G6 sensor on…

In a couple days, I’ll *finally* publish a post that reveals my initial thoughts on my brand-new Dexcom G6. I’ll compare it to my experience with the G5 and share whether I think the G6 is worthy of all the hype it’s received.

 

What It’s Like to Wear a Medical Device 24/7

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A question I’m often asked is: “Can you feel your CGM or insulin pump on your body?”

The simple answer to that is: usually, no. It’s something that you just get used to. You grow accustomed to seeing a lump underneath your clothing. You adjust to putting clothes on (and taking them off) carefully to avoid accidentally ripping a site out. You acclimate to showering without being completely naked.

And, of course, you get used to the questions from strangers asking about that device stuck to you.

But the more honest answer to that question would be that there are times that I feel it more than others. For example, sometimes I forget where I’m wearing my pump until I hit it against something (I’m a major klutz who constantly runs into doorways and trip over things, almost always managing to catch my pod on whatever it is), resulting in pain at the site and a curse word or two to fly out of my mouth.

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My OmniPod (on my arm) and my Dexcom (on my stomach) are stuck on me 24/7.

I feel it the most, though, when people stare. Whether unconsciously or purposely, people do ogle at it in very not subtle manners. Which makes me feel extremely uncomfortable. It’s worse when they don’t even ask me what it is – I’d rather have a chance to use it as a teaching moment than to have someone walk away not knowing what the device does. This tends to make swimsuit season a little less welcome for me. Nothing will stop me from donning a bathing suit at the beach or by the pool, and I do so as much as possible in the summertime. But it’s just not as fun when I’ve got to cope with lingering looks, especially when I’m an admittedly insecure person in the first place.

So it’s a more complex question to answer than you might realize. Wearing a medical device 24/7 is humbling. It keeps me alive. I’m privileged to have access to it. I’m grateful for the ways it’s improved my life. I’m always wearing it, but it’s not at the forefront of my mind – unless it chooses to make its presence known by alarming, or I’ve got people blatantly checking it out. It’s kind of like diabetes itself. It can make you feel a gamut of emotions, but no matter what, it’s always there. It’s just a part of me, and I can deal with that.

A Good Diabetes Day

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I’ve blogged plenty of times about my “bad” diabetes days – you know, those posts that I talk about stubborn blood sugar that won’t come down/up, or how technology refuses to cooperate, or how I’m feeling intense diabetes burnout.

This made me wonder about the “good” days. Besides my blood sugars looking so perfect that I question whether my pancreas has magically started to produce insulin again, what sets those days apart from the “bad” (and plain, old, ordinary days)?

 

The answer likely varies among people with diabetes, but let me describe my version of a darn good diabetes day:

  • Going to an endocrinologist appointment first thing in the morning and discovering that your A1c has dropped nearly half a point, down to 6.7. YAAAAAAS!
  • Being told by said endocrinologist that you’re doing an amazing job, and passed all other blood work tests with flying colors – I was most thrilled with my HDL cholesterol (the good kind) levels, which have gone up due to my current exercise regimen. And she said I lost a couple pounds, to boot!
  • Coming home from work to a package from Dexcom containing the brand new G6 receiver, transmitter, and sensors. I can’t remember the last time I was so excited about a delivery!
  • Topping it all off, my blood sugars throughout the day weren’t too shabby.
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Dancing excitedly with my new Dexcom G6! My puppy couldn’t understand what the hullabaloo was all about.

It’s days like that that make me feel validated – like all my hard work is worth it. It isn’t easy to manage diabetes every moment of every day, so when the diabetes stars align like this, it feels…wonderful.

Banana, No Bolus

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I ate a banana the other day without needing to correct for it. My blood sugar prior to eating it was 96 mg/dL. I sensed and oncoming low, and trusting this instinct, I decided to skip bolusing (taking insulin) for it. Two hours later, I was 108 mg/dL.

How did I do it?

Did my pancreas suddenly start working again?

Was it a low-carb banana?

Was sorcery involved?

I’ll explain how it happened; no, my pancreas didn’t suddenly decide to start secreting insulin; no, because low-carb bananas aren’t even a thing; and sadly, no, though I do wish I was well-versed in real-life wizardry and/or witchcraft.

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It happened because I was running around like a maniac that entire morning. High activity levels can do a number – that is, lower the numbers – on a diabetic’s blood sugar. Between walking my dog, playing with him some more outside, and running errands, I scarcely had a chance to catch my breath from the time I woke up until noon. It was still mildly surprising, though, since bananas are a notoriously high-carb and fast-acting food. I’d expected to be at least 50 points higher from the initial blood sugar.

I was pleased with this outcome, but I still think that the voodoo magic – ahem, science – behind diabetes is just plain weird sometimes.

 

Money Talks, Low Blood Sugar Slurs

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Somewhere between Class A, B, and C share mutual funds, I got lost. That familiar fog clouded my brain and I had trouble focusing my gaze on anything, let alone absorbing any of the information being shared with me. I felt like I must’ve nodded my head so many times over the course of the conversations that I probably resembled a bobble-head. Words tumbled slowly, awkwardly, out of my mouth: I babbled “yup” and “right” over and over again to show that I was still engaged, even though I absolutely wasn’t.

What was wrong with me? I was having a low blood sugar in the middle of my (first-ever) meeting with a financial advisor. Stellar!!!

Obviously, I made it through the meeting fine. I got back to my car, tested my blood sugar, discovered that I was 66, and corrected it with three glucose tablets. I wiped my hands together, watching glucose dust puff up into the air like a cloud, and chided myself for not taking action sooner than that moment. I suppose I didn’t want to alarm the advisor by sticking a needle into my finger in the the middle of our meeting, but that hasn’t stopped me from doing what I must do, medically speaking, in other situations. Ordinarily, I would have calmly explained, “I have type one diabetes. I think I’m experiencing a low blood sugar right now. Do you mind if I check my blood sugar here, or could you please direct me to a place where I can do that?” I would also let the person know that I’d be fine either way, I just wanted to be sure so I could focus my energy back onto them and not my diabetes.
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I’m not really sure what was different about this particular low blood sugar event, but I didn’t do the “right” thing because I didn’t want to be rude and interrupt the advisor’s train of thought. But waiting nearly thirty minutes into experiencing these symptoms could have caused things to turn out much differently. My blood sugar could have gone even lower, and it could have become an embarrassing or scary situation for both of us.

I guess this’ll serve as a reminder to myself to speak up. It’s okay to interrupt, because my health and safety (and potentially the health and safety of another person) is at risk. It’s not rude, it’s good common sense.