When Diabetes Makes You Eat More in Between the Appetizers and the Main Course

Normally, I don’t eat snacks after I’ve had a starter course at a restaurant, and my order’s in for my entree…because that’s just weird. I’m going to a restaurant to eat food, anyways (presumably a meal), so why on earth would I need to eat a snack in between courses?

Diabetes. Duh. Diabetes is always the answer (or root of the problem).

How annoying it was to start feeling shaky and sweaty, only to discover that my blood sugar was almost in the 60s soon after devouring my app and placing my dinner order. How irritating to know that the two chicken wings I just ate contained virtually zero carbs; therefore, would not do anything to boost my blood sugar any time soon. And how obnoxious it was, looking around the crowded restaurant and realizing it’d likely take some time for my meal to come out – and that the food I’d ordered was also relatively low carb (a bun-less turkey burger with side salad), and would also do nothing to correct my low.

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You can see that I held off on correcting the low for as long as possible…but then the shakiness started.

Can you tell that I was just a bit irked at the situation?

I did what I had to do – reach into my backpack to grab one of the leftover granola cups from the pack of two I’d started earlier that day. I ate it quickly, crushing the wrapper in my hand and shoving it hastily back into my bag, hoping that no one saw me eating food that wasn’t from the restaurant like a wackadoodle.

And I swear, within five minutes, our food was out. I was happy but also just mad that I had to snack in between my appetizer and my main course. But diabetes is like a petulant toddler – it doesn’t care what you want or need, it just demands. It’s more demanding than any person or thing in my life. It’s exhausting, but there’s no choice other than to just oblige its needs, even if it means eating when you don’t want to.

That Time Low BG Made Me Mad at the Moon

Low blood sugars in the middle of the night are far from pleasant. But they’re especially grating when you’re just trying to have a sleepover with your best friends and your CGM alarms loudly and urgently, rousing more than just me from a peaceful slumber.

Dammit, diabetes…you’ve done it again.

I don’t know how or why the low happened. I went to bed around 1 A.M. – we had stayed up late talking, drinking wine, and eating snacks – and at that time, my blood sugar was 156. You can’t get much better than that, and it felt even sweeter because we’d eaten pizza for dinner earlier in the evening.

I thought I’d be fine overnight. I might come down a smidgen due to the unit and a half I took to cover a slice of fabulous flour-less chocolate cake (utterly heavenly), but I made the assumption that I wouldn’t come crashing down.

I should know by now…never assume with diabetes.

So it happened at about a quarter of four in the morning – a witching hour, in my mind. I woke to the frantic buzz buzz buzzing of my CGM and quickly acknowledged it, then reached for my tube of glucose tablets. I did it as silently as I could, seeing as I was sharing the room space with my three gal pals. From what I could tell, my super slow glucose tablet chewing didn’t even cause my friends to stir. It seemed that I’d successfully managed to avoid waking anyone up, thank goodness.

I was just starting to fall back into a doze when the frantic low CGM alarm blared – BEEP beep BEEP beep BEEEEEEEEEEEP. Ugh! Upon hearing the first beep I snatched up my receiver, silenced the alarm, and scooped up my test kit and my phone. I tiptoed out of the bedroom from which we were all nesting to the living room, where I searched through my backpack for the Skittles I’d purchased earlier in the day…because that’s right, this 3:45 low blood sugar hadn’t been my first in the last twelve-hour window of time.

Digital Imaging Specialist
Low blood sugar in the middle of the night can make you feel weird things…such as anger towards the moon.

I plopped myself on the couch and started furiously chewing Skittles. I remember looking out to the sliding glass doors and to the balcony and to the parking lot and then finally up to the sky to see the moon shining brightly at me. It was positively dazzling, yet infuriating with its cheerful gleam. I wanted to yell at it to stop looking so happy. I muttered to myself, “this sucks,” and reclined a bit on the couch while I waited to come up from the low.

Everything was fine within 15 minutes. I was on my way up and could safely go back to bed. And again, I congratulated myself for not waking anyone up.

Or so I thought.

“Did anyone hear my CGM go off in the middle of the night?” I asked my girlfriends, approximately six hours after the incident when we were all awake and about to head out to breakfast.

