3 Things I Wish I Knew About Diabetes in College

My blog post earlier this week probably made it very clear to you that I work for a nonprofit called the College Diabetes Network – but in case you didn’t know, now you know.

In my position with the organization, I semi-regularly interact with current college students living with type 1 diabetes. This causes me to reflect every now and then on my college experience and what I would change, knowing what I know now, about how I managed my diabetes when I was in college. I came up with 3 things that I wish I’d known then that would’ve likely made life on campus a lot easier for me – and it seems very appropriate to share these things this week, which is College Diabetes Week. Here’s what I wish I knew…

Me, almost 7 years ago, on the day that I officially became a UMass alum!
  1. I wish I knew then that an insulin pump would greatly benefit me. Hands down, this is the biggest diabetes regret that I have when I think about my time at college. I can’t tell you how many times it was inconvenient for me to whip out my insulin pen in the middle of the dining hall and inject before every meal. My rationale at the time was that there were already too many changes happening in my life (because as we all know, the transition from high school to college is huge), and that I didn’t want to toss learning a new piece of diabetes technology into the mix. Plus, I was stubborn – I figured that my then-current MDI regimen was doing a good enough job for me and my diabetes. If I’d only known that a pump would’ve allowed me so much more freedom…
  2. I wish I knew then that I should’ve asked my parents sooner to let me take over ordering diabetes supplies. All throughout college – and admittedly, for a few years post-graduation – my mom took care of reordering my diabetes supplies for me. She’d keep track of how much insulin I had left in the fridge, and my main responsibility was to let her know when I was running low on test strips or CGM sensors. I really wish I’d asked her (before I turned 26) to let me order supplies on my own, or at least walk me through the process so I had a better familiarity with it by the time I aged off my parents’ insurance plan. I had to learn a lot, and very quickly, when age 26 came around, and I could’ve avoided the steep learning curve if I’d been more proactive about it at a younger age.
  3. I wish I knew then that I could’ve avoided many diabetes mistakes by doing more research and getting more involved with the diabetes online community. Namely, I wish I’d known more about how to “party safely” with T1D. I went into college not having a single clue about how alcohol would affect my diabetes – and that is something that is incredibly dangerous. I learned a couple lessons the hard way in college, and I’m lucky that I didn’t have to pay any serious consequences. Knowing what I know now, I should’ve turned to the diabetes online community for guidance, tips, and tricks from people who could’ve helped me avoid some scary highs and lows I had after a weekend of partying. Imagine what I could’ve learned from Reddit threads, had I known they were available!

While I can’t change anything about the way I took care of my diabetes in my college years, I can say that I’m proud of myself for eventually gaining these insights about it. I may have done better had I known about these things sooner, but what matters is that I did find out about them in due course, which has led to positive changes in my diabetes care in the long run.

T1D and Peer Support: Because of CDN…

This blog post is a response to a prompt provided by my friends at the College Diabetes Network, who are celebrating College Diabetes Week from November 12-16. Even though I’m no longer in college, I like to participate in CDW activities as much as possible to show my support for the CDN!

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In my last Memory Monday, I touched on how CDN changed my life. But I didn’t go into great detail on how, exactly.

CDN was my first leadership opportunity as a young adult. In college, I became President of the UMass Amherst chapter of the CDN. That role came with tons of responsibilities: organizing meetings, recruiting new members, creating a constitution, getting approval from the student government, keeping track of chapter finances, electing an executive board…it was exhausting! But I was passionate about it and wanted to see it succeed, so I threw myself into the work of running a chapter. I took my role as a leader seriously, but also wanted to make sure that the group benefited everyone who decided to join it. I did my best to listen to member feedback and apply it accordingly to group meetings and activities, which I think shows that I’m a receptive leader.

And my involvement as a chapter leader is what brought me so many friendships. That’s because I was able to attend the inaugural CDN student retreat during my final year of college. That’s where I met student leaders just like me from colleges across the country. We commiserated on the hardships of running chapters as well as the challenges of having diabetes in college, and straight-up bonded for the few days we spent together. I felt that the retreat helped me come out of my shell a bit, and only molded me into a more confident leader with more resources than before that could help me run my chapter most effectively.

I’ve said it before, and I’ll say it again: I’m eternally grateful for all the wonderful people and opportunities that CDN has brought into my life.

What I Wish I Knew When I was Diagnosed with Diabetes

This blog post is a response to a prompt provided by my friends at the College Diabetes Network, who are celebrating College Diabetes Week from November 12-16. Even though I’m no longer in college, I like to participate in CDW activities as much as possible to show my support for the CDN!

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I was four years old when I was diagnosed with type 1 diabetes. I don’t have many memories from that fateful trip to the hospital. Since it was Christmas Eve, my only real concern was whether I’d be home in time to enjoy Santa’s visit!

But in the nearly 21 years that I’ve had diabetes, I’ve come to learn that there’s so many things I would have liked to know at diagnosis. I didn’t truly understand what my diagnosis meant at that young age…I don’t think I realized how it would forever change my life. I was probably more frightened than anything else, since I was being poked and prodded by seemingly endless needles.

That said, I wish I could’ve told that four year old girl that having diabetes would make me stronger. Every single needle that I was stuck with would help me fight against this disease. Everything that was physical about diabetes would make me mentally stronger. The kind of strength it imparts is a different breed, one that’s difficult to describe, but one that I’m strangely grateful to have.

It always sounds slightly weird to say that I’m grateful for something associated with diabetes, but that’s what Hugging the Cactus is all about: taking the good with the bad and embracing it for what it is.