The Sounds of a Blood Sugar Check

What does a blood sugar check sound like, exactly? And why would I want to capture those sounds in words?

I was thinking about it the other day – the precise ritual that is a blood sugar check. It involves very distinct sounds from start to finish.

The ziiiiiiiiiip of opening up the meter case. The soft pop from flipping the cap off a vial of test strips. The pulling back of the lancing device to get it ready – click – and choosing a finger to draw blood from before pressing the button to prick it, a sound that’s a bit like a pow that ends in a dull thud.

301B8560-5345-4434-97C7-F0E99374A78B
These three things make very distinct sounds.

I’ve been in rooms filled with other T1Ds checking blood sugars all at the same time. It’s a chorus of the aforementioned sounds that are so recognizable to anyone with diabetes that they can’t be mistaken.

Sounds that punctuate our lives multiple times each day.

Sounds that help us make so many decisions – from mealtime boluses to deciding whether to have a snack before a workout or not.

Sounds that are a constant reminder of diabetes and its perpetual presence.

Sounds that will be there, always…until there’s a cure.

My New Favorite Low-Carb Recipe

The other night, I had two of my close girlfriends over for a couple hours of chatting and snacking. I’d thrown together a veggie tray for us to munch on and mentioned to my friends that I had tons of vegetables in the fridge that I wanted to try and use up in the next few days. They asked what I had, and I went through the list: tomatoes, snow peas, carrots, celery, peppers, and zucchini. At the mention of “zucchini”, one friend asked if I’d ever made zucchini pizza before.

My ears perked up. Zucchini pizza? I’d heard of making low-carb pizza using keto crust or even cauliflower crust, but not zucchini.

She told me how easy it was to make what she described as zucchini pizza bites: Cut up a zuke, top the slices with marinara sauce and cheese, and toss it in the oven. It was such a simple recipe that I decided to scour the Internet for ways to zest it up a bit.

That’s how I came across zucchini pizza boats, my new favorite way to consume pizza-esque food without all the guilt.

C856214C-24B7-4091-9775-B009E15BCF70
One half is shorter than the other…because I couldn’t resist tasting my creation before snapping a pic. Oops!

Here’s how I made ’em:

  1. Preheat oven to 425 degrees. Cover a baking sheet with tinfoil – this makes clean up easier.
  2. Cut zucchini in half, lengthwise. Pat the insides dry. Place both halves onto the baking sheet.
  3. Brush olive oil on each half. Sprinkle garlic salt on top.
  4. Spoon marinara sauce (or any kind of red pasta sauce) on top.
  5. Sprinkle any kind of shredded cheese you like on top (I used a Mexican blend), followed by Parmesan cheese.
  6. Add mini pepperonis on top. Bake in the oven for 12-15 minutes or until the cheese has melted nicely on top.

And that’s it! Incredibly quick, easy, tasty, and filling. I ate these with a small serving of roasted Brussels sprouts and chicken meatballs and I was super satisfied. The best part is that I barely bolused for this meal and wound up with a fairly straight CGM graph.

I’ll definitely be prepping zucchini pizza again in the future, and maybe I’ll even add a few more carbs into the mix to see how my blood sugar fares.

Feeling Pretty with Diabetes

Diabetes can be an ugly disease.

It’s defined by finger pricks, drops of blood, infusion site bruises. Diabetes rarely leaves beautiful markings behind on the body; rather, it can make me feel unsightly.

Needless to say, diabetes occasionally makes me feel worse about my body. I try to project body confidence when around others, but on the inside, I’m terribly self-conscious about the way I look.

So that’s why it was wonderful to feel pretty with diabetes this past weekend.

11CE0F9A-770B-479A-B621-225020B8512B
Unicorns on my patch and in the background. Because you can’t be surrounded by too many unicorns. If only someone would tell that to my blood sugar…

I got all dressed up to go to a “punk prom” that my friend helped organize. The night was all about singing along to the angst-filled tunes of our youth, listening to local bands jam out onstage, and getting glamorous so we could pose for an endless number of photos with fellow attendees.