“Yes! I was wondering what that loud, aggressive noise was,” said one. I cringed, an apology lingering on the tip of my tongue, when she continued with an “are you okay? Don’t worry about the noise, I fell back asleep soon after.”

I was grateful for her reassurance, but also for her concern. It felt good to know that ultimately, she didn’t give (apologies for language) two shits about the actual sound that my low blood sugar caused, she was just worried that I recovered from it okay and could get back to sleep soon after.

I smiled to myself. Hours before, I’d been cursing the moon for merely existing and dealing with an annoying, random low blood sugar. But now, I was cruising at a great morning BG and I was on my way to get a delicious breakfast with my gal pals. Diabetes has its moments, but I sure as heck appreciate it when it cooperates during the ones that matter most. So in hindsight, the 3:45 A.M. low was nothing more than a temporary annoyance, and I was just glad that the worst thing it did was interrupt my sleep (and mine alone) for 10 minutes rather than ruin actual precious time spent with my friends.

My New Low Blood Sugar Symptom

In the last 21 years of diabetes, my low symptoms have been pretty predictable and easily recognizable: shakiness, sweating, dizziness, and sluggishness are all signs that I need some sugar, stat.

But lately, I’ve started to experience one brand-new and totally weird low blood sugar symptom. I’ve decided to dub it “fuzzy tongue”.

Love always wins..png
“Fuzzy tongue” or “terrycloth towel tongue” is now one of my low blood sugar symptoms.

I don’t know how else to describe it other than that it feels like my tongue and lips are covered in a terrycloth towel as my blood sugar starts to fall to a certain level, usually 75 mg/dL or lower. Simultaneously, it’s a numb and tingly sensation that feels so disorienting and makes the process of chewing glucose tablets or drinking juice a little more difficult, because it feels weird to eat or drink when my entire mouth feels like it’s covered in cloth.

In fact, the first time it happened, I took to Twitter to ask the rest of the DOC if there was anyone else who had experienced something like that before. And I was comforted by the many responses I got back that assured me that I wasn’t alone in feeling this strange symptom:

“Yes, from certain lows. Sometimes I feel like my [whole] body is buzzing and fuzzy, if not fizzy. Other times, it’s like my body says, “BTDT! Got the glucose tabs! Move on!”

“YES! This is a new symptom for me too (after 17 years of treating lows)..Thought I was allergic to honey the first time.”

“This is a common one for me. Tongue and lips. I hate it”

“Sometimes I get tingly lips or tingly fingers!”

“That’s almost exclusively how I can tell that I’m low”

“YES! If it’s a prolonged low, I get tingly lips and tongue. It’s super weird and really uncomfortable.”

“I get more of the tingling/partial numbness in the lips (‘fuzziness,’ I suppose) that some have described. Usually this occurs with a bad low (under 50 mg/dL).”

Those are just a few of the replies that my initial tweet received. I found these particularly interesting, though, because one person identified it as a new symptom, too, and others implied that it’s always been an indicator of low blood sugar that’s more likely to occur with “bad” lows. In addition to helping me feel a bit more normal about the discovery of my new low symptom, I also found this to be an example of the ways in which the DOC is uniquely unified. To an outsider, this whole Twitter thread probably makes zero sense and comes across as bizarre. But to someone part of the DOC, it’s just another conversation that brings T1Ds trying to get to the bottom of a ‘betes mystery together.

So even though “fuzzy tongue” is uncomfortable, I’m glad to know I’m not the only T1D who’s felt it…and I’m very glad that my body has found another way to alert me to a low blood sugar, especially since it’s a way that makes me want to correct it more quickly than ever before.

14 Words That Describe how Glucose Tablets Taste

My shaky hands pop the lid off the tube of glucose tablets. A puff of dust floats out from the tube – a cloud of sugary residue from the ten tablets stacked neatly on top of each other. A friend watches me remove two tablets. Unfazed by their gaze, I chew them quickly, knowing that they’ll kick in soon and give my blood sugar the boost it needs. My friend waits until I’ve put the tube away to ask me what glucose tablets taste like.

