Fighting for LGBTQ+ Justice and #insulin4all

This post was written by Quinn Leighton and it was originally published on the T1International blog on July 8, 2020. June may have been Pride Month, but it’s important every day to understand the challenges faced by the queer and trans communities on a daily basis and raise awareness. Thank you to Quinn for sharing your story, fighting for LGBTQ+ justice, and supporting efforts to make insulin available and affordable for all.

I remember stepping up to the counter to check into an appointment with a new medical provider, when the woman at the desk asked me to step to the person to her right saying to her colleague, “Can you help this…” I had to finish the sentence for her, “person. I’m a person.”

I have often felt fear and uncertainty as a person living with Type 1 Diabetes: when I wake up in the middle of the night confused, reaching for my glucose tablets because my blood sugar reads between 40-50; when my spouse is driving me to the ER because I can’t stop throwing up or get my ketones down while I’m home sick with the flu; and of course the overwhelming financial burden we face daily and monthly in order to stay alive and as healthy as possible.

All of this is assuming we don’t face additional barriers such as discrimination, bias or mistreatment the moment we walk through the front door of a pharmacy, or a provider’s office simply based on who we are and how we show up in the world. For people in the LGBTQ+ community, such as myself, this fear is real and based on lived experience. I am queer, non-binary and married. I’m also white, and acutely aware that while my experiences have filled me with anxiety and have led at times to delaying medical care, I recognize I have not experienced medical racism in the way an LGBTQ+ person of color likely has.

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“We must recognize LGBTQ+ people often do not receive the same level of treatment or care that non-LGBTQ+ do, and LGBTQ+ people of color – particularly transgender women of color – are at the highest risk of discrimination, mistreatment and fatal violence.”

Delaying care due to these fears as a queer or trans person is not uncommon in any medical setting, however if you delay care living with diabetes, it can lead to life-threatening complications or even worse. It’s imperative that LGBTQ+ people living with diabetes and other chronic illnesses have the security, affirmation and resources to access the care they need.

We also know that LGBTQ+ people, particularly transgender and non-binary people make less money, despite having the same, if not higher levels of education as their cisgender, heterosexual peers. Even with a patchwork system of employment protections across communities, states and now federally; discrimination in the workplace is still very real. Among LGBTQ+ people, cis-bisexual women and transgender people have particularly high rates of poverty at 29.4%.

Together we can work toward greater health equity, but collectively, we must recognize the disproportionately high impact of poverty, violence, prejudice, mental health issues, discrimination and fear that so many LGBTQ+ people face living with diabetes. We must recognize LGBTQ+ people often do not receive the same level of treatment or care that non-LGBTQ+ do, and LGBTQ+ people of color – particularly transgender women of color – are at the highest risk of discrimination, mistreatment and fatal violence.

Understanding these inequities is paramount in moving forward in advocacy for affordable and accessible insulin for everyone who needs it, particularly those most vulnerable to bias, mistreatment and discrimination. This includes healthcare policies protecting people with pre-existing conditions and protecting LGBTQ+ people from discrimination when accessing healthcare. Efforts to repeal or rollback protections put into place through plans such as the Affordable Care Act that seek to provide care to people who need it most, particularly during a pandemic, is simply cruel and will only result in more harm and negative health outcomes. Non-discrimination protections are critical in providing the care needed for so many LGBTQ+ people living with a pre-existing condition such as diabetes, who already face a gamut of uphill battles in other areas of daily life.

Queer and trans communities are formidable. They overcome extraordinary obstacles to gain economic self-sufficiency, put a roof over their heads, maintain their health in the best of conditions, and simply exist and live in this world. What I’ve really noticed most is the courage and resiliency to navigate these barriers while celebrating community and showing up as our true and whole selves.

I recognize structural and systemic change won’t happen easily or quickly; however, I am hopeful that the movements around us will support communities of color, particularly black and indigenous people fighting for their lives and Asian people under attack due to prejudice and misinformation surrounding the COVID-19 pandemic. I am hopeful people will elevate their support of LGBTQ+ people and those most vulnerable within our community while working to make insulin affordable so that no other person living with diabetes is forced to make life-threatening decisions. And it is my hope that this momentum of support will carry us forward toward justice.

