Favorite Things Friday: My SPIBelt

One Friday per month, I’ll write about my favorite things that make life with diabetes a little easier for me.

For most people with diabetes, there’s no such thing as traveling light.

It doesn’t matter if we’re packing for a vacation or taking a brisk afternoon stroll – we’ve got to have a certain amount of supplies on hand in order to be prepared for any number of scenarios that could occur while we’re “away”.

As you can imagine, this can be pretty annoying, especially when it comes to simple matters like leaving the house for 20-30 minutes. It’s not like we can go out empty-handed. We need to stash our purses/backpacks/bags with the appropriate diabetes supplies, and it can get pretty bulky. I used to find it especially cumbersome if I was just trying to go for a walk in the neighborhood and had no choice but to carry a purse with me the entire way, which slowed me down and frustrated me.

Then I got my SPIBelt.

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My Dexcom SPIBelt

This miniature fanny pack changed everything for me! It looks small, but stretches to hold all of my essentials for when I head out on runs or longer walks. I can fit my cell phone, glucose tablets, and OmniPod PDM in the tiny pouch. There’s even enough room leftover for my dog’s treats and poo bags, leaving my arms and hands free to hold his leash when we go on walks together.

Other features of my SPIBelt include a slit in the pouch for earbuds, a secure clip in the back, and adjustable waistband so it can fit snug to the body, no matter how many layers of clothing I’m wearing. And unlike other armbands, pouches, and drawstring bags I’ve used in the past, my SPIBelt is actually comfortable. It stays in one place, so I’m not distracted by constant movement around my waist. I was definitely impressed by it the first time I took it on a run and didn’t have to keep on adjusting it as I moved. It’s much more discreet and doesn’t look quite as “old-school” as fanny packs or other similar bags.

This particular SPIBelt was given to me by Dexcom as a thank you for participating in their G6 ad campaign, but as I’ve come to find out, SPIBelts are widely available online and in stores.

This Thanksgiving, I’m Thankful for…Diabetes?

This post originally appeared on my blog at ASweetLife.org on November 26, 2013. It’s hard to believe that I wrote it nearly five years ago, but with Thanksgiving occurring tomorrow, I thought it would be appropriate to revisit it since it captures my feelings about diabetes this time of year. Of course, life has changed quite a bit in the last five years, so I’ve made a couple amendments (below, italicized) to the original…

Each year around Thanksgiving, I think about the things that I am thankful for in life. Some obvious answers come to mind: my parents. My brother, my boyfriend, my dog. The fact that I am able to attend an amazing college. The roof over my head and the food on my plate. The list could go on and on. I’m sure most of my answers are unsurprising.

But is it weird that I’m thankful for diabetes, too?

Don’t get me wrong here. Oftentimes, I resent that I have to deal with the burden that is diabetes on a daily basis. I cry about it, I get angry about it, I curse about it. I wish that it didn’t impact me or my loved ones the way that it does. I’m all too aware, however, that I cannot change the role diabetes plays in my life. All I can do is accept it. When I did that and truly thought about what acceptance means, I began to think of why I might feel blessed in some bizarre way to have diabetes.

For starters, my diabetes has brought me closer to my family. My mom and I are able to relate to each other on a different level because of it. My dad and my brother show concern and unrelenting support for us that might not be the same if Mom and I did not have diabetes.

Sometimes, I think about how even though my diabetes seems to have a mind of its own, it adds a certain degree of control regarding some aspects of my daily life. It helps me get into a routine that is pretty static. It relies on what I choose to feed myself; in this way, it motivates me to make the right choices when it comes to my diet.

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And it has brought some amazing opportunities my way. Without diabetes, I would not have become president of the UMass Amherst chapter of the College Diabetes Network. I would not have discovered the Children with Diabetes: Friends for Life conference that I attended in Disney this past summer, where I made some awesome friends who keep in touch with me. And I certainly would not have begun blogging for ASweetLife.org. This experience itself has allowed me to get in touch with my feelings regarding diabetes to a greater extent. I have been able to explore my interests as an individual who loves to write. I have the pleasure of speaking with a wider variety of people within the diabetic community and hearing individual stories that I might not have ever heard.