In the hours leading up to the event, I was a bit anxious about wearing my insulin pump and CGM in visible spots. They didn’t exactly match the dress I’d dug out from the bowels of my closet (and that I’d last worn in the 9th grade). But as I applied hairspray to my carefully coiffed curls, it hit me that I should just own the look. Sure, nothing about boring medical adhesive or the words “Dexcom G6” screams formal wear, but I had a couple tricks up my sleeve that could doll up my gear nicely.

Namely, I had Patch Peelz. Created by the folks over at Pump Peelz, this patterned tape could make my CGM look fancy. Between the unicorn print and the dark purple and blue color scheme, the patch would look like it was styled to match my dress. I couldn’t help but beam once I was 100% ready for the evening. Coordinated aesthetics aside, I felt like one of the unicorns on my patch: magical, vivacious, and yes, pretty.

T1D and Cosmetics: My Thoughts on Jeffree Star’s “Blood Sugar” Palette

One of my many interests is makeup: shopping for it, applying it, experimenting with it. I love that it helps enhance certain features of my face, and nothing makes me happy quite like a glittery eye shadow palette or a fresh tube of bright lipstick.

A dear friend of mine shares this slight obsession with all things related to cosmetics/skincare/beauty products. Often, she’ll text me when she scores a good deal on a high-end product, and I’ll message her with details on my new favorite facial mask, and we’ll bask in our delight together.

So I wasn’t too surprised when I got a text from her a few weeks back that showed a picture of a new eye shadow palette she discovered online. She captioned the photo: “If this palette isn’t on your radar it needs to be. Just for the title.”

Here’s the palette she was talking about:

61f2a931-4142-4b80-950d-b7fd79d0f75b.pngdef9fa2c-a465-4bb3-b66d-f04c9f03071d.png

 

 

 

 

 

 

 

 

 

Nope, your eyes aren’t playing tricks on you: This palette is called “blood sugar”. My first reaction was OMG I NEED TO BUY IT. I was curious to see if it was created with T1D in mind, so I did a little more research on it.

Jeffree Star, a well-known makeup maven and cosmetic creator, is behind this particular palette. According to a video posted on his YouTube channel, and in Star’s own words, the palette got its shape and its name because:

I was very inspired by like doctor medical boxes. I’m very into the medical field in general. I love reading books and watching documentaries on Netflix. I am just very into that whole thing…”

So right away, I understood that this palette was NOT created with diabetes in mind. But I wonder whether it would’ve behooved Star to have done a little more research before naming some of the shadows in the palette…

I don’t take issue with “glucose”, “blood sugar”, “prick”, or “ouch” being the names of a few of the shades; however, I don’t think it was particularly wise to use “coma” as a shadow name. Yes, coma! In this context, it could be misconstrued, for sure.

As I watched his palette reveal video, I kept waiting for Star to offer up some sort of legitimate medical knowledge that might explain his reasoning for naming the colors comprising the kit. But no such luck. I couldn’t help but scoff by the time he reached the color he dubbed “coma” – he talked about how he wanted the stamp in the eye shadow pan to be the “medical symbol” (which is more formally known as the caduceus). The fact that he so easily (and seemingly carelessly) glamorized a coma AND the symbol that graces most medical IDs by naming a rich maroon-hued eye shadow after both…is something that just leaves me scratching my head.

Now I’m not someone who is necessarily “politically correct” at all times, and I don’t think I’m being oversensitive by having a negative reaction to this beauty product. Needless to say, I didn’t end up purchasing the palette, because I don’t want to support something that I find somewhat insulting and ignorant.

Jeffree Star is obviously extraordinarily talented and makes beautiful cosmetics, but I think he should consider a different approach the next time he gleans inspiration from something (such as the medical field) that he isn’t well-versed in.

