My #1 Piece of Advice for Any T1D Who Wants an Insulin Pump (or Wants to Switch Pumps)

As someone who was so stubbornly resistant to the idea of switching from multiple daily injections (MDIs) to insulin pump for my entire childhood with T1D, I surprised myself quite a bit when I finally decided, around age 21, that I was ready to start using a pump.

And I haven’t looked back since I made that choice – that’s how much of a difference it made for me.

In my almost 10 years of pumping, I’ve realized that there is one, major piece of advice that I’d share with anyone who is looking to make a similar switch, or even go from one pump to another. It doesn’t matter if that person is newly diagnosed, a diabetes veteran, or somewhere in between. Or if a person is a pro at adapting to new technology, or wary of any kind of electronic device… because in my humble opinion, this advice applies to all. So what is it?

Don’t do it alone.

When I started using an Omnipod back in 2015, it was with the help from a team that included my endocrinologist, a diabetes care and education specialist, and a more experienced Omnipod user who I actually lived with – my mother. It was the guidance that all three of these people gave me that ensured a fairly easy transition to pump therapy.

My experience was starkly different when I went on the Omnipod 5 late this past summer. In a word, I was too cocky about it. I thought I knew enough from my prior pod experience, and had enough exposure to all the literature that had come out about the Omnipod 5, that I could make this upgrade just as seamless as it was to start up pump therapy in general. And that was most definitely not the case. I struggled for the first 8-10 weeks of life with the Omnipod 5, and it was such a rollercoaster that I seriously questioned whether or not I’d made the right decision to try out a more advanced pump.

Of course, I don’t regret switching to the 5 – not at all – now. That’s because I did finally get help, first from the nurse practitioner at my endocrinology office, and then from an educator at Omnipod who was really able to explain the 5’s algorithm to me and suggest changes that ended up working wonderfully for me within days of our conversation. It just goes to show that it’s okay to reach out for help when I’m feeling stuck with my diabetes (or when I need it in any other facet of my life, to boot), and I’m here to remind you of that, as well. Don’t do it alone. Lean on your community. Get support from healthcare professionals. And you’ll be amazed by the outcome.

Advertisement

Battery Blues…No More?

Earlier this year, I wrote a post about my dissatisfaction with my Omnipod DASH PDM’s battery life. Basically, I was frustrated that the dang thing needed to be recharged practically every day. But what bothered me even more was how suddenly the battery life would seem to drop – it would dip from 100% charged to 40% in the matter of a few short hours, and worse, it would do this totally inconsistently so it was nearly impossible to predict when my PDM would need a sudden charge.

I thought my PDM problem would be solved when I got my new Omnipod 5 PDM; however, it persisted. And that’s what indicated to me that there was some type of user error going on that I needed to get to the bottom of before I resigned myself to having to charge my PDM everyday.

So I called customer support and told them about what I was experiencing, and explained that on paper, I was doing all the right things to preserve battery life: using the dedicated charger, using minimal screen brightness, hitting the power button to shut off the screen when it wasn’t in use…I wanted to know, could they offer me any battery-saving tips?

Little did I know that a simple solution to my battery blues was just one phone call away!

That’s when I was informed that disconnecting my PDM from Wi-Fi would be a good starting place; after all, the Wi-Fi connection only comes in handy when uploading my data via Glooko. I was amazed, but the moment the customer support rep said this, it made total sense. This whole time, I’d been connected to my home’s Wi-Fi for essentially no reason because it has nothing to do with how my insulin is delivered (the system uses Bluetooth for all communications). I only ever entered my Wi-Fi information in the PDM because silly me thought it was needed for effective operation, but nope, turns out the only thing it’s good for (besides uploading data, of course) is sucking the life out of my PDM battery.

As soon as I ended the call with customer support, I turned off my PDM’s Wi-Fi settings and charged it to 100%. Nearly 24 hours later, it’s sitting pretty at 80%, a much better battery life than it was displaying previously. Problem solved, and proof that I definitely have more to learn about how to best utilize all aspects of my Omnipod 5 system!

Imaginary Beeps

While busy at work one afternoon, I was listening to a Spotify playlist (as I often do), when I could’ve sworn I heard my Omnipod beeping to alert me to a failure.

Oh noooo…I thought. I remember sitting in my chair, with my head cocked and music blaring, as I tried to confirm that the beep was indeed emitting from my pod.

I was so certain that my pod was failing that it didn’t even cross my mind (at least initially) that it could’ve been my music playing a little too loudly.

And then I realized…it wasn’t my pod after all. It was the song that I’d been listening to. Roughly 2:45 into the song “Honestly” by Cartel, the music rose to such a crescendo that I could’ve sworn that it was my pod failing, but nope, it was just the pitch of the sound emitting from my speakers.

What a relief! But also a stark reminder that this phenomenon occurs on the regular. I mistake beeps from standard household appliances, alarm clocks, television commercials, and the outside world in general for Omnipod beeps. And I’m struck by it every single time.

The sounds of diabetes, just like diabetes itself, are just something I’ve come to accept – in the many unique forms they appear in.

The Top Three Things my Diabetes Devices Get Mistaken For

When I started using an insulin pump and a Dexcom CGM – and even when I switched to a more modern glucometer – I never really anticipated what other people might have to say about these devices. Yes, I figured that people would notice them, and they’d probably occasionally stare out of curiosity (and sometimes, rudeness).

But I never thought that people would think that they were anything but medical devices. I shouldn’t have so much faith in people.

3623CC31-9681-499D-9EB2-3F019B98F6BC
Can I see the confusion between my old iPod and my glucometer? Um, sure!

Over the years, I’ve noticed a pattern when it comes to what people think my devices are…here are the top three things that my various gadgets are mistaken for:

  1. My OmniPod PDM is typically confused for a beeper. A freakin’ beeper? Helloooo, we’re not in the 90s anymore! Honestly, I can’t even remember the last time that I saw a legitimate beeper/pager device…so it really cracks me up when people ask if I’m carrying around such an old-school piece of technology.
  2. My pods and Dexcom sensors look like cigarette patches, apparently. The first time someone asked me if my pod was a cigarette patch, I asked them, “Do I look like a smoker?” (Not that smokers are supposed to “look” a certain way.) I was more amused than offended, but also kind of awestruck that somebody would confuse a patch that from my understanding is fairly discreet/sleek in design with a lumpy pod or sensor.
  3. My glucometer seemingly resembles an iPod nano. Once, a person asked me why I was wiping blood on my iPod. I wish I was kidding. I’ll allow that my Verio IQ meter and iPod nano are similar in shape and size, but the similarities end there.

Truth be told, it’s actually pretty funny when people think my devices are something other than medical gadgets. And whenever a comment is made and I have to gently tell whoever it is that they’re incorrect in their assumptions about the device(s), I can almost always guarantee that they will end up feeling foolish for what they said. I almost feel bad, but…not really. For the most part, at least I can say that all’s well that ends well, because these interactions usually lead to a valuable teaching moment that the other person won’t forget.

And clearly, I won’t ever forget these moments, either!