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Ugh…I can practically taste the sugar dust by just looking at this photo.

This exact scenario has unfolded a number of times over my years with diabetes. I don’t know why people are so fascinated by glucose tablets and their taste. Is it because I describe them as sugar pills? Is it something about the way they’re encased so tidily and conveniently? Do the pastel colors look especially appetizing to some people?

Whatever the case may be, I’ll put an end to all the curiosity surrounding glucose tablets right here, right now. Here’s my list of 14 words that describe the taste and texture of “magic sugar pills”, also known as glucose tablets.

  1. Chalky.
  2. Dusty.
  3. Artificial.
  4. Dry.
  5. Fruity.
  6. Slightly medicinal.
  7. Mildly acidic.
  8. Sweet.
  9. Brittle.
  10. Dissoluble.
  11. Powdery.
  12. Tangy.
  13. Stale.
  14. Crumbly.

So based on those descriptors…do they still sound remotely appetizing…? Probably not. Though I didn’t use the most flattering language to describe them, they’re still responsible for saving my butt – literally – countless times. And for that, I can forgive glucose tablets for not being the most palatable things.

Memory Monday: My Lowest Low Blood Sugar

One Monday per month, I’ll take a trip down memory lane and reflect on how much my diabetes thoughts, feelings, and experiences have unfolded over the years. Today, I remember…

…the lowest low blood sugar that I ever experienced. So low, in fact, that I never actually found out how low it reached. Scary stuff.

lost in stockholm

Admittedly, my memory’s a little fuzzy when it comes to recollecting what exactly happened, but here’s what I remember: It was my sophomore or junior year of high school. I woke up in the morning and checked my blood sugar – or so I thought. In reality, I think I imagined checking my blood sugar, or perhaps I went through the motions of doing it without actually getting a reading.

Regardless, I made my way down the stairs and into the kitchen, where I encountered my mother. I told her that I wanted “special cake”.

I remember her looking at me with worried eyes and asking me what I was saying. All I can recall is that I asked for special cake two or three more times before getting totally frustrated with her. How could she not understand my request for Special K cereal?

That’s right, in my stupor, I thought I was saying that I wanted Special K cereal for breakfast. But I didn’t realize that my low blood sugar was causing me to slur so badly that my words weren’t coming out clearly.

I vaguely remember my mom’s panicked reaction as she figured out that I must be experiencing a low. I think she asked me what my blood sugar was, and when I couldn’t tell her because I didn’t remember, she knew it was time to force some orange juice down my throat. I was conscious for that, but it’s like it was erased from my memory – I have no recollection of drinking the juice or what the moments after that were like.

I wound up going to school late that morning, only to have to go home less than halfway through the day. My low “hangover” was so bad that I felt nauseous in my classes and couldn’t concentrate on the lessons.

Obviously, I fully recovered from the incident. Even though my memory is shoddy at best when it comes to remembering the whole experience, the mere fragments that I can recall are enough to make me scared to ever go through something like that again. It’s a reminder that diabetes can be terrifying, but living with it is a reality that I have no choice but to accept – fears and all.

Must Be Hypo, Super Low

Today’s blog post is part 2 of my re-imagining of two classic Christmas carols! Last week’s rendition was all about high blood sugar, so of course, this week has to be about the opposite: low blood sugar, also known as hypos!

This blog post is for my extended family, who will simultaneously appreciate and cringe at my spin on the holiday classic, “Must Be Santa”. Unfamiliar with the tune? Click this link to listen to the original, and maybe even sing along using my oh-so creative lyrics, below!

Must be hypo, super low
Must be Santa – I mean, hypo.