Memory Monday: The First Time I Met an Endocrinologist that I Didn’t Like

One Monday per month, I’ll take a trip down memory lane and reflect on how much my diabetes thoughts, feelings, and experiences have unfolded over the years. Today, I remember…

…the first time I met a diabetes doctor (endocrinologist, or endo for short) who I didn’t like. At all.

I knew right off the bat that we would be a bad fit, because he started the appointment by sharing his own blood sugar with me (as he was also a T1D). “Oh, I’m 136 right now…that’s a bit high, so I’m going to take insulin for it.” He reached for his insulin pump and I stared at him, nonplussed. Since when was 136 a “high” blood sugar? Why was he sharing this with me? If his own target blood sugar range is so narrow, then what the hell is he going to think of me when he reviews my own data?

C0E4AC20-C524-432B-8F8C-8161C2F776CD
The face I make when I think about that awful appointment and the negative thoughts it gave me about my A1c.

The appointment only went downhill from there. At this point in my life, I was a brand-new college freshman, and my diabetes was simply no concern of mine. So my blood sugars and A1c weren’t great.

And I got scolded for it.

Throughout the entire appointment, I felt judged. I held back tears at points because I felt that I had to explain myself to this guy, that I had to somehow get him to understand that the transition to college hadn’t been easy on me, and that’s why my A1c was high. But I couldn’t get the words out. Instead, I sat there, numb, as he lectured me on what I should and shouldn’t be doing to take care of my diabetes. He kept insisting that I go onto a pump, which at that time, was totally scary to me – a non-option. He was so adamant that I got frustrated and shut down towards the end of the appointment, nodding and smiling tightly at his words.

I’m certain that I cried on the way home from that appointment out of frustration over how it went. I didn’t feel motivated to take better care of myself; instead, I felt rotten. I realized that just because someone is a doctor, it doesn’t mean that they necessarily know how to convey messages about health to patients. In other words, not everyone has an appropriate bedside manner.

Fortunately, that was the first and last time I saw that doctor. He moved to a different practice weeks after I saw him. My next endo appointment was with my current doctor, and seven years later, it’s one of the healthiest doctor/patient relationships I’ve ever experienced. When I look at it that way, it was worth experiencing the worst in order to get the best.

Why I Decided to do a 3-Day Cleanse (and How it Impacted my Blood Sugars)

No carbs. No dairy. No meat. No processed foods. Strictly vegetables, fruits, and shakes for the next three days. 72 hours – I could do it, right?

Last week, I completed a 3-Day Cleanse. My goal was that it would help me feel a little bit refreshed after a couple weeks of nonstop gluttony. I figured it’d help reset my system and make me feel less bloated and tired. I didn’t want to do a typical “cleanse” though, the kind that forces you to stop eating any and all food and stick with juices. That’s why I did this particular program – I would be eating real foods on a regular basis throughout all three days. The bonus was that it would be foods I’m familiar with and are generally low carb, which could only mean good things for my blood sugar.

My routine for all three days would follow this format: Wake up, drink a glass of water, blend a shake together with one serving size of fruit. I’d have a cup of herbal tea one hour after breakfast, and one hour after that, I’d have a fiber-filled drink. Lunch would consist of another shake, one serving of vegetables, one serving of fruit, and one spoonful of hummus. I’d have an afternoon snack of baby carrots and one spoonful of almond butter with another cup of herbal tea an hour after consuming the snack. Dinner would be one last shake, one cup of vegetable broth, and a spinach salad with olive oil and lemon juice drizzled on top. I could have a final cup of herbal tea any time in the evening.