The Dog Days of Summer…with Diabetes

August is just ’round the corner (!!!) and that…feeling is creeping up on me.

That uncomfortable feeling that’s intensified by hot and humid weather.

That annoying feeling that happens when my CGM sensors and insulin pods seem to fall off my body and wither in the summer heat – the adhesives are no match for the sun’s merciless rays.

That restless feeling that creeps up when it’s too damn muggy out for my daily afternoon walks…the walks I rely on to help regulate my blood sugars and my mental health.

That fed-up feeling that’s the result of me going outside for 15 minutes, hoping to get some fresh air, only for my blood sugar to drop rapidly thanks to the high temps.

That creeping feeling of needing some kind of relief: Relief from the hottest days of summer and from every facet of diabetes management becoming just a bit more complicated because of it.

The Dog Days of Summer...with Diabetes
Is this the picture associated with this post just because I wanted to show off my dog being cute on a boat? No! Never! Absolutely not…okay fine yes.

And now that I’m acknowledging how much I’m craving relief, it honestly just sounds like I’m going through some genuine diabetes burnout.

It’s not surprising: This year’s been a wild one for me (and let’s face it, the world) in multiple ways. Overall, my stress and anxiety levels are up and my motivation to do everything that I “should” do to manage my blood sugar levels is way down. I’m very aware of what’s good about my diabetes management lately (such as my daily exercise routines) and what’s maybe not so good (my constant desire to snack on carbs and not measure them out and/or bolus for them).

I’m hopeful, though: Maybe as I continue to cope with my seesawing emotions and blood sugars, they’ll find a way to balance out on their own and be a little less intense…just as the weather will become once Autumn rolls around.

The Dos and Don’ts of Vacationing with T1D During a Pandemic

Every summer, I spend at least a handful of days at the same beach town. These trips have created so many memories for me, my family, and friends over the years. But back when the pandemic started and travel came to a standstill, I wondered whether it would even be possible to head up to my ocean-side oasis this year. After all, many states have restrictions about visitors right now, and protocols aren’t always clear. Luckily, though, due diligence was done before it was determined that yes, my family and I could still go on our trip, though we knew it might look a little different compared to our trips in the past.

Based on my experience, I’ve come up with a few dos and don’ts when it comes to traveling with diabetes during this pandemic:

Do wear a mask. Please, for the love of everything you hold sacred in life, wear a mask when you’re out in public. It’s not about political leanings or agendas: It’s about protecting yourself and the ones around you. I kept a mask on at all times when I was out and about and only removed it when others were more than six feet away from me. It was the smart and sensible thing to do. Just because I was by the beach for a week doesn’t mean that the pandemic wasn’t a reality for me. As someone who has an invisible illness, I know that I appreciated it (and still do) when I saw others wearing masks because they were not only protecting themselves from exposure, but they were also protecting me from being exposed to them.

Don’t neglect what works best for you and your diabetes when you’re at home while you’re away. I exercise in some way, shape, or form almost every single day. So being on vacation didn’t mean I was taking a break from that and my job. On the contrary, I can’t remember the last time I was so physically active, and my blood sugars responded well to that…at first. Then I started to neglect the fact that my diabetes does best when I eat a moderate amount of carbs per day (maybe around 120 total)…I definitely ate way more than that and paid the price with some sky-high numbers. I wish I’d been more mindful of my diet, but oh well, I learned from it.

Do have extra supplies on hand at all times. Besides all of my extra diabetes supplies, I also had access to an abundance of PPE (gloves, masks, hand sanitizer) throughout my trip. It brought me peace of mind knowing that I was prepared and wouldn’t have to worry about running out of any of these items.

 

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I wish I could say I was at this gorgeous-looking tropical oasis; instead, I was at a quaint New England beach town for a week…which was perfectly fine by me.

Don’t go somewhere or do anything that makes you feel uncomfortable. This is absolutely common sense under normal circumstances, but times are far from normal now. It was important to me that my family and I have discussions about what we did each day on vacation so we could make sure everyone was comfortable with the plan: the number of people that might be around to us, where to eat, what to do, how diabetes might come into play…we talked about it all and I think it helped assuage some of our worries.

