It’s November 29th which means it’s day 29 of the Happy Diabetic Challenge! Today’s prompt is about diabetes goals. I decided to use this as an opportunity to share and set my diabetes goals as National Diabetes Awareness Month draws to a close…
Goal-setting sounds like an ambitious activity. It implies that goals will be met, and we all know that sometimes that just doesn’t happen.
Why? Occasionally, we set goals that are simply unattainable. As an example, let’s pretend that you have a goal to lose weight. Well, if you tell yourself that you can shed 20 pounds by next week, then you’re setting yourself up for failure – ‘cuz it’s unhealthy to lose that weight so quickly, not to mention practically impossible.
But setting a goal to lose those 20 pounds over the course of, let’s say, two months…that’s FAR more realistic. You give yourself a workable time frame in which you can accomplish the goal and you can take small steps each day to work towards it, rather than doing anything extreme or overly difficult in order to meet the goal.
That’s why they say it’s important to set SMART goals. The acronym stands for Specific, Measurable, Achievable, Realistic, and Timely. Goals that are set with this criteria in mind are far more likely to become a reality, so with that in mind…I’m going to share and set a few diabetes goals for myself, right now, that I hope to accomplish in the coming months (think of it as an early diabetes-themed list of New Years’ resolutions.)
Goal #1 – I’d like to go back to checking my blood sugar with my actual meter at least 4 times per day. I’ve come to rely on my not-always-totally-reliable Dexcom a little too much. And since I have a well-stocked stash of test strips, I figure that it makes sense to use them before and after each meal, as well as when I’m not sure about my Dexcom’s readings.
Goal #2 – Change my lancet weekly, instead of monthly…ish. This is the other underused diabetes supply in my possession. As long as I decide on a particular day and time to do this quick little task, then I think it’ll be easy to follow through week after week.
Goal #3 – Stop snacking on “free” foods. I need to get it through my semi-thick skull that there’s no such thing as free foods when it comes to diabetes! I used to be able to eat a short stack of crackers, a handful of popcorn, or a bite-size piece of chocolate at any hour of the day and notice a very minimal bump in my blood sugar levels. This sure isn’t the case these days, and I want to set myself up for success by making sure that when snack cravings strike, I have plenty of water or gum on hand to help distract from faux-hunger pangs.
These goals may seem very minor to you, but for me, they’re all examples of some things that I truly think I need to address when it comes to my diabetes care and management. And the fact that they are “easy” makes them that much more attainable: It won’t take much for me to incorporate them into my routine, but over time, I’m bound to notice a difference (especially when it comes to that last goal).
Also, I think it’s wise to avoid setting overly ambitious goal – at least for the time being – because I’m not seeing an endocrinologist again for another month. When I do have that appointment, I’ll have a much clearer picture of what my diabetes goals should be as we approach 2020, and I can go about formulating a plan as to how to pursue them.
And on that note, this blog post wraps up the Happy Diabetic Challenge posts on my blog for National Diabetes Awareness Month 2019. I hope you enjoyed them, learned from them, or at least got to thinking more about your own diabetes as a result of reading them. I’m proud of myself for sticking with the challenge for the month, but boy, was it an exhausting 30 days of nonstop diabetes advocacy! I’m looking forward to December: It’ll be a nice change of pace to slow down and appreciate time spent with loved ones throughout the holiday season. I’ll still be blogging regularly throughout the month, just a little less intensely.
Hoping you had a wonderful Thanksgiving no matter how you chose to spend it, and wishing you continued success with your diabetes as the holiday season gets into full swing.
It’s November 26th which means it’s day 26 of the Happy Diabetic Challenge! Today’s prompt is about diabetes and exercise. There’s so much I could say on the subject, so I decided to settle for a bit of a round-up post that explains what I’ve learned about exercising with diabetes over the years…
I exercise on a daily basis.
This statement is not a faux-humble brag, nor is it an exaggeration. Unless I’m sick, I work out in some form or fashion every single day. My workouts will vary in their intensity, but one thing is consistent: My diabetes plays a major role in how long, when, and what type of exercise I choose to do.
Since I grew up playing sports, I’ve had just about my entire lifetime with diabetes to figure out how to make it peacefully coexist – or, at least, merely coexist – with whatever exercise routine I’m completing. As a result, I’ve learned quite a few lessons along the way, and I’ve come to recognize several patterns that my diabetes follows when I exercise:
1. My diabetes is happiest if I work out first thing in the morning. I never thought I’d be the type of person who works out before eating breakfast, but trial and error has taught me that this is the way to go in order to better manage my blood sugars during a workout. Fasting exercise has worked wonders on my blood sugars: I never have to worry about dealing with an insulin-on-board-inducing low blood sugar, nor do I have to be concerned about what the food I ate prior to my workout will do to my blood sugars while I’m exercising.