5A4A1ADE-4D94-4BDE-BA41-FA1453340655

I didn’t expect to learn as much as I did throughout the program, but those three days taught me a lot about how the things I put into my body impact not just my blood sugar, but my state of mind. Here’s what happened during my cleanse:

  • Day 1 – This day was by far the easiest to complete. Despite dialing back the amounts and types of foods I was consuming, I didn’t feel hungry at all – everything sated me. I was really enjoying watching my Dexcom CGM graph because it barely budged. I stayed right around 90-110 mg/dL for most of the day, probably because I was eating minimal carbs. Fewer carbs means less room for error, and this concept was definitely cemented into my mind by the end of the cleanse. I went to bed with a slight headache at the end of day 1, but a smile on my face. This would be a breeze!
  • Day 2 – My CGM sensor went kaput by mid-morning, and I was PISSED about it. I wanted the ability to continue tracking my blood sugars on this cleanse, and suddenly it was no longer available to me (because oh-so-conveniently, it was my last sensor in stock). Fuming over my CGM situation, I started feeling slight pangs of hunger shortly after having my fiber drink. I ate lunch as soon as I could after that, and spent much of the rest of the afternoon fighting a headache and dreading going home to see – not eat – my mom’s delicious home cooking. On the brighter side of things, my digestion seemed to be improving already and I felt a bit less bloated.
  • Day 3 – I went from “Oh, this cleanse will be a breeze!” to “OMG THESE ARE THE LONGEST THREE DAYS OF MY LIFE GIMME REAL FOOD AGAIN BEFORE I HAVE A MELTDOWN” in less than 48 hours. That’s gotta be a new record. I distracted myself as much as I could from my misery by burying myself in my work, which helped to a degree. But I couldn’t fight the lightheaded sensation that seemed to grip my entire body. I was confused by that – I though only eating real, plant-based foods would eliminate crummy feelings. Maybe I was experiencing a sort of withdrawal as my body got used to this new diet? I can’t confirm that, but I suspect that after a few more days, I likely would’ve felt much better…or hungrier. I’ll leave it to speculation because there is no way I’m doing this again any time soon. But MAN, am I proud of myself for completing the cleanse without cheating, not even once.

So if I felt THAT miserable toward the end of the cleanse, then why am I glad that I did it? Mainly, I’m astonished at how much easier it was to maintain my diabetes and “desirable” blood sugar levels in that three-day time period. Even without my CGM, I was still getting great results. It reinforced something that I already knew: that the body will react accordingly to the quantity and quality of foods that are used to nourish it. It made me realize that perhaps I should toy with cutting down my daily carb intake and upping my veggie/fruit/protein consumption to find out whether that positively impacts my blood sugar in the way that I think it will. This doesn’t mean I’m starting a low-carb or keto diet; rather, I’m simply going to follow a more thoughtful one.

To sum it up, this three-day cleanse/torture act/lesson (whatever you want to call it) helped make my understanding and appreciation of food much stronger, which makes it worth it in my book.

 

5 Ways that Hot Weather Affects Diabetes

The summer heat seems to be here to stay in Massachusetts. We’ve experienced several weeks of soupy, high-heat weather that *almost* makes me long for cooler, autumnal days…but not quite, because that just means winter (and snow – blech) is right around the corner.

Truly, I do enjoy the summertime. To me, summer is about trips to the beach, ice cream consumption (and lots of it), barbecues with family and friends, long walks in the neighborhood, and endless outdoor adventures. Aside from all of those lovely things, summer also means that it’s time to be a little more diligent when it comes to my diabetes. That’s because hot weather can play some cruel tricks on a T1D’s body. What do I mean by that? Here’s five ways diabetes can be affected by hot weather.

  1. Dehydration can lead to high blood sugar. Everyone knows that it’s important to stay hydrated when it’s hot out, but it might be less common knowledge that dehydration can directly affect blood sugar. There’s a scientific explanation for this: If not properly hydrated, the body sees an increase in blood glucose concentration because blood won’t flow as easily to the kidneys, making it difficult for the kidneys to get rid of excess glucose in urine. The best way to prevent this, naturally, is to drink plenty of water and monitor blood sugars.
  2. Sunburn can drive up blood sugars. I’m very familiar with how a sunburn can result in higher blood sugars; in fact, just last week I was dealing with a particularly gnarly sunburn on my thighs and belly that not only made my numbers higher, but also really hurt. My skin was literally damaged, so the stress from the injury lead to retaliation from my blood sugar. Luckily, it only lasted about 48 hours, but those couple of days were challenging as I dealt with sticky highs that were practically resistant to insulin. And for the record, I DID apply sunscreen – numerous times – when I was at the beach. Next time, I’ll seek shade under the umbrella.
  3. Sweat can make it difficult for devices to stick. I don’t know a single medical device that’s immune to prolonged exposure to moisture/water, but that doesn’t prevent me from spending as much time as I can outdoors/at the beach/by the pool in the summer. Thank goodness for Skin-Tac wipes and medical adhesive tapes that help preserve my precious pods and sensors!