Do think outside the box when planning daily activities. If you’re like me, you’re probably more than a little wary about spending prolonged periods of time around groups of people other than the ones you’ve quarantined with. This meant that I was not looking to eat inside at restaurants, go into stores, or even use public restrooms (which may or may not be an extreme view of mine). So what exactly did I do when on vacation? Well, for starters, I hit the beach nearly every day. I hit the jackpot weather-wise because it was a little too cool to be totally comfortable on the beach, so it was never crowded and I could easily stay more than six feet away from others. In keeping with the “outdoors” theme, I visited a state park, rode my bike around town, and went for a hike while I was away. I ate outside at a few different places that handled social distancing rules very well, and of course, I attended the Virtual Friends for Life Orlando conference. All of that kept me pretty busy, and I found that I didn’t really miss hanging out indoors.

Don’t forget to enjoy yourself. At the end of the day, a week off from work is a week off from work! Despite my fears about going on this trip, I’m really glad that I did because a break is exactly what I needed. My anxiety is much less intense when I’m by the beach, and I’m relieved that the weirdness of the world lately didn’t take that away from me.

Doctors Who Just “Get It”

Doctors who just “get” diabetes are the best.

And I’m not exclusively talking about endocrinologists here, because really, they’re the ones who specialize in diabetes…so, you know, they are supposed to just get it.

I’m talking about the other medical professionals that people with diabetes might see in addition to their endocrinologist.

Take me, for example…I see a primary care physician, a dentist, an allergist, an OB/GYN, and an ophthalmologist.

And only a couple of those specialists really understand what it means to have a T1D patient in their care.

Doctors Who Just _Get It_
It’s really nice when my doctors don’t question my authority on my own diabetes.

For example, I saw my allergist back in February (before all this COVID stuff) to see if she could switch me to a nasal spray that cost less than the $45 per month I was paying (because let’s be real, if I can save money on a prescription, I’m going to do it). The appointment was supposed to be quick and easy, but it turned into a two-hour affair (!) because she was concerned about my asthma.

I highlighted my issues with asthma in a post from January. The big takeaway from my most recent spells of wheeziness is that the inhaled steroid I was taking to deal with it at the time was making my blood sugar skyrocket, and I felt like I had to choose between breathing comfortably and maintaining healthy blood sugar levels…not an ideal this-or-that scenario by any standards.

So when my allergist detected some “squeakiness” (her words, not mine, and it makes me laugh because that’s a cute way to refer to the rasping gasping of asthma) in my lungs when she was listening to my breathing with a stethoscope, she asked me to catch her up on my history with asthma. When I did, she immediately understood my reluctance about taking the inhaled steroid, and prescribed me a new medication that will reduce my asthma symptoms as well as some of my allergy symptoms.

I’m never going to be thrilled, per se, about adding yet another medication into the mix: It’s just one more thing that I have to remember to do each day at a certain time. But what did excite me about this prescription is that I’ve noticed a real difference since I’ve started taking it. And more importantly, I felt heard by my allergist. She didn’t write off my concerns about the inhaled steroid, she took extra time during the appointment to run tests, and we had a back-and-forth dialogue in order to get to the bottom of things.

It was a stark contrast to the appointment I’d had with a nurse practitioner from my PCP’s office in which I was prescribed the inhaled steroid DESPITE having voiced my concerns, and the appointment was over within minutes.

It’s a bummer that not all medical professionals “get” diabetes, but it’s also a reminder that as patients, we can make a difference by continuing to advocate for ourselves until they do understand.

Do You Know How Shareholders Benefit from Insulin Price Increases?

This post was originally published on the T1International website on May 6, 2020, and was written by Rosie Collington. I am sharing it on Hugging the Cactus because to be quite frank, I never understood the many issues surrounding insulin price increases. After reading this post, I had an “aha!” moment as I finally began to understand how the profits from insulin price increases are distributed. It’s an important issue to understand: with increased awareness comes an increased drive to make change.

Patients living with type 1 diabetes have known for years that the list price of insulin in the United States has soared. They’ve paid the price – in insurance premiums, in upfront costs, and also, tragically, in some cases with their health.