I never would have guessed that a mere five years after writing this post, I’d be writing content for my very own diabetes blog. The creation of Hugging the Cactus is a huge diabetes-related accomplishment itself, but I’m reflecting on other diabetes changes I’ve experienced and how I’m thankful for them…so many come to mind. My OmniPod insulin pump, my improved A1c levels, new friendships formed…I’ve come a long way, and I’m grateful for every single positive experience that diabetes has brought into my life.

That’s why I’m seeing diabetes as something to be thankful for this Thanksgiving. I long for the day where diabetes is cured and I no longer have to think about it. But for now, I want to make the best out of something that could be perceived as the worst.

With all that said…enjoy your Thanksgiving holiday! No matter how you choose to celebrate it, remember that you are loved, you matter, and there’s people in your life who are endlessly thankful for your love and light.

Can the Dexcom G6 be Restarted? (and Other FAQs)

I’ve been lucky enough to have the Dexcom G6 CGM in my life for just over six months now. In that time, many people in my life – both T1Ds and non-T1Ds – have asked me countless questions about my experience with the device. I thought it’d make sense to address some of the most commonly asked questions here, in the hopes that I can provide some insight to those who are curious about the Dexcom G6.

Question: Can the Dexcom G6 be restarted?

Answer: In my experience, no. I cannot get the G6 to restart like I could get my G5 to restart. But take my “no” with a grain of salt, here, because I know of other people who HAVE had success restarting their G6 sensor, making its life extend much longer than the 10 days guaranteed by Dexcom. I have only tried to restart the G6 once, with absolutely zero success, following the process outlined here. My advice to those who want to try to restart their G6 is to do so cautiously, and make sure you’re not trying to do so with the last sensor in your stockpile.

Question: Is it actually safe to take acetaminophen (Tylenol) on the Dexcom G6?

Answer: Yes! I’ve noticed that acetaminophen can be taken safely on the G6. I did not anticipate for it to be unsafe, seeing as it was advertised as one of the big improvements Dexcom made from the G5 to the G6. I’ve taken Tylenol a handful of times without noticing any issues with my CGM readings, but as always, be sure to monitor your blood sugar carefully and perform a manual finger stick check if your symptoms don’t match up with your CGM.

Question: I can’t get my Dexcom G6 sensor to stay put for the full ten days. How do you make it last?

Answer: There’s tons of ways you can help ensure your G6 sensor stays stuck on for the entire ten-day duration. I always make sure that my skin is completely dry before the sensor makes any contact with the site. Avoiding any excess moisture is key in helping it stay put. If I notice the sensor starting to peel around the edges after a few days of wear, then I use a Pump Peelz CGM adhesive to keep it in place. Those tend to work really well for me. In times of serious adhesive doubt, I also use Skin Tac wipes, which basically glue that sucker down. One last tip I recommend is to avoid sites that come into contact with a wide variety of surfaces. In other words, a sensor that’s placed on the abdomen may fare better than a sensor on the leg, because the odds of the sensor getting accidentally knocked off due to contact with clothing or other objects are lesser. You know your own body better than anyone, though, so trust your own judgment when it comes to CGM placement.

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Modeling my G6.

Question: Is sensor insertion truly painless?

Answer: For me, G6 insertion has been pain-free approximately 85% of the time. It’s stung slightly a handful of times, but I’ve found that it only hurts when I choose a site that’s not particularly fatty. That’s why I generally stick with my abdomen – either side of my navel – or the back of my arms for G6 insertion.

Question: Is the G6 really that much more accurate compared to the G5, or any other CGM on the market?