    86499DC7-6F88-4A2F-AE0B-57E4F27B91E7
    “Sun-kissed skin so hot/We’ll melt your popsicle…and your insulin” – Katy Perry (with some help from Molly Johannes)
  4. Insulin can overheat. There’s a reason why insulin vials come packaged in cartons with directions that specify what temperature insulin should stay at in order for it to be safe to use. Insulin can spoil easily when it reaches a certain temperature, so it’s important to store it in a cool place when the weather’s warm. I alternate between a mini portable cooler (that can hold 3 vials of insulin) and a pouch from FRIO – both do an excellent job at keeping my insulin cool.
  5. Low blood sugars can occur more frequently. Summertime is prime time for outdoor activities that result in higher energy expenditure. So it’s no wonder that blood sugar tends to plummet in hot weather. Looking at it on the bright side, it’s an excuse to eat even more ice cream – but it also means that monitoring how I feel and checking blood sugars often is that much more important.

Regardless of the diabetes challenges it may cause, I love summer weather, and I know I’ll miss it the moment the first snowflake falls this year.

Why Word Choice Matters to a Person with Diabetes

Read the following five sentences. Can you tell what’s wrong with them?

  1. She’s a diabetic.
  2. He’s testing his blood sugar right now.
  3. Her diabetes is out of control!
  4. Isn’t that a really bad blood sugar?
  5. He suffers from diabetes.

Have you figured it out?

The language in those five sentences is extremely negative. “Bad,” “out of control,” and “suffers” are obviously gloomy and cynical words to use when referring to diabetes – you don’t need to be a wordsmith make that connection immediately. But what’s wrong with “diabetic” or “testing”? It’s the connotations around those words. Calling someone with diabetes a “diabetic” is labeling them with the disease and removing the actual person from the equation. Saying that a person with diabetes is “testing” their blood sugar makes it sound so…clinical. It also implies that the person could pass or fail the so-called test, adding pressure and guilt to the situation.

fba8e1c6-8607-43d5-9ad5-2b4fc3f24246.jpeg
Choose your words wisely.

In my real-world, full-time job, I’m an editor, so it gives me great pleasure to amend those above sentences into more positive, empowering language:

  1. She has diabetes.
  2. He’s checking his blood sugar right now.
  3. She’s having a tough time managing her diabetes.
  4. How do you handle high or low blood sugar?
  5. He lives with diabetes. (Or even better: He THRIVES with diabetes.)

Ah, much better. Never underestimate the power of words.

Reflections on my Recent Endo Appointment

Last week, I wrote about some anxiety that I was feeling the day before I was due to see my endocrinologist. Now that the appointment has come and gone, I feel like I understand the reasons why I was so nervous…

  • Reason #1: Some part of me must’ve known that my A1c has gone up over the course of the last three months – it rose half a point, much to my dismay. I confessed to my doctor that I’ve been a little careless, particularly in the last month or so, when it comes to carb counting and healthy eating. Luckily, she wasn’t critical of me, but I almost wish that she’d reprimanded me in some way. It would’ve been the talking-to that I felt I deserved.
  • Reason #2: My endo permanently switched locations: She’s now based at the medical center that I used to go to when I was seeing a pediatric endocrinologist. I hadn’t been back there in about eight years, and boy, it brought back some unexpected emotions. I must admit that I had to hold back tears as I walked into the building. I don’t know why all the feelings hit me so hard, but I suspect that it might have been because of the flood of memories that flowed through my mind. It also symbolized the journey I’ve been on in just the last eight years of life with diabetes, in which I:
    • Transitioned from injections to a pump.
    • Stopped using Lantus.
    • Started using a Dexcom.
    • Improved my A1c/overall health significantly.
    • Decided to become a more active member in the diabetes community.