2. Different types of exercise affect me (and my blood sugars) in different ways. Many people probably relate to me when I say that weightlifting and high-intensity interval training (HIIT) often yield stable blood sugars during workouts but then trigger the need for more insulin hours later, whereas cardio (such as dancing, running, or circuit training) usually causes sudden drops in blood sugar levels. Of course, it depends on the timing, duration, and intensity of the workout, but it’s interesting to see how different types will require me to react in different ways in terms of my diabetes care.
3. Sometimes I need to suspend my insulin, sometimes I don’t. Again, whether or not I suspend my insulin – or even run a temp basal – depends heavily on when and how I exercise. If I’m doing my morning routine (which happens 75% of the time), then I don’t really do anything with my basal rates: I just keep them running normally. But if I’m taking a midday walk or decide to exercise in the evening, I often have to do something about my basal rate to avoid crashes or spikes. Insulin suspensions or temp basals are wait-and-see situations in those cases.
4. The hardest part about exercise and diabetes is that I can do the exact same routine every day and get different results. If I worked out at precisely the same time, for the same amount of time, and with the same sequence of movements every single day, then…my diabetes wouldn’t give a damn. Every day of life with diabetes is different because of the variables that inevitably cross my path. Things like mood, that time o’ the month, stress, diet, illness, and more can cause major changes in my blood sugar levels. It’s my job to react accordingly to those changes, but that doesn’t mean I always hit the mark on the first try. So with that in mind, it can sometimes be hard to accurately predict how my blood sugar will fare after every single exercise routine. Just thinking about it can be more exhausting than the workout itself.
5. My diabetes is my biggest motivator/fuels my desire to exercise. At the end of the day, I work out because of my diabetes, not because I’m trying to sculpt washboard abs (though I wouldn’t complain if that actually happened). My diabetes loves exercise: It results in an increase in insulin sensitivity and it helps tame my blood sugar levels overall. How could I not be motivated to work out every day with outcomes so tangible?
It’s November 25th which means it’s day 25 of the Happy Diabetic Challenge! Today’s prompt is about the cost of diabetes. Naturally, I started thinking about just how much diabetes costs me, not just in terms of money but also emotionally and physically…
We all know that diabetes is an expensive chronic illness.
Diabetes is associated with doctors appointments, pricey medical equipment, and maybe even the occasional trip to the hospital…all of those things aren’t cheap. My insulin alone would cost me $4,962.32 per year if I was uninsured (and if I do the math, this means that I would’ve spent over $100,000 in the past 22 years on JUST INSULIN). Those are not small sums of cash!
Diabetes hits those of us who are affected by it hard financially, but there are also significant emotional and physical costs associated with it.
Emotional – Diabetes takes a toll on my mindset (un)fairly often…and it can happen so rapidly that I barely have time to process the emotions. For example, I can go from being happy-go-lucky to angry because my Dexcom alarm went off and it’s telling me that my blood sugar is high. The anger will hit me hard and I’ll spend too much time stewing over my blood sugar and the best way to correct it.
Plus, I’d be remiss not to mention diabetes burnout. It’s the feeling of total defeat, of no longer having the desire to take proper care of diabetes. It happens to the best of us, and it’s not fun to experience. But it makes sense to feel this way from time to time, because diabetes is so demanding and relentless. People with diabetes never get a break from it, so it’s no wonder that it takes a toll on emotional well-being.
Physical – Diabetes is a physically present in many ways on my body. The OmniPod insulin pump that I wear, as well as my Dexcom CGM sensor, leave the most obvious lumps and bumps underneath my clothing that often prompt unwelcome stares from strangers. And although these devices have improved my quality of life with diabetes, they’ve also undeniably altered my body image. I never had much self-confidence when it comes to that, anyways, and my devices certainly don’t improve how I feel about my own body. I know plenty of people with diabetes who can relate to that sentiment.
There are also the scars that diabetes leaves behind. My fingers are dotted by dozens of permanent black scars left from lancets pricking them multiple times per day for the last 21+ years. I sport purple circles under my eyes pretty frequently from a lack of sleep that is, more often than not, my diabetes’ fault. And sometimes, I have unsightly red marks when I remove old pods that practically look like zits and can take days to go away because the pods’ cannulas pierced sensitive spots. These are all unattractive, physical reminders of diabetes that I can’t do a damn thing about, and it’s frustrating to have even less control over how my body appears because of this stupid chronic illness.