But until recently, it has been difficult to prove just how much the list price of insulin has increased, and what proportion of the higher costs for patients have gone to the three main insulin manufacturers – Eli Lilly, Novo Nordisk, and Sanofi – versus other companies in the US prescription drugs supply chain, like insurance companies, pharmacies, and pharmacy benefits managers. Information about pricing negotiations is considered a trade secret, meaning that the actual data is difficult to access. Instead, researchers and patient groups have had to more or less rely on guesswork to estimate the value of price increases, or the highly selective data published by the companies themselves, which do not paint the full picture.

The lobby group representing pharmaceutical companies in the United States, PhRMA, has suggested that pharmacy benefits managers (PBMs) have been the primary beneficiaries of the sharp list price increases of many prescription medicines in recent years. The American Diabetes Association’s Insulin Access and Affordability Working Group similarly reproduced selective data released by the three insulin manufacturers on the differences between the list and net prices – the amount the manufacturer receives – of a few insulin medicines, suggesting that the additional profits accrued by the manufacturers was low relative to intermediaries like PBMs.

 

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But in March of this year, researchers at the University of Pittsburgh provided evidence that the net price of insulin medicines in the United States had also soared – by 51% between 2008-2017. This indicates that while other intermediaries had benefited from list price increases, the manufacturers had too. This may seem obvious, but having data to prove it is important.

For my research with Bill Lazonick, funded by the Institute for New Economic Thinking, it has been key to mapping how the profits from higher insulin sales revenues have been distributed. We wanted to find out whether insulin list price increases in the United States had contributed to higher research and development (R&D) investment by the companies, as they so often claim is the case. What we discovered was that as the list price of insulin has increased in the past decade, the ratio of spending on R&D relative to what the companies distributed to shareholders had actually decreased. While over the period of 10 years, the companies spent $131 billion directly on R&D, crucially we found that during the same period, the companies had distributed $122 billion to shareholders in the form of cash dividends and share buybacks.

Cash dividends are the means used by all publicly listed companies to distribute money to shareholders as a reward for holding shares. Share buybacks work quite differently – companies can buy their own shares from the market, which inflates the value of existing shares on the market. Share repurchasing can also benefit company ‘insiders’, like executives, who often receive pay in shares, because they can decide to time when they sell their shares to get the most value. This is not technically illegal, though it was once upon a time. In the last year, some lawmakers in the United States, including Bernie Sanders and Elizabeth Warren, have called for stock buybacks to be banned.

Fundamentally, the system should not have permitted shareholders to profit in this way as diabetes patients were struggling to access their life-saving prescription medicine. As coronavirus continues to spread around the world, the pharmaceutical industry is facing more scrutiny than ever before of its financing and drug development processes. By understanding how value is extracted by shareholders in the pharmaceutical industry, and what relationship this has to patient access, we can, hopefully, create a better system.

My Thoughts on Returning to Work (and this “New Normal”)

We all know that 2020 hasn’t exactly gone to plan so far, largely thanks to COVID-19.

In a word, the last 8-10 weeks or so have been…weird. Collectively, the world experienced a lot of things: shock, rapid-fire adjustments, loss, and more than anything else, change.

It goes without saying that I’ve been very fortunate given the circumstances. I’ve had my job throughout this whole ordeal, and I’ve had experience working from home before which arguably made my transition to full-time remote work a little easier. While each week has come with its own unique set of challenges and emotions, there’s no denying that I’ve had it pretty good, overall, these last couple of months.

But now, along with everyone else, I’m about to enter a “new normal” (gosh I hate that term) as states begin to re-open. And with this “new normal” comes the possibility of returning to a physical office building each workweek.

I’ll admit that the sheer thought of it simultaneously excites and terrifies me.

My Thoughts on Returning to Work (and this _New Normal_)
My thoughts on re-entering the workplace are…complicated.

On the one hand, I’m yearning to go back to work in an office space. I miss my little cubicle, office camaraderie, and meetings that are held in-person, in conference rooms, as opposed to virtually.

On the other hand, I’ve never felt more anxious about returning to a space that is shared by people other than my family members.