Those are some major changes, and the magnitude of them practically knocks me               out as I think about the last 20 years I’ve had with diabetes.

321BFD12-49FF-4818-9804-EB280EAAE830
Just making some awkward faces while I wait for my doctor. Also, I love that the exam room has a full-length mirror in it: It’s perfect for taking pictures/killing time while I wait!
  • Reason #3: I was meeting all sorts of new people, which is very nerve-wracking to an introverted extrovert like myself. I was used to the receptionists and nurses at the old location. I got to know them and vice versa. It made going to appointments a little easier. At this new/old location, though, I don’t know a soul except for my doctor. A reassuring smile or light conversation would’ve placated me on this visit, but perhaps those things will come in time.

Anyways, now that I’ve had time to think about the emotional aspects of this appointment…I’m going to switch gears and start doing the things that I need to do and that I am capable of doing in order to get my A1c back to where I want it. I know that I’ll get there. As my appointment wrapped up, I looked my endocrinologist in the eyes and promised her that the next time she saw me, I’d be down more than half a point. And I intend to fulfill that promise.

 

Memory Monday: The First Time I Tried Sugar-Free Chocolate from Yummies

Memory Monday is following a slightly different format from here on out! One Monday per month, I’ll take a trip down memory lane and reflect on how much my diabetes thoughts, feelings, and experiences have unfolded over the years. Today, I remember…

…the first time that I tried sugar-free chocolate. Not just any sugar-free chocolate, though: It was from Yummies, a massive candy emporium in Southern Maine. The store is lined, floor to ceiling, with bags upon bags of candy. You can bulk buy your favorites to your heart’s content as well as discover weird, relatively unknown confectionery creations. If you have a sweet tooth, it’s basically a saccharine paradise.

When I was younger, I watched a lot of Phantom Gourmet – partly because it was always on the TV in my Grammy’s nursing home when we visited her each Saturday afternoon, and partly because I was a growing foodie who loved learning about local hot spot eateries. At around nine years old, an episode that featured Yummies aired on TV, and I discovered that they had an entire case devoted to sugar-free chocolates in their store. I knew I had to go check it out; fortunately, my parents were willing to take me there next time we trekked up to Maine.

31E33B9B-61EB-4AC9-9894-C1AAE220D4F9
Yummies, also known as candy lover’s paradise.

I’ll never forget the first time I walked into that store. My jaw dropped as I laid eyes on the 10,000 pounds of candy they had on display. As I wove through the rainbow-hued aisles, I could practically feel my blood sugar spiking. But I was on a mission to find the sugar-free section that looked so delectable on television that I could practically taste it.

I heard angels sing hallelujah when I laid eyes on the aforementioned case of chocolates. There were so many choices! And all of them were made in the store, guaranteeing higher quality! It was a T1D chocolate lover’s paradise: There were fudge meltaways, peanut butter cups, almond bark, coconut clusters, sea salt caramels, chocolate peanuts, malted milk balls, peppermint patties, and even more beyond that. I remember marveling at the variety for a solid five minutes before I was told by my father to hurry up and make my selections. I don’t remember exactly what I chose, but it definitely included the meltaways and peanut butter cups. Once they were paid for and I was back in the car with my chocolate treasures, I took my first bite and could scarcely believe it was sugar free candy – that’s how awesome it tasted.

Every summer since then, I’ve made an annual visit to Yummies to pick up my tasty sugar-free chocolates. It brings back memories of being a little kid stepping into that store for the first time, memories that are almost as sweet as the candy inside.