Diabetes is a friggen’ greedy disease.
It depletes my wallet and emotional state, and it manifests itself on my body in ugly, visible markings.
It tries so hard to rob me of everything I’ve got.
But luckily, my determination to fight back harder against it is stronger than my diabetes will ever be.
It’s November 22nd which means that it’s Day 22 of the Happy Diabetic Challenge! Today is called #FollowFriday and we’re encouraged to share who inspires us from the diabetes community. Rather than capture the dozens upon dozens of names in a blog post (because truly, there’s practically an endless list of people who inspire me in the DOC), I’m going to write about what I think makes someone in the DOC inspiring…
I’ve lost track of how many years I’ve been involved with the diabetes online community (DOC).
It’s somewhere between five and eight. Regardless of what the true number is, I can tell you this: I’ve “met” and interacted with countless people who’ve shared their stories with me. Each story is unique and marked by different struggles and victories, but the common theme is diabetes.
But what else do these storytellers share that make them so inspiring to me?
Here are three qualities of people with diabetes who inspire me:
Vulnerability. I’ve come to value this more than just about any other trait when it comes to talking about diabetes in an online space. Nothing makes a person more relatable (or more human) than when they speak uninhibited and honestly. In a social media world where everyone is so concerned with capturing and filtering the “perfect” photo with the “flawless” caption to go with it, I find that it’s the stories that are raw and obviously imperfect that pack more of a punch. It’s important to stay grounded, and those who aren’t afraid to share their tribulations as much as they share their successes are truly inspiring to me.
2. Kindness. The Internet can be harsh and judgmental. (Okay, that’s a total understatement). It’s brutal out here in cyberspace, and unfortunately, the DOC isn’t immune to all brands of savagery. In the past, I’ve seen disputes erupt because of hateful comments made about all aspects of life with diabetes. So when I notice thoughtful, supportive, and downright nice comments between perfect strangers in an online space, it restores a bit of my faith in humanity. Those who take the time to send a tweet to another PWD in need or who use their presence online to do some good don’t go unnoticed by me, and I applaud each and every single person who does their best to reduce the negativity in the diabetes online community.
3. Willingness to listen and learn from differing perspectives. Those of us who live with diabetes can be wildly, passionately opinionated. Pumps! No, MDI! Carbs! No, keto diet! Your diabetes is just like mine! No, it’s not! – Those are just a few examples. While some may be quick to judge others for dealing with diabetes in a way that is different or just plain “wrong” to them, I’m far more impressed by those who remain open to having conversations and learning from those who disagree. After all, what matters most is that a person finds what works best for them. It shouldn’t matter that it’s different from what I or anyone else might do. So I really admire those who are able to put aside differences and focus on learning and growing from others.
Thank you to each and every single person out there in the diabetes online community who possesses one or all of these qualities. This means you’ve inspired me in some way, and I am incredibly grateful for you and your willingness to share part of yourself with strangers online. Keep doing what you’re doing and I can guarantee that you’ll continue to inspire many more people.
It’s November 20th which means that it’s Day 20 of the Happy Diabetic Challenge! Today’s prompt is “biggest supporter”. Since it’s impossible for me to identify a single person as the biggest source of support with my diabetes, I decided to write about how my thoughts on diabetes and support have changed over the years.
Emotional support is a lovely thing. It feels good to have people in your life who you feel have your back. And it’s twice as nice to have when you’re dealing with a chronic illness like diabetes.
I talk extensively about diabetes and support in the most recent episode of the podcast, Ask Me About My Type 1. (Here’s the link in case you haven’t listened to it yet.) Rather than rehash everything I said in that episode, I’m going to use this post as an opportunity to reflect how my wants and needs in terms of support for my diabetes have changed over the years.
It’s interesting (at least, it is to me) to think about how and why my desire for support has changed as I’ve grown older. My childhood was very normal despite diabetes. It was always there and it was always a thing I had to deal with, but I definitely didn’t feel compelled to talk about it as much as I do now, let alone lean on others in difficult times. Why is that?
I think it has a lot to do with getting to know myself better as I’ve aged.
After all, they say that with age comes wisdom. And though I don’t exactly consider myself a wise old sage or anything of the sort, I do think that I’ve acquired some enlightenment about myself and the way that I process things in my adulthood.
Specifically, I realized in the last few years that diabetes has instilled in me a strong desire to feel in control of every aspect of my life…not just diabetes. When something doesn’t go according to whatever carefully thought-out plan I’ve cooked up, I get upset. And I tend to either bottle up my dismay, which is never a good thing to do, or I totally take it out on the whichever poor soul happens to be within my vicinity, which isn’t fair. Neither of those reactions is a healthy method of dealing with things, but at least I’m aware of that and I’m actively trying to improve how I cope.
