The Dexcom Site I’d Never Try Again

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This blog post was originally published on Hugging the Cactus on February 26, 2021. I’m sharing it again today because I see folks trying new Dexcom sites all the time, usually with a lot of success! I thought it was worth it to share my experience with the forearm site because it was the polar opposite of a win for me – read on to learn why.

I don’t usually regret trying new sites for my Dexcom and OmniPod.

But recently, I discovered the one area that I wish I hadn’t tried…and that is my forearm.

The forearm Dexcom site gets a big old NOPE and OUCH from me.

For a couple years now, I’ve seen forearm Dexcom sites all across social media. People lauded the location for how comfortable it is and the accurate readings it produces, so I figured, why not give it a shot? (LOL diabetes humor.)

Plus, I wanted to give my stomach and the backs of my arms a break. I put both pods and sensors in those locations and while I like them a lot, I’m wary of scar tissue building up.

So with little fanfare, I tried putting my Dexcom on my left forearm (my non-dominant arm). And I knew immediately after hitting the orange button to insert the sensor that it was a bad choice because it STUNG. It stung something fierce! I remember wincing the moment it pierced my skin, and fortunately, the pain did go away…but resurged with a vengeance about half the time I made any arm motions. It didn’t matter if I was flexing it up or down or twisting it to reach for something – any movement could trigger varying degrees of pain. Nothing incredibly intolerable, but enough to make this site uncomfortable.

My face says exactly how I feel about this site: It’s not a winner.

And this pain didn’t altogether disappear one day: I still felt stings 24 hours after I put the sensor on. Maybe I hit precisely the wrong spot (I noticed a very small amount of blood discoloring the white adhesive of the sensor), but I asked the diabetes online community and it seems that the general consensus is that this location sucks. The half-dozen or so people who messaged me said that either the pain was too much and they took the sensor off early, or they toughed it out for a full 10 days and never used the site again.

What’s more is that this site wasn’t as out-of-the-way as I wanted it to be. I roll up my sleeves dozens of times each day for different tasks, and each time I went to roll up my left sleeve, I had to go about it gingerly so I didn’t risk bumping into the site and prompting ripples of pain. This was straight-up annoying because my diabetes devices don’t usually inhibit my movements so much.

The one plus-side of trying the new site, and the only thing that motivated me to keep it on for the full 10 days, is that it was just as accurate as any other Dexcom site I’ve tried. My readings matched up pretty closely with how I felt and with what my blood sugar meter reported, so that was a saving grace. And I have to admit that even though I was worried that sleep would be impossible with the sensor in such a tender spot, it really didn’t interfere with my slumbers, which was a relief.

All in all, though, the accuracy wasn’t enough to convince me to want to keep forearm sites in my regular rotation. I’ll stick with abdomen and upper arm sites for now, with the occasional thigh site to further prevent scar tissue.

Yes, I Can Eat Cheesecake and Pizza.

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Yes, I have diabetes.

Yes, I can eat cheesecake and pizza.

Yes, I can actually eat whatever I want – I just have to know the carbohydrate content of whatever I’m consuming (and being mindful of portion size doesn’t hurt either).

Yes, I’m telling you this because at the time of this writing, that’s actually what I had for lunch this afternoon: homemade pizza and cheesecake. The pizza crust was store-bought, but everything else – from the sauce to the cheesecake crust to the strawberry topping – was made by me and it was damn good.

Funny story: I sent a picture of my cheesecake (shown above) to my coworkers and because I have terrible lighting/I’m not a food blogger, someone thought it was a photo of baked beans and I couldn’t stop laughing.

I guess I’m just taking a moment to 1) congratulate myself on semi-mastering the home-cooked versions of these two foods, but also to 2) reflect on how there’s so much stigma, STILL, on what people with diabetes can/can’t or should/shouldn’t eat. It’s wild to me that there are countless people in our world who misunderstand that a diabetes diagnosis automatically eliminates certain food groups from an individual’s diet.

Let me say it louder for those in the back who can’t hear: People with diabetes can eat whatever they want. Diabetes varies from person to person, and so do dietary preferences – so just because one person with diabetes might follow a strict keto diet, it doesn’t mean that ALL people with diabetes do. It doesn’t make it right or wrong for a person with diabetes to choose or not choose to eat certain things – period, bottom line, end of the story.

And by the way – I took a big old bolus of insulin for aforementioned pizza and insulin and my blood sugar didn’t spike past 188 mg/dL several hours later – score! So I’m also using this blog post to remind myself that it’s okay to eat “treat” foods like this from time to time, and that does not make me a bad diabetic.

Spare a Rose for Ukraine

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Just a couple of weeks ago, I shared my annual blog post in support of the Spare a Rose campaign – you can read about what it is, who it benefits, how it started, and why I like to do what I can to raise awareness of the campaign each year here.

But right here, right now, is about how the Spare a Rose campaign has been extended and taken on a new meaning due to recent world events.

The Spare a Rose campaign takes on even more important meaning in the month of March.

Presently, the campaign is now called Spare a Rose for Ukraine. In the past several days, I’ve seen rallying cries around the diabetes online community that have all echoed similar sentiments: What can we do to support people living with diabetes in Ukraine who need access to life-saving medical supplies in this time of crisis? That’s how Spare a Rose for Ukraine was born.

Throughout the month of March, donations made to the Spare a Rose platform will support people with diabetes in and out of Ukraine. These donations will help people who are in desperate need of supplies obtain them, and with donations being directed to Insulin for Life – a charity that has more than 20 years of experience providing insulin/diabetes supplies to under-resourced countries as well as responding to emergencies – I feel confident that this campaign will result in countless lives being saved in such dire circumstances.

If you’d like to learn more, or make a donation, please visit the Spare a Rose website.

Battery Blues

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Between this post and the one from a couple of weeks ago, this blog is rapidly turning into one in which I bemoan the battery life of my diabetes devices…

The fact of the matter is, though, that I’ve definitely had my share of battery issues lately. The Omnipod DASH problem was resolved (rather swiftly), thanks to the folks at Insulet. But now it’s my Dexcom transmitter battery that’s acting up…and resulting in a whole lot of lost data (and even more frustration) for me.

If I can’t have a working pancreas can’t my diabetes devices at least have everlasting batteries?

It all started about a week and a half ago, when my Dexcom app notified me that my transmitter battery would be expiring in 3 weeks. That was to be expected – Dexcom transmitter batteries last 90 days, and according to my records, the one I’d been using was for sure approaching the expiry date.

What I didn’t expect was that the waning battery life in my transmitter would trigger multiple false blood sugar readings and periods of no readings whatsoever. At least I think my transmitter is to blame – I hadn’t experienced any issues with sensors from my last shipment and the app usually never experiences errors like this unless there’s a problem with the sensor and/or transmitter, so logic led me to conclude that my transmitter was simply losing reliability as it came closer and closer to its expiration.

My workaround was to do finger stick checks any time I was untrusting of my Dexcom, or whenever it was giving me a “no readings” alert. Plus, I’ve got a fresh transmitter ready to be activated once this one stops working, so it’s not like I’ll be without a Dexcom for an unbearable length of time.

In spite of that, I still thought this was worth talking about here on the blog because 1) I can’t remember if I’ve ever had a transmitter fade so dramatically in the last 3 weeks of its lifespan, 2) it was an exasperating situation and I needed to vent, and 3) I’m wondering if this has ever happened to anyone else before, and if there’s a workaround.

At this moment in time, I’m not quite sure what a feasible solution would be besides ripping a sensor off prematurely and sticking to finger stick checks for a few days until my annoyance ebbs…which is exactly the strategy that I decided to go with. I’m definitely looking forward to new transmitter time…

That “Thing” on my Arm

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This blog post was originally published on June 12, 2019 on Hugging the Cactus. I’m sharing it again today because when you live with T1D, it’s inevitable that you’ll attract stares – and sometimes questions you’d rather not answer – from people who are befuddled by your diabetes gadgets and gizmos. This one encounter in particular is a great reminder that not all oglers have ill intent…read on for more.

“Yo, I don’t mean to be rude, but what’s that thing on your arm? Looks pretty cool.”

I turned around to face the stranger who was looking at me and asking me this question. It was well after midnight and we were on the rooftop of a fairly crowded bar. It was a balmy, summery night and I was enjoying the atmosphere with my boyfriend and my best friend. I’d had a few drinks over the course of the night, but judging by the state of everyone else on the rooftop, I was probably more sober than most of them.

That “thing” on my arm is basically my pancreas – please don’t stare at it, bro.

I could’ve answered his question in a scolding manner; it wasn’t a “thing”, it was a device that keeps me alive.

I could’ve totally dismissed him and told him to mind his own beeswax, because really, it is sort of rude to point out something on another person’s body.

I could’ve lied and told him it was something that it’s not to get him to stop bothering me.

I could’ve launched into an educational breakdown of what an insulin pump is and why my OmniPod looks the way it does.

I could’ve done any number of things, but instead I decided to say, “Oh, this is my insulin pump. I’ve got it decorated right now with a picture of a lighthouse because I like adding some style to it.” I smiled at him as a way of reassuring him that I really didn’t care that he was asking me, because I didn’t.

My straightforward answer seemed to please this random man. He told me again that he thought it was cool, and then we chatted a bit about where the lighthouse is and discovered we both have a connection to Massachusetts. Within a few brief moments, the conversation was over as we went our separate ways.

It was a perfectly harmless interaction that could’ve went a number of different ways, but to me, it’s all about context. This guy was just asking out of curiosity, and I truly don’t think he was trying to be rude about it. So I answered his question succinctly but good-naturedly, because I felt that was the only way to go about it in this busy party environment. Plus, let’s be real here…had I delved into a discussion about diabetes and devices, this drunk man probably wouldn’t have digested a single detail of my description. (Ahh, I love alliteration.) And another important point? He was damn right, my pump did look cool because of the lighthouse sticker!

But man, how much simpler it’d’ve been if I’d just been wearing my “THIS IS MY INSULIN PUMP” sticker on my pod that night.

Diabetes is All About Getting Comfortable Being Uncomfortable

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“Get comfortable being uncomfortable” is a phrase I first grew familiar with when I developed a more serious workout regimen a few years ago.

My daily exercise usually consists of walking my dog, then spending 30-45 minutes completing a workout video of some sort. While these workouts vary in terms of exercise type, one thing remains consistent among them all…and that is the ferocity of the trainers, who besides showing me proper form and technique, also do their part by shouting motivational phrases as I sweat.

“It doesn’t get easier, you just get stronger!”, “You don’t wish for it, you have to work for it!”, and of course, part of the title of this blog post…”Get comfortable being uncomfortable!”

During a particularly challenging workout, that saying stuck out to me. Suddenly, it was dawning on me that this was an extremely good way of summing up life with diabetes. After all, nobody asks for diabetes to happen to them – it just does, and it’s up to people with diabetes and their care teams (loved ones, healthcare providers, and so forth) to accept it and adapt to it.

Life with diabetes is sort of like walking barefoot on rocks…adapting to and getting comfortable with being uncomfortable.

And let’s be real here: There’s nothing comfortable about diabetes. In fact, there’s a lot of uncomfortable things about it. Constant pokes and prods from sharp needles, interrupted nights of sleep, gadgets that alarm at inopportune and sometimes awkward times…and these are just a few of the things that keep me and other people living with diabetes walking on a tightrope at times.

Despite the often-disagreeable ways of diabetes, it’s important that those of us who live with it find comfort in embracing it for what it is. We can’t change diabetes itself, but we do have the power to change how we perceive life with it. So while diabetes has the ability to make me physically uncomfortable (and frustrated, sad, annoyed, anxious…a whole laundry list of emotions), it’s on me to get comfortable with these feelings and live my best life in spite of them. And like exercise, though it can be an exhausting, challenging, and the very last thing I might want to do sometimes, it’s also something that benefits my body and mind in the moment and in the long run. Why not think about diabetes in the same way, or even move past comfortability with it and into embracing it?

At this point in my diabetes journey, I think I’m mostly there…and therefore happy to say that I am comfortable being uncomfortable.

The Dazzingly DASHing Drained Battery

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Cell phones, eReaders, tablets, video game consoles, PDM devices…these are all electronic devices that rely on rechargeable batteries in order to keep them up and running. Of all those possibilities, which one do I think has the worst battery life?

Unfortunately, it’s my Omnipod PDM.

The speed at which my Omnipod DASH PDM battery drains is alarming…

It’s particularly unfortunate because the fact that the Omnipod DASH has a rechargeable PDM was one of the more exciting features to me when I first started using it. It always bothered me that I had to remember to keep AAA batteries on me at all times with the traditional Omnipod model (I know, I’m making a mountain out of a molehill with that one, but people with diabetes already have to remember to carry so many “just in case” items on us at all times that something like two measly batteries feels like a big effin’ deal). I also disliked how it was pretty difficult to predict when the traditional Omnipod PDM’s batteries would run out of juice (though I eventually did an experiment that helped me approximate the batteries’ lifespan a little better).

So imagine my delight when I learned that my DASH PDM could be recharged! This would feel like second nature to me seeing as I already own so many electronic devices that run on rechargeable batteries. According to the instructions manual for my DASH system, the battery would be able to last 3-4 days on a single charge, so it was nice to know that I’d have to expect to charge my new PDM only once or twice per week.

But in late September – only 4-6 weeks after I started using my DASH system – I noticed a slight issue. My DASH PDM was only holding a charge for a day, maybe a day and a half. This little problem exploded into a significant headache when I went on a trip to California and my PDM died right in the middle of my day trip to San Francisco, forcing my boyfriend and I to troubleshoot quickly.

I should’ve learned my lesson right then and there and called Insulet when I returned home from my trip, but…life happens. My schedule grew extremely busy, then the holidays were here, then I just…well, I grew complacent with having to recharge my PDM on a mostly daily basis. It’s embarrassing to admit it, but I only defend this behavior in a similar way to how I felt about carrying extra batteries on me at all times because there are simply far more important things to worry about when it comes to living life with diabetes. I was fine to coexist with this short battery lifespan if it meant that everything else in my little diabetes world was working okay – and since it was, I didn’t think to do anything about it…

…until recently, when I decided that maybe I should call Insulet and ask for their advice.

Thanks to their wonderful customer service team, I learned that if I were to use any charging cord or plug besides the one that came with my PDM originally, that might contribute to dazzingly dashing drained batteries. That caught my attention because I definitely wasn’t always using the right cord/plug: Often, I was just grabbing the first thing in sight around my condo seeing as so many other electronic devices can be recharged with the same style of cable.

I was reassured that I was doing all of the right things otherwise – silencing alarms when they came up, putting my screen to sleep when I wasn’t using it, and changing my system settings so the screen was programmed to go dark in the shortest amount of time possible. I was also promised a new PDM if, after a few weeks’ time of using exclusively the Omnipod DASH charger, I noticed that it was still having drained battery issues.

Sure enough, the problem has persisted, so I now owe Insulet another call to get my PDM replaced altogether. Here’s hoping that my replacement will outDASH my bad PDM in terms of battery life…

Spare a Rose and Save a Life this Valentine’s Day

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The world has turned upside down in the last couple of years, but some things remain the same. For instance, we still celebrate holidays and special occasions with those we love. And today just so happens to be a holiday that’s all about love!

Valentine’s Day…whether you adore or abhor the day, it exists. It’s a day that’s synonymous with chocolate, love, and flowers; more specifically, a dozen red roses.

A dozen red roses is a classic Valentine’s gift. But what if you received 11 roses in your bouquet, instead of 12? What if you knew that a rose was spared because the value of that flower helped provide insulin to someone who needs it to live?

I bet you wouldn’t mind getting one less rose in that case. And it might just make you like the holiday a little bit more!

Who knew that the value of a dozen roses could pay for a child with diabetes to live another year of life?

A little bit of history: Nearly 10 years ago, folks from the Diabetes Online Community (DOC) started the Spare a Rose campaign for the organization Life for a Child. This campaign was able to give insulin and diabetes supplies to children and young adults with T1D in under-resourced countries. Starting in 2022, these individuals looked at how they might be able to support all people with diabetes, seeing as the need for insulin and related supplies and care lasts well beyond childhood.

Thus, Spare a Rose, Save a Life was born! Donations to this campaign go to Insulin for Life, a charity that provides resources, education, and advocacy to many of the same under-resourced countries that were supported by the original Spare a Rose campaign.

It’s an absolutely wonderful idea that will positively impact – and save the lives of – even more people living with diabetes who need access to vital medication, supplies, and healthcare.

I’ve written about the Spare a Rose campaign for the last few years on this blog because it’s a beautiful way to celebrate a day that makes some swoon and others sick to their stomachs. A common complaint among people in this day and age is that too many holidays are all about raking in the dough for companies like Hallmark; in other words, most holidays have lost their original meaning and have become too commercialized.

So here’s your chance to bring back some significance to Valentine’s Day. In the light of the health challenges the world has collectively faced in the last couple of years, it’s more important than ever that we do all that we can to help people with diabetes access life-saving supplies and care.

Learn more about Insulin for Life, Spare a Rose, and donate here.

An Onslaught of Alerts

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Imagine receiving the same notification on your phone every 5 minutes…over and over again…nonstop until you actually do what it’s demanding to you.

Sounds maddening, right?

Well, that’s exactly what I experienced with my Dexcom app recently. Every 5 minutes on the dot, I got a “Calibration Alert” push notification that told me to “enter new blood glucose reading to maintain your sensor accuracy”. Doesn’t sound like too big of an ask, right? Why not just do it?

Of course I just did it – the first handful of times that it asked. But when this alert persisted to appear on my phone each day, around 24 hours after I’d calibrated my Dexcom sensor, I started to get super irritated. But I was also confused. I shouldn’t have to calibrate my Dexcom, like, ever. The G6 was designed to make it so calibrations are a thing of the past. I only ever even bother to calibrate it within the first few hours of wear if I feel that the blood sugar it’s reporting is really off, and that usually forces it to correct itself and show far more accurate readings fairly quickly.

So why was my Dexcom being so forceful with the reminders for me to calibrate?

Imagine seeing this alert pop up on your phone…every 5 minutes…for an hour…or 3. That’s a few dozen reminders too many.

I knew that my best shot at finding the answer to this question was by going to the people who are intimately familiar with the ins and outs of Dexcom devices – no, not the manufacturers themselves. I’m talking about my colleagues, of course. (One of the best parts about working at a diabetes nonprofit is that my coworkers and I collectively have 100+ years of diabetes experience under our belts and constantly ask one another for advice or wisdom regarding various diabetes scenarios.)

When I asked them if they’d ever encountered anything like this, one person explained that the CGM can get a little confused if, when after the initial two-hour warm-up period, a super high or a super low blood sugar can trigger the system to get stuck – almost like it’s unsure of what it’s reading. This tracked for me because when I started up this particular sensor, the two-hour warm-up period collided with a particularly nasty low blood sugar of 35. That blood glucose value is low enough that the system can’t even pick up the number “35” – instead, it just shows that I’m “LOW”.

So as a result of this, my sensor was likely just in need of calibrations every 24 hours just to make sure it was working properly. It’s probably in the code of the software or something to prompt users to calibrate every day until the system feels more confident about what it’s reading. That makes sense and all, but dang, is it annoying. Sure, I could’ve silenced the alarms a lot faster if I just calibrated whenever I got the first alert of the day, but my schedule didn’t always allow for that. And besides, after 4 or 5 years of using the Dexcom G6, this T1D has gotten used to no more finger pricks; because of that, it’s hard to go back to old habits.

But hey, it has wound up being another diabetes scenario that I hadn’t experienced yet and just another lesson learned, so while it may have been a bit of a nuisance it was also educational. And I’m okay with that.

What I’m Looking Forward to the Most About the Omnipod 5

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I experienced many emotions when it was announced, at long last, that the Omnipod 5 received FDA approval. The most prevalent one was joy: I was elated for myself, my mom, my coworker MJ, and all other people with diabetes who have greatly anticipated this day for what felt like ages. The thought that so much of the heavy weight associated with life with diabetes will soon be lifted off our collective shoulders is one that is thrilling beyond words.

Besides joy, I felt anxious (when will we actually have access to this technology?!), hopeful (the wait is bound to be worth it), surprise (I hadn’t expected the FDA approval this early into 2022), and…relief. That last emotion was probably the one I felt most strongly right behind my joy, and that’s because I’m taking solace in knowing that my secret diabetes struggle will be no more with the help of the Omnipod 5. And this leads me to the explanation of what I’m most looking forward to about the Omnipod 5…

I cannot wait to get my hands on the Omnipod 5…but for now, I’ll have to settle for staring at this promo image of it.

…and that is sleep. Yes, sleep. More specifically, sleeping soundly through the night, every night. Because my secret diabetes struggle has gotten in the way of that to new extremes in the last several months.

Long story short (I’ll save the long version for an upcoming blog post), my sleep is disrupted perhaps 3-4 times per week due to a low blood sugar. It’s annoying, sure, but part of the problem is my complacency in the matter. As crazy as it may sound, I’ve grown accustomed to the sound of my Dexcom alarming at any hour of the night and rolling over to grab a low snack from my nightstand drawer.

I think it’s been so easy for me to make peace with because of all the diabetes battles I could pick and choose (for example, if I had to choose waking up for lows or dealing with high blood sugars for hours on end any time of day), it’s the one that seems the most painless compared to every other possible scenario. It’s a weak explanation for this behavior, but it’s the best one I’ve got and I think that some people living with diabetes could probably understand (or even relate to) this rationale.

So that’s why I get a little teary-eyed thinking about how the automated insulin delivery mechanism of the Omnipod 5 could help reintroduce truly restful nights of sleep back into my life.

They are tears of joy, anticipation, and hope over how this new piece of technology may very well help me (and countless other people I love and care about) reclaim so many aspects of life that “normal” people take for granted.