There are a LOT of people that enter and exit my company’s building throughout the typical workday. There are at least a dozen other companies besides mine that occupy the other floors in the building. Tons of deliveries are made to these office suites each day. While there are custodial staff who do their best to keep the building clean, it can be…a challenge, as anyone who has seen our bathrooms can attest to.

Basically, I suppose that I’m feeling incredibly nervous about the exposure to germs that is bound to happen upon my return to the office.

Even if I didn’t have diabetes and wasn’t considered at a higher risk for COVID, I’m sure I’d still feel worried because it’s not just about me: It’s also about the people I live with. I’d never want to bring anything harmful into my family’s home, period, bottom line, end of story. And while the odds are pretty damn high that PPE (personal protective equipment) will become standard when re-entering the workplace, it does little to placate me because I’ve seen firsthand how sloppy people can be when it comes to wearing it or disposing of it properly.

And so, with much still unknown about COVID, it just seems like a giant gamble to resume working in an office environment when I can’t be sure that I won’t be exposed to anything.

As it stands right now, I don’t have a concrete “return to work” date. And I don’t know what exactly it will take in order for me to feel totally comfortable about returning to the office. But I do know that I’m cautiously optimistic for a smooth transition to a “new normal” that is safe for all.

10 Countries, 10 Global COVID-19 Perspectives

This blog post was originally published on the T1International website on April 10, 2020. I am highlighting it here on Hugging the Cactus because 1) I think it sheds a lot of light on the healthcare systems in other countries and 2) it’s a reminder that we’re all in this together.


Hear from ten people living with type 1 diabetes as they share their perspectives about the impact of the coronavirus on their country and their health.

Bolivia – Laura
Things are complicated here, and our health system is already problematic. There are no masks and a lack of other correct equipment to treat patients. The government has been very careful about prevention, and quarantine has been going on for several weeks already. Many people are poor and live day by day with what they earn. The government began to give money and food aid to older people and families who receive other types of government bonds, but not everyone can receive it and many say that they do not have enough money to eat. Based on the numbers on our identification, we know when we can go out to get groceries or medications – only on specific days. Still, there is a lot of ignorance and people are not following instructions. There are 200 cases confirmed, with 15 deaths and it is increasing every day. People who have to travel long distances to get medicine do not have good options. I have a friend who has no blood glucose test strips and her blood sugar keeps going too high, but because she does not have test strips, she doesn’t know it. It is very dangerous.

Costa Rica – Dani
Our small country is on lockdown, with only 10 people in ICU at the moment. The country is making at-risk patients a priority and currently even shipping their medicines to them to prevent them from going to the hospital and getting infected. Families have been given extra insulin for the next two months, and the community is supporting each other if there is an urgent need for support or extra supplies.

Germany – Katarina
Germany has one of the lowest COVID-19 related death rates so far. A lot has been undertaken to prevent the virus from spreading – test centres have opened their doors to the general public, hospitals are increasing their capacities for intensive care and ventilation, and research teams are working hard to improve diagnostics, therapy and find preventative methods. The pandemic is challenging our healthcare system, our economy, and our society, but it also opening new pathways. A lot of diabetes care centres are transitioning to telemedicine, and people with diabetes can get prescriptions and supplies by mail. Being a doctor on the frontline and a high-risk patient at the same time is not easy – I am constantly torn between my profession and my wish to self-isolate and stay safe.

Ghana – Yaa
With the rise in COVID 19 cases in Ghana, the government made it mandatory to close down schools for a month, to limit the number of people to no more than 25 in a social gathering, and to start a two week partial lockdown in contiguous districts (3 regions). This means no one is allowed to go out unless it is to buy food and drugs. Borders are closed, and importation of goods are restricted. For people with type 1 diabetes who get supplies at the government hospital using the national health insurance scheme, they still have to go all the way to the hospital for their supplies. The hospital is a major reservoir of the virus, so it increases the chances of people with type 1 who are already at high risk. The only other option is to go buy from the pharmacies, where there is currently a surge in prices. People with diabetes were asked and encouraged to stock up on their diabetes supplies, but not everyone was able to do this. We fear for the unknown and the long term impacts.

India – Apoorva
As a medical doctor I have been working and seeing new cases, but now my entire department is in isolation. I took steps back to prevent getting sick. Delhi is one of the hotspots, and we had sudden surge in cases. Rural impoverished areas are problematic due to people living in close quarters. Our government initiated a lockdown, but many tried to leave quickly, especially migrant workers who come and go from the city centres because they lost their livelihoods. This caused the virus to spread despite drastic measures taken by the government. Currently, there are no insulin shortages as all medical services and pharmacies are operational, but we have seen a possibility of analogue shortages and hope to try to ensure that does not happen. Our main aim is to support the actions of the government and I plead everyone to stay home and protect their families.

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Kuwait – Mohammad
We have been on lockdown for four weeks, and people who came to Kuwait from other countries were tested. If someone had symptoms, they were put in quarantine. Cases have been contained and so far, there has only been one death. It is interesting that there is now a COVID-19 database that was created rapidly, but there has never been a database of people with type 1 diabetes in Kuwait. Our medications tend to be provided and some are being delivered. Overall, things are OK now, but we are concerned about access to medication and food supply in the long term because most of it is imported.

Lebanon – Cyrine
Our country has been facing tricky political problems for the past five months, since we had a revolution in November. The banks have no money, and there is no money from the government. We can only have access to a specific amount of our money per month. We are facing shortages of medical supplies including ventilators and medical protective equipment. The whole country is in an emergency state now and there are military personnel on the streets. As cases continue to rise, people are only allowed to go out at certain times and we can only walk. I have been on self-quarantine for the past few weeks. What worries me most is the people who already struggled to afford their basic insulin and supplies. With 80% or more of the population having lost their jobs, what are those who cannot afford their insulin doing now? I am trying to help those I know about, but there is no government plan for people with type 1 diabetes. People do not have money anymore, so how can they cover their insulin costs?

South Africa – Estelle
Testing here is slow. On April 2nd, I heard only 46,000 tests had been done, which is not even 1% of the population. It looks like we have small numbers of diagnosed patients but there is so much unknown. Apparently there is enough stock of medication for up to a year. Medical aid, our version of insurance, said they will cover all treatment related to COVID-19, so that is a relief. A large proportion of individuals might not be taking it seriously enough. The biggest concern is keeping the virus out of the rural areas, which are densely populated. If it spreads there, it could be catastrophic because we do not have enough hospitals.

Tanzania – Johnpeter
We only have about twenty cases identified so far. I am currently in Serengeti which means I am far from cities where cases were confirmed and spreading. I am staying put and I had to cancel my doctor appointments and other appointments. I have had to reduce my insulin dose because I cannot get any insulin here in this rural area. I have some insulin in Dar es Salaam that my doctor gave to my brother for me. So right now I am working with my brother to try to find a way to get the insulin. I am not supposed to travel to cities to risk my health, but I am risking my health by staying here without insulin. It is incredibly stressful on top of the challenges I already face accessing and affording my insulin.

USA – Karyn
In Georgia, where I live, we are also on lockdown, with cases increasing every day. The biggest issue is shortages of ventilators and protective equipment for hospital staff. Cost and affordability issues are already a problem in the USA and this will likely be an even bigger challenge now. Due to the broken healthcare system here, it’s uncertain if people will even get tested if they go to the doctor. Some people are getting billed for the test even though it has been said they shouldn’t be. Last year around this time, I went to Canada to buy a year’s supply of insulin. I have a bit more, but I’m not sure what I’m going to do without being able to travel abroad this year. I already struggle a lot with the costs. Many people are losing their jobs, and therefore losing their insurance, which will inevitably also impact their ability to afford essential medicines.

How to Hit Your Step (and Blood Sugar) Goals When You’re Stuck at Home

My diabetes has never liked it very much when I’ve stayed idle for too long.

Unfortunately, my diabetes and I don’t really have much of a choice these days other than to stay put – and I know that just about everyone else in the world is in the same boat.

So how do you hit your daily step goals when you can’t leave the house?

You get creative.

hugging the cactus - a t1d blog
With a little creativity, you can find tons of ways to stay active when you’re stuck at home – which will make your blood sugar and body happy.

And, in turn, your blood sugars will generally respond positively to any extra movement you get throughout the day…plus, with endorphins spiking (instead of bg levels), you can see a huge improvement in your mood. And who doesn’t need a mood booster right now?!

Here are the ways in which I’ve been getting 10,000 steps or more each day:

Taking spontaneous dance breaks. My mom and I are both working from home and sitting in front of our computers for long stretches of time Monday through Friday. To combat this, we’ve come up with a ridiculous but fun game called “DJ Dance Party”. It’s simple: Every couple of hours, one of us cues up music and we just dance around for the duration of the song. DJ Dance Party is a welcome reprieve from work, especially when it happens right after long conference calls!

Playing with pets. Our animals can get just as stir-crazy as we can, so by helping them combat boredom, we’re also doing ourselves a favor by getting off our butts. I play with my parents’ dog, Clarence, by chasing him around the house, throwing his toys at him, taking him for neighborhood walks, and kicking the soccer ball around in the backyard (weather permitting).

Dust off those old fitness videos. Do you have old Jane Fonda/Windsor Pilates/Jazzercise tapes or DVDs just laying around, untouched for years? Dig ’em out from wherever you’ve got them and give them a spin. It might feel silly, but then again you might also get a good laugh in addition to some exercise. I’ve done a few Zumba routines in the last couple of weeks because we have some old DVDs, and they’ve been surprisingly fun.

Hit up YouTube and other fitness platforms for free workouts. Personally, I pay for a subscription to Beachbody, which gives me access to countless workouts lead by professional personal trainers. I’ve used Beachbody workouts in lieu of going to the gym for about a year now and it has worked really well for me, but if I didn’t have the service, I know I could rely on YouTube – in fact, one search of the word “workout” on that platform brought up tons of results that vary in length and intensity. It’s a treasure trove!

Pace around when on conference calls. When I’m not attending a virtual meeting with a video chat component, I’m constantly walking around while I talk on the phone. And it honestly helps me become a more active participant in meetings, sometimes, because I don’t have the distraction of my computer monitors in front of me. I imagine this is the closest I’ll get to having a fancy-schmancy treadmill desk, but I don’t knock it because it works!

March in place while watching TV. Binge on all the TV shows and movies you want guilt-free and challenge yourself by marching in place in 15-minute intervals or at every commercial break. Steps rack up quickly this way, and it’s a go-to for me when I can’t get a walk in during the day.

So even though I’ve barely left the house, doing one, two, or a combination of these above exercises have guaranteed that I’ll meet my step goal each day. And they’ve also really come in handy after meals and long stretches of sitting, when my blood sugars are most prone to going up.

Staying at home has disrupted routines for most people, but it’s good to know that we can still control how much exercise we get in a day.

I’m Still Here

Hey friends. You probably noticed I didn’t have a new post up this week. (Unless you are one of the few people who saw my incomplete post go up on Monday…I took it down as fast as I could, and the finished version should be up soon. My bad!)

The reason for that is simple: I didn’t really know what to say. We’re living in an interesting time, to say the least, and I didn’t know how to address that on my blog. It seems silly to not address it at all (especially considering I just talked about it a few posts ago). But it also feels inauthentic to continue adding to the already-immense volume of information out there. I don’t feel that I have any commentary to add that would be of any value.

So I’m not talking about our current health situation right now. But that leaves the question…do I still talk about my health situation, meaning my diabetes? Is it stupid to blog about given everything else going on in the world?

Maybe, but maybe not.

I'm still here
I’m still here, making dorky faces.

My diabetes – and everyone else’s diabetes – won’t be going away just because there’s a pandemic right now. So why stop blogging about it? It might be nice for others to have a continuous reminder that they’re not alone with diabetes, not before, not now, and not ever. If sharing my story here helps other people in the diabetes community feel more connected in this time of social distancing, then I’m more than happy to keep telling it.

Plus…I think it’ll be good for my mental health (and hopefully for that of other people) to have something to write/read that won’t be anxiety-provoking.

Anyways, I just wanted to give you all a friendly little wave with this blog post – *waves energetically* – and let you know that I’m here if you need someone to talk to. Let’s all remember to stay human amid the chaos: Be kind, help others when you can, and we’ll weather the storm together.