I think that this example shows how important diabetes support has become to me because I’m able to lean on others in those times that all of my diabetes plans don’t work out the way I envisioned them. I’ve figured out, over time, that it’s just about the only thing that really works for me. Talking to other people with diabetes (and without diabetes) about struggles that I’ve faced makes me feel less alone. It used to be scary for me to be so vulnerable with others, but I’ve found that it’s worth it because it helps me heal, move on, and forgive/accept myself for feeling whatever I’m feeling.
Support from others is truly powerful…but above that, learning to rely on others – learning how to best support myself, really – is more than that. It’s magical and absolutely enhances the quality of my life with diabetes.
It’s November 18th which means that it’s Day 18 of the Happy Diabetic Challenge! The prompt for today was fairly simple – state where you’re from – so I decided to delve a little deeper and explain what my diabetes community is like at home…
Home is where the heart is, and it just so happens that I’ve got quite a diabetes community there, too.
I spend most of my time in Virginia these days, but I’m originally from Massachusetts. Growing up in that state shaped me as the human being that I am today, and it’s also where I had a total change in perspective when it comes to diabetes, community, and support.
I’ve said it many times here, but throughout my youth, I had my mom and my aunt as my type 1 influences in my life – that was it, and that was all that I needed and wanted.
Or so I thought.
When my feelings on diabetes support changed in college, I quickly discovered the value in fostering a sense of community wherever I go. So I made it a mission upon graduating to make sure that I maintained diabetes connections at home. It felt especially important as I was about to undergo another major life transition: joining the workforce full-time.
And I’m glad I fulfilled that goal. Through the power of social media, I attended a handful of diabetes meetups in the last few years that provided that sense of belonging that I yearned for and introduced me to many local T1Ds.
So as you may be able to imagine, it’s been tough for me to still receive invites to events and gatherings that I can no longer readily attend since I’m in a different state most of the time.
This is why I finally decided to do something about it. Feeling inspired by the spirit of National Diabetes Awareness Month, I found a group that meets up semi-regularly in my new location. I was nervous about it, but I made an introductory post on their page. I explained that I work from home; as such, it’s hard meet new people. And not only would I like to connect with other T1Ds, but I’m also interested in volunteering in the area.
My “bold” move paid off. Within hours, several people had commented on my post and made it known that I could reach out to them whenever to arrange a lunch or explore the city. I haven’t taken anyone up on it yet (with the Thanksgiving holiday being so close and all), but it’s really nice to know that the offers are there when I’m ready to take them up on it.
Even though the concept of “home” has been a little shaky in the last year, I know this much: Wherever I wind up, I’ll find and nurture a diabetes community there because people who just get it make even the strangest of places feel a whole lot more welcoming…and like home.
It’s November 13th, which means that it’s Day 13 of the Happy Diabetic Challenge! Today’s prompt is about medical IDs. Naturally, I started thinking about my history with medical ID and why I think they’re so important for people with diabetes…
My mother and grandmother instilled a love of jewelry in me at a very young age. Rings, bracelets, necklaces, earrings…baubles of all kinds make me happy. So you’d probably assume that wearing a medical ID would be no big deal for me, since I’m almost always sporting something sparkly on my body.
Well, think again.
When I was a kiddo, I HATED wearing my medical ID. It was a long, silver necklace with a hexagon-shaped charm dangling from it. One side showed the caduceus (that medical snake symbol) and on the reverse was my “in case of emergency” information. I wore this necklace for about a decade before I lost it, and it stayed hidden under my clothing most of the time. It was ugly, and to my young and naive brain, it was also an unnecessary reminder of the chronic illness I dealt with each day.
The necklace seemingly vanished from thin air one day (I swear I didn’t lose it on purpose, because I knew that just tossing it would piss off my parents) and I went a few months without a medical ID. It was so freeing! But by the time I turned 16 again, my parents had a replacement ready for me. This time, though, they were more careful when choosing the ID and went with something a little more fashion-forward: They had a circular silver charm engraved with my contact information, and it was a part of a pretty silver bracelet with many other charms attached to it (a book, a dog figurine, and a heart were among them), much like the charm bracelet my mother had received from her own parents on her sixteenth birthday.
I loved how discreet this charm was – it blended in well with the rest of the charms on my wrist. A little too well, though. The bracelet served a dual purpose as a medical ID and a fashion statement, and to be honest, it was almost impossible to discern the medical ID from the other charms encircling it.
So I took it upon myself to get something separate from the charm bracