WTF is CGM Sensor Soaking?

I saw an Instagram story a few weeks back that intrigued me.

In it, a friend of mine was talking about how she “soaks” her CGM sensors. Instantly, I was confused: What the heck did she mean by that? Soaks them in what, hot water or some other liquid?

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Contrary to the connotation of the word “soaking”, this does not mean you’ll be submerging your CGM in any sort of liquid.

Within seconds, her definition of “soaking” became much clearer. “Soaking” a CGM sensor means inserting a fresh sensor hours before you intend to activate it. Rather than giving your sensor just two hours to warm-up, you’re giving it 4-6 hours so it can supposedly provide much more accurate readings immediately after the warm-up period has ended.

I was interested in this practice because I’ve definitely experienced sensors that were off for several hours post-insertion/warm-up. Sometimes, it even takes a full day for a sensor to start reporting accurate numbers, and I wouldn’t exactly call that efficient.

While I haven’t had the guts to actually try sensor soaking yet – I’d like to sometime in the near future – I’ve been doing some research on it so I’m fully prepared to try it whenever I’d like. Here are some questions I had about the process, and the answers I’ve found to them:

Q: Doesn’t this mean that you’re wearing two sensors at once?
A: Yes. But it’s only for a short window of time, until the old sensor expires and it’s time to activate the new one; in other words, for the full soaking period.

Q: How long should I let a new sensor soak?
A: According to what I’ve found online, it seems that 4 to 6 hours is the sweet spot for soaking. It’s basically doubling or tripling the built-in warm-up period that all sensors must go through, so I can see how this might contribute to improving immediate accuracy.

Q: How do I protect the new sensor if it doesn’t have a transmitter snapped in it for several hours?
A: The reason why I haven’t tried soaking yet is because I was worried about wearing a sensor that didn’t have a transmitter snapped in it. But I found some photos online of people who wore transmitter-less sensors with stretchy, self-adhesive wrap tape to protect the nook in which transmitters rest for the soaking period. It’s smart to protect that space, because in theory, it could be vulnerable to catching on clothing or other surfaces. Plus, tape like that is really easy to remove without damaging the sensor in the process.

Q: What changes about the sensor activation process when it’s finally time to start the new soaked sensor?
A: My research leads me to believe that nothing really changes at the end of the soaking period/when it’s time to activate the soaked sensor. All that will be needed is the sensor code so it can be properly activated within the receiver/Dexcom app. So the most important thing you can do at the very start of the soaking period is hold onto your sensor code/store it somewhere safe so you’ll be able to enter it at the end.

Q: So…why would anyone bother trying this again?
A: My understanding is that it all relates back to making sure a fresh sensor is as accurate as possible once it’s activated. I can’t tell you how many times I’ve put on a new sensor, only to discover a few hours after it has warmed up that it’s off by 40 or 50 points – and that just doesn’t cut it. So I don’t think there’s any harm in me giving sensor soaking a shot one of these days. I just have to remember to do it, and have the patience to wear three devices at once (my pod, the soon-to-expire sensor, and the new soaking sensor).

Have you tried soaking? If so, please drop a comment and let me know your thoughts on it – and be sure to tell me if I missed any key steps in my research!

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A Farewell to my Endocrinologist

Well…the day I’ve been subconsciously dreading has finally arrived.

It’s time for me to part ways with my endocrinologist…the diabetes doctor that I’ve seen for the last decade…more than one-third of my life.

She’s moving onto new things, and I’m sad to see her go. She’s helped me tremendously over the years.

She’s seen me at my “diabetes worst”, when I was a college student who cared more about having a normal college experience than managing my diabetes.

She was the one who finally convinced me to quit MDI in favor of an insulin pump.

She’s one of the few medical professionals I’ve ever interacted with who treated me like an equal – she never made me feel “less than” or inferior to her.

In other words, I was pretty dang lucky to be her patient.

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The “thank you” card that I plan on giving my endocrinologist, pictured with two devices I started using thanks to her.

I’m trying to take this forced change in stride. Maybe it will be good to meet with another endocrinologist. Maybe it will help me continue to improve. But I am allowing myself to feel a little upset and sorry over the situation; after all, it’s never fun to part ways with someone, especially when you had no say in the matter.

Guess what else I’m allowing myself to feel?

Gratitude.

I feel thankful for my endocrinologist, so I plan on giving her a card with the following message during our appointment tomorrow…because it’s important to me for her to know all the positive change she’s brought to my life:

Dear [Name Redacted],

I wanted to thank you for all that you have done to help me (and my mom and aunt) in the last several years. You have always motivated me to take better care of myself after every appointment I’ve had with you. I appreciate you for being patient with me, listening to my concerns, and inspiring me to try new technologies and treatments to improve my quality of life with diabetes. I don’t like having a chronic illness, but having a doctor like you around to help me deal with it means the world to a patient like me.

Wishing you all the best in your future endeavors!

Sincerely,

Molly

Ye Olde…Insulin Pump?

Sometimes, you just gotta have fun with diabetes.

Which is why I didn’t think twice before writing “ye olde insulin pump” on my pod before attending a renaissance faire last week.

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Me, wearing a flower crown and showing off my ye olde insulin pump…just living my best life.

Yep, there I am, with my pod in full view, my Myabetic backpack slung on my shoulders, and turkey leg in hand. This is pretty much me in my full glory.

I could’ve let my diabetes get in the way of me enjoying the faire, especially because it’s been somewhat unpredictable lately, but I didn’t.

I ate what I wanted, drank some raspberry wine (much tastier than mead, IMHO), and socialized with friends.

I anticipated some people to notice or comment on my pod, which I actually wouldn’t have minded because maybe it would’ve been from another T1D or someone who is familiar with insulin pumps. But all day long, the only remark came from someone within my group, and we all had a chuckle over it…and that was it.

Which is perfectly fine by me, because even though my ye olde insulin pump and I weren’t trying to hide diabetes at the renaissance faire, it did give me a mental vacation from it for part of the day.

Huzzah to that, indeed.

I Don’t Care Why I Have Diabetes

I saw a post on Instagram recently that infuriated me (I hope you can get a sense of the vitriol I’m about to spew out).

An Instagram user (who shall remain nameless because it’s not cool to put people on blast) was exploring the reasons why they thought they developed diabetes in a series of Insta stories. Several questions were asked:

Was it because of an sedentary lifestyle?

Did it have something to do with being breastfed versus bottle-fed?

Does it have to do with diet?

Was it because of exposure to a certain set of germs?

Did it have something to do with a family history of diabetes?

And the list goes on…and on.

Why did it make me angry?

It’s because, well, personally, I don’t care WHY I have diabetes. I don’t think that exploring the reason(s) why I have it is a healthy way to spend my time.

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*Shrug emoji* I just think there are more important conversations to be had when it comes to life with diabetes.

All I know is that my pancreas doesn’t produce insulin – rather than trying to narrow down the reason why that is, I’d much rather put that energy into taking the best possible care of my diabetes.

Am I crazy? Doesn’t that make sense? It’s just that wondering about the why won’t do a damn thing to change the fact that I have diabetes.

I don’t want to make anyone feel badly if they’ve spent a lot of time thinking about the “why” – I’m sure that when I was younger, I asked myself that question a lot – but I’m merely just trying to change the direction and the focus of the conversation.

Let’s not talk about why – let’s talk about how.

How we can live incredible, full lives with diabetes.

How fortunate we are to have access to tools and technology that help us manage it.

How, despite diabetes sucking a lot of the time, it’s actually brought about a lot of positive change and influence in many peoples’ lives.

Now that’s the kind of productive discussions I’d like to see on social media…not the ones that are all doom, gloom, and pure speculation.

The Curious Case of Rotten Insulin

I spent half of the month of August high.

NOT THAT KIND OF HIGH.

I’m talking about blood sugar here, people.

And I’m not talking about scary-high levels. I’m just referring to levels that are higher than I’d like – between 160 and 200. And I’d stay stuck right in that range, even after bolusing quite aggressively.

I chalked it up to stress – life has been a little unkind to me this summer. I also blamed it on making less-than-healthy food choices, and questioned whether I needed to seriously start thinking about taking Metformin again (even though I had a shitty experience on it).

In other words, I took the brunt of responsibility for my highs. I was angry with myself for letting my diabetes get out of my control, and was just starting to accept responsibility when it hit me that it might be something other than my body rebelling against me at play here.

As it turns out, I should’ve suspected an outside factor from the beginning. That’s because my insulin had, somehow, gone bad.

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The vial in question…it caused me a boatload of stress.

I’m still very confused about how or why it happened. My insulin had an expiration date that was like, 2 years from now. The contents within the vial were totally clear – discoloration would’ve indicated an issue – and everything about this vial of insulin looked completely fine.

It was, and still is, an utter mystery to me as to how or why the insulin spoiled.

If nothing else, the case of the rotten insulin made me wonder…why hasn’t anyone developed strips that can check the effectiveness of insulin yet?

Can somebody please get on that (and give me partial credit for helping to spark this genius idea)?

Yoga with Goats (and T1D)

It seems like a new fitness trend is “going viral” every week: between aerial silks, SoulCycle, and at-home fitness mirrors (in which a real trainer appears in your mirror and you get to watch yourself while they talk you through the workout – whoa FUTURISTIC right?), there is a plethora of ways to get physical that don’t involve standard, boring weights or treadmills.

I recently had the opportunity to try one of the most random, and possibly cutest, fitness craze…goat yoga. Yep. Yoga, but with goats.

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All downward dogs should be called downward goats when doing a goat yoga class.

It’s exactly what it sounds like. You move through a series of yoga poses, but there just happens to be adorable baby goats roaming around the class. They aren’t shy about making their presence known, either. When they aren’t bleating or searching for goat treats under your yoga mat, they’re actually JUMPING ON TOP OF YOU. It doesn’t matter if you’re in a tabletop pose (see my photo, above), downward dog, child’s pose…they’ll find a way to climb on you and turn you into their personal jungle gym.

It was a little disconcerting at first, and it was damn difficult to focus on flowing through yoga poses because you didn’t know if or when a goat would hop on your back or accidentally brush up against you with its horns.

And it was virtually IMPOSSIBLE when my blood sugar went low halfway through the class.

I knew that I was starting to feel off after I completed a short series of bird-dog crunches. I felt oddly exhausted after doing five on each side, so I went to go check my CGM data on my phone when I realized I didn’t have access to any, because I’d just inserted a new sensor that morning and the warm-up period wouldn’t be complete until the end of the goat yoga class.

Great timing on that one, Molly.

I decided to give it a few minutes before I took any corrective measures. So I just sat there, watching people struggle to get bendy with goats running amok. It was really pretty funny, but my sense of humor was shot, thanks to my low blood sugar.

I’m a little embarrassed to admit that the goat factor also prevented me from correcting my low right away, but…well, those things were germy. They’re farm animals, of course they will be messy and smelly. But they were literally peeing and pooping on our yoga mats, and precariously closely to our clothes/bodies. Forget feeling like I needed to sanitize my mat when the class was over – I felt like I needed to power wash MYSELF, at max intensity, just so I could feel totally clean again. So the prospect of checking my blood sugar in the middle of everything seemed absolutely unsanitary and virtually impossible.

But…like, I had to suck it up. After all, I didn’t want to do that thing that goats do, which is faint. Except they do it in a semi-cute way, and because they’re born with a condition that causes muscles to seize up when they’re startled. And there was no way I was about to faint due to a stinkin’ low blood sugar in front of a bunch of strangers and goats.

So I forced myself to navigate to the clean, protected patch of land that my backpack was perched on, dodging poop balls on the way over, and immediately grabbed my hand sanitizer so I could cleanse myself before reaching into my backpack and consuming a small box of yogurt-covered raisins. I still felt gross about it, but I did the right thing and took care of myself.

And I’m happy to report that by the end of the class, my blood sugar was on an upswing and not one goat had peed or pooed directly on me. Sweet success!

 

Favorite Things Friday: Zeno Bars

In this edition of Favorite Things Friday, I share a new snack find of mine that I really enjoy: Zeno Bars.

I received this 3 bar sampler pack at no cost to me, shipped out by the Zeno Bar team. This is an unpaid review of a free product. This is my honest review of the product. My words were not influenced.

Now that we’ve got the full disclosure stuff out of the way, let’s dive into my review of…Zeno bars! I saw these bars in a post published by Beyond Type 1 and was instantly curious about them. They claimed to be not only delicious, but also low-carb, low GI (glycemic index), gluten-free, and vegan. In my experience, it’s rare for a bar to actually taste good but also be a healthful treat. So I decided to contact the company to see if I could get my hands on some bars. A major thank you to Sue Papuga, one of the co-founders, for making this possible and for her warm correspondence via email.

Without further ado, here’s my thoughts on each of the three flavors I tried:

Strawberry Nut – This was the first Zeno bar that I tried. As I unwrapped it, I was instantly reminded of another kind of snack bar: Lara bars. The texture and appearance of the Zeno bar was practically identical to a standard Lara bar, which made me excited because I love Lara bars. I don’t buy them often, though, because they have a high carb content that can make them tricky to bolus for.

But this wasn’t the case with the Zeno bar. I ate the strawberry nut flavor one afternoon as I was out and about running errands. I didn’t take insulin for it and, sure enough, my blood sugar didn’t budge for hours (until I ate some ice cream for a late lunch, that is). The bar was the perfect midday snack – soft, chewy, slightly sweet and zippy from the strawberry flavor. It almost tasted a bit like a peanut butter and jelly sandwich, minus the bread. So far, I was off to a good start with the Zeno bars.

My rating: 8/10

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Flashing a big smile after enjoying the Strawberry Nut Zeno bar!

Cocoa Chip – Like Strawberry Nut, I really enjoyed how Cocoa Chip tasted. It was reminiscent of a Chewy chocolate chip granola bar, except I found the Zeno bar to be much more satisfying (and with hardly any carbs compared to the Quaker-branded bars). The only reason why I didn’t score it a touch higher was that it tasted like many other granola bars out there that also have the chocolate chip flavor profile. But just like the Strawberry Nut flavor, this one was soft and chewy, and didn’t raise my blood sugar at all.

My rating: 7/10

Almond Nut – This one REALLY surprised me, because I assumed almond nut would be the blandest flavor of the bunch. I’m happy to report that it was actually my favorite. It was practically like eating almond butter, which I’m crazy about, but in bar form. What’s not to love about that? Just like the other two Zeno bars, Almond Nut only had a few net carbs overall, and I experienced zero blood sugar spikes after consuming it.

My rating: 9/10

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All 3 Zeno bars from the sampler pack.

All things considered, it’s safe to say I had a great experience with Zeno bars. All three were yummy, made for quick and convenient snacks on the go, and (the best part) cooperated well with my diabetes. I’m especially looking forward to stocking up on the Almond Nut flavored bars, because they were so unique compared to other snack bars I’ve had, but also totally delicious.

After reading this blog post, I’m sure you’re wondering how you can obtain some Zeno bars to try yourself. Check out their website, zenobar.com, to order some bars and read more about their origin story.