Must be Hypo

Who’s got a blood sugar that’s dropping quick?
I’ve got a blood sugar dropping quick
Who needs a juice box to do the trick?
I need a juice box to do the trick
Dropping quick, do the trick
Must be hypo, must be hypo
Must be hypo, super low
Who’s got too much insulin on board?
I’ve got too much insulin on board
Who has a massive candy hoard?
I have a massive candy hoard
Insulin on board, candy hoard
Dropping quick, do the trick
Must be hypo, must be hypo
Must be hypo, super low
Who’s got a red sweaty face that glows?
I’ve got a red sweaty face that glows
Who is cursing at their CGM, “no, no, no!”
I’m cursing at my CGM, “no, no, no!”
No, no, no, face that glows
Insulin on board, candy hoard
Dropping quick, do the trick
Must be hypo, must be hypo
Must be hypo, super low
Who very soon will come back up?
I very soon will come back up
15 carbs, perhaps a Reese’s cup?
I ate 15 carbs, thanks to my Reese’s cup
Reese’s cup, come back up
No, no, no, face that glows
Insulin on board, candy hoard
Dropping quick, do the trick
Must be hypo, must be hypo
Must be hypo, super low
Must be hypo, must be hypo
Must be hypo, super low
Must be hypo, must be hypo
Must be hypo, super low

 

An Incident I Won’t Forget

Low blood sugars are funny. Not ha-ha funny, but peculiar in how they affect me physically and mentally.

A few weeks ago, I had an experience with a particularly scary low. It frightened me so much that I’m only just getting around to writing about it now, because I needed some time to gather my thoughts on what happened.

I’ll set the scene: I was home alone. I had eaten a carb-heavy dinner and decided to do a 30-minute, high-intensity workout. This was definitely far from my best idea ever, because due to the high-carb intake, I had a lot of insulin on board. That, coupled with the exercise, meant that my blood sugar was bound to crash soon after completing the workout.

And it sure did.

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Falling rapidly.

I had just stepped out of the shower and wrapped myself in a towel when I began to feel it. That sudden wave of weakness, shakiness, and dizziness. I walked to my bedroom, grabbed all of my diabetes supplies and my cell phone from my purse, and sank down to the floor with everything in front of me. I knew it would be wise to just sit there for as long as I needed, because I was afraid to go down the stairs (and possibly fall down/hurt myself in the process) in that state.

I checked my CGM, which confirmed that I was dropping quickly. I stared at the screen, panic flooding throughout my body. It occurred to me that I should probably do a finger stick check to make sure I was really that low, so I did, and saw that I was 60 mg/dL.

 

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The scene of the incident.

Now, I’ve absolutely been lower than 60 before. It’s never a pleasant experience. But rather than using that as a comforting thought, I couldn’t help but dwell on how terrible I felt and how frightened I was to be home alone with at least four more units of insulin still working in my system.

All I could do was chew four glucose tablets, suspend my insulin delivery, and wait.

In that period of time, I was totally immobilized.

I’ll never forget how alone I felt, how out of control I felt.

I felt powerless against my diabetes. My own body.

I’ll never forget the fear that consumed me, that nearly prevented me from helping myself in this situation.

I’ll never forget texting my mother and my boyfriend, telling them what was happening, and expressing how scared I felt.

I’ll never forget bursting into tears when they didn’t reply quickly enough.

I’ll never forget turning to my T1D Twitter buddies for help by sending a tweet about what was happening, or how swiftly and comfortingly they responded to me.

And I’ll never forget how I let my mind drift as I wondered whether I’d be okay.

It sounds totally dramatic, especially for a low that, in the grand scheme of things, could’ve been much worse. I can admit that.

But I can also admit that this is one of the few times in my life that I felt truly terrified of my diabetes, and swept up in the fact that things can change so quickly with this condition that it can quite literally knock you off your feet.

Obviously, I recovered just fine that night. The glucose tablets did their trick and my low symptoms subsided. It took longer for me to calm myself down, to breathe normally, non-panicky breaths. At least my puppy was around to soothe me.

I was fine, I will be fine. But I won’t forget this incident, ever.

The Emotions of Low Blood Sugar

Previously, I’ve written about what it feels like to have low blood sugar. While many people with T1D feel the same symptoms as me when they experience a low, there are even more who experience a wider variety of emotions and sensations.

Renza, a T1D Twitter friend of mine, did a little investigating into how others would describe what it’s like to have a low blood sugar. She sent a tweet that read:

friends. I’m crowdsourcing (again). If you had to use ONE WORD to describe how hypos/lows feel to you, what would it be. Go!! #Hypoglycaemia

She received nearly 100 responses, which I’ve compiled into the below graphic.

Capture

Looking at this word collage is a bit startling because it represents the vast array of feelings associated with low blood sugar. Most of them are negative. A handful of them start with the prefix “dis”, which describes something with an opposing force. A couple of them relate to feelings associated with eating. And just about all of them can be summed up as sensations that I wouldn’t wish on anyone.

To me, this graphic serves as a stark reminder that diabetes is more than just a chronic illness that affects the body: It affects the mind, too.

Favorite Things Friday: My Secret Snack Stash at Work

One Friday per month, I’ll write about my favorite things that make life with diabetes a little easier for me.

So, I’m going to cross my fingers and hope that none of my coworkers read my blog…because then my secret snack stash at work will become not-so-secret, and that could mean trouble for me when dealing with future low blood sugars. That being said, if you’re reading this and you work with me…stay away from the stash!!!

As I was saying…

I love having a snack stash stored away in one of the drawers at my cubicle. I like to stock it with snacks that have varying carbohydrate counts: more carbs for lower lows, and fewer carbs for the not-urgent lows. The items may vary from time to time, but usually, I keep the drawer filled with the following snacks:

  • Mini Lara bars (10 carbs)
  • Mini boxes of raisins (11 carbs)
  • Fruit snacks (all kinds, ranging from 10 carbs to 21 carbs)
  • Peanut butter crackers (15 carbs)

Sometimes, I’ll even add a jar of glucose tablets (which contains 50-60 tabs) to the lot. Glucose tablets are far less tempting to munch on then, say, a cracker pack, so when I’m dealing with a raging-hunger kind of low, it helps to have the tabs within reach because they prevent me from over-treating.

My-desk-at-work-low-snack-stash-in-the-upper-right-hand-corner.
In order to throw off coworkers (who are most definitely, probably not reading this post), I’ll share an image of my old snack CORNER. I’ve upgraded to a drawer now.

And when all else fails and my snack stash is depleted, at least I’ve got access to a fully-stocked Coca-Cola machine in my office suite, as well as a vending machine filled with all sorts of confections in the building’s basement.

But let’s be real here…who can possibly exercise enough self-control to stop eating a package of Skittles when low blood sugar comes ’round?

Favorite Things Friday: Mini Boxes of Yogurt-Covered Raisins

One Friday per month, I’ll write about my favorite diabetes products. These items make the cut because they’re functional, fashionable, or fun – but usually, all three at once!

Mini boxes of yogurt-covered raisins is an oddly specific kind of food, but they’ve literally saved my life (and my mom’s) hundreds of times.

I’m almost certain that I introduced these raisins into our low supply kit because I was looking for something that 1) was portable 2) had 10-15 grams of carbs 3) could be quick and easy to consume and 4) wasn’t glucose tablets (I get sick of them). I must’ve been browsing through the aisles of the grocery store when I found a bag containing 10 mini boxes of raisins. Clocking in at exactly 10 grams of carbs per box, they seemed to fit the bill nicely. I brought them on a trip to Disney World soon after buying my first bag, and that sealed the deal for me. They proved to be super convenient throughout the trip and helped prevent me from over-correcting my lows, which was huge for me.

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A box of raisins adjacent to my OmniPod PDM. I can easily fit several boxes of raisins into my purse, along with my other diabetes supplies.

Since that trip, the raisins have become a go-to low treatment for me and my mom, who agrees that they work just as well as glucose tablets. They’re much tastier than glucose tablets, and qualify as a healthier way to treat a low. As tempting as it might be to treat with Skittles or Starbursts, I struggle to control my intake of the candy when dealing with a particularly icky low. The raisins are already perfectly portioned, so that eliminates the can’t-stop-won’t-stop (eat ALL the foods!) feeling that can make dealing with low blood sugars difficult.

The raisins are excellent on the go, too. I can pop a box of them in the car, at my office desk, in the gym, or at church. I’ve even whipped them out at bars, and my friends get a bit of a chuckle when I down them like a shot of alcohol. But honestly, they’re so discreet and go down so easily that most of the time, people don’t even notice that I’m eating them. And if people aren’t noticing yet another part of my otherwise very prominent diabetes care kit, then that suits me just fine!