Answer: Yes and no. That may not be a very satisfactory answer, but I’ll explain why that’s my belief. Overall, the G6 seems to be more accurate for me than the previous Dexcom CGM models I’ve worn. Are the number always on point compared to what appears on my meter? No. Do I wear the Dexcom CGM to have an accurate picture of what my exact number is at a given moment in time? Kind of, but I also know that this isn’t totally realistic. After all, users of the Dexcom CGMs know that it measures blood sugar levels in five-minute intervals. It can’t give me a clearer picture of what my blood sugar changes are minute-to-minute. So with that in mind, I find that the G6 is really excellent for monitoring trends – seeing how rapidly my blood sugar is falling or rising, or seeing how it changes gradually over time. The patterns are more important to me than the precise numbers; at least, that’s how I feel in my current stage of diabetes management.

I can’t really speak to other CGMs on the market, such as the Freestyle Libre or Medtronic’s CGM. But what I can say is that I’ve heard less-than-stellar reviews about both. It’s important to remember, though, that they’re not meant to be the exact same as the Dexcom CGM. The Libre itself isn’t really continuous and can’t provide users with information until they chose to wave the receiver over the sensor. And as far as I’m aware, the Medtronic CGM communicates directly with Medtronic pumps, and I’m not sure how seamlessly the systems work together.

Bear in mind that when it all comes down to it, I’m answering these questions with my experience, and my experience alone, in mind. Dexcom is and will always be the number one resource to go to with any questions regarding their CGM devices. But hopefully, the information I’ve shared here will at least help someone who is curious about the G6 feel more motivated to seek additional information. I stand by the fact that it has revolutionized my own diabetes care and management, and though it’s far from being flawless, it’s still an invaluable tool to have incorporated into my daily routine.

Leadership in the T1D Community

This blog post is a response to a prompt provided by my friends at the College Diabetes Network, who are celebrating College Diabetes Week from November 12-16. Even though I’m no longer in college, I like to participate in CDW activities as much as possible to show my support for the CDN!

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Recently, I’ve asked myself, “Am I doing enough?”

I want to make meaningful contributions to the diabetes community. I think that I make a slight ripple by writing this blog, but to me, a ripple isn’t enough. I want to do more.

That’s why I want to put more effort into seeking additional advocacy opportunities. I haven’t defined those yet, but I know that there has to be more ways in which I can make my voice heard in a way that has a greater impact. Perhaps I can do more to further the #Insulin4All initiative, which, if you’re unfamiliar with, is explained on the Insulin Nation site in the following terms:

T1International is a global nonprofit that works to improve life-saving access to insulin, supplies, and healthcare for individuals with Type 1 diabetes around the world. Their mission is to support local communities by giving them the tools they need to stand up for their rights so that access to insulin and diabetes supplies becomes a reality for all. The organization helped to launch the #insulin4all hashtag and campaign, which has recently gained a lot of traction in the United States, where diabetes costs have grown especially exorbitant. Note: T1International is not limited to #insulin4all and vice versa, although both are discussed here.

I admit that it’s an effort that I’m only vaguely acquainted with, and I’d like to change that because it’s massively important. It goes without saying, but diabetes is difficult enough. Anyone who lives with it or cares for someone with it should be able to afford the insulin they need to survive, or to help a loved one survive.

If you’re someone who’s worked on this campaign, or if you know a way that I can step up and do more as a leader in the T1D community, please feel free to let me know. We’re in this together, and the more people we’ve got chipping in on various efforts, the more impact we’ll make.

Adulting with T1D

This blog post is a response to a prompt provided by my friends at the College Diabetes Network, who are celebrating College Diabetes Week from November 12-16. Even though I’m no longer in college, I like to participate in CDW activities as much as possible to show my support for the CDN!

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Most people who know me understand that I have a bit of the Peter Pan syndrome going on – I don’t want to grow up. I’d rather embrace my inner child and shun the responsibilities associated with adulthood. That’s what I’d like to do, anyways.

But the harsh reality is that I’m a woman in her mid-20s who does, indeed, have quite a few responsibilities in life. In addition to the gamut of obligations that most other adults have on their shoulders, I have an extra-special one – yup, you guessed it: diabetes.

I didn’t realize just how much my parents managed my diabetes until I got to college. Suddenly, it was on me to make sure I had enough supplies at all times, to make doctor’s appointments for myself when I wasn’t feeling well, and to do basic things like feed myself regular meals. It doesn’t sound like much, but when you’re adjusting to college life, meeting new people constantly, and making your own choices as to how you spend your spare time…then it becomes a big deal that can feel overwhelming at times.

The shift in responsibility was tough at times, but I made the adjustment and learned to hold myself and myself alone accountable for all aspects of my diabetes care and management. And I’m starting to prepare myself for yet another big change coming in about six months. On my 26th birthday, I’m going off my parents’ healthcare coverage and will need to enroll in my company’s plan. There’s going to be a learning curve there as I discover what will and what won’t be covered under my new plan, and I’m teaching myself to accept it. After all, it’s unavoidable, so like everything related to diabetes, I’m just going to choose to embrace the challenge with a smile on my face.

Type 1 Diabetes, an Invisible Illness

This blog post is a response to a prompt provided by my friends at the College Diabetes Network, who are celebrating College Diabetes Week from November 12-16. Even though I’m no longer in college, I like to participate in CDW activities as much as possible to show my support for the CDN!

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Invisible illnesses like diabetes can be difficult for healthy people to truly understand. Typically, they only see bits and pieces of it; for instance, when someone performs a blood sugar check or injects insulin. There’s so much that they don’t see: doctor’s appointments, late/sleepless nights, complex calculations, careful monitoring, and so forth.

But what’s really difficult for anyone to see is the emotional impact of diabetes.

Unless I choose to open up to someone about it – which is easier said than done – then there’s no way for another person to grasp the magnitude of the emotional side of diabetes. There’s no way for someone to feel the incredible amounts of anxiety, fear, and anger that cycle through me as I deal with diabetes. While I don’t experience these emotions every single day, I DO have to experience diabetes daily, and it’s impossible for someone to know what that’s like unless they either have T1D or care for someone with it.

I don’t wish for anyone in the world who’s unfamiliar with the (literal and emotional) ups and downs of diabetes to actually learn what it’s like. But I do wish for a world that’s a little more understanding, accepting, and educated when it comes to all things related to diabetes – and that’s why I advocate.

T1D and Peer Support: Because of CDN…

This blog post is a response to a prompt provided by my friends at the College Diabetes Network, who are celebrating College Diabetes Week from November 12-16. Even though I’m no longer in college, I like to participate in CDW activities as much as possible to show my support for the CDN!

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In my last Memory Monday, I touched on how CDN changed my life. But I didn’t go into great detail on how, exactly.

CDN was my first leadership opportunity as a young adult. In college, I became President of the UMass Amherst chapter of the CDN. That role came with tons of responsibilities: organizing meetings, recruiting new members, creating a constitution, getting approval from the student government, keeping track of chapter finances, electing an executive board…it was exhausting! But I was passionate about it and wanted to see it succeed, so I threw myself into the work of running a chapter. I took my role as a leader seriously, but also wanted to make sure that the group benefited everyone who decided to join it. I did my best to listen to member feedback and apply it accordingly to group meetings and activities, which I think shows that I’m a receptive leader.

And my involvement as a chapter leader is what brought me so many friendships. That’s because I was able to attend the inaugural CDN student retreat during my final year of college. That’s where I met student leaders just like me from colleges across the country. We commiserated on the hardships of running chapters as well as the challenges of having diabetes in college, and straight-up bonded for the few days we spent together. I felt that the retreat helped me come out of my shell a bit, and only molded me into a more confident leader with more resources than before that could help me run my chapter most effectively.

I’ve said it before, and I’ll say it again: I’m eternally grateful for all the wonderful people and opportunities that CDN has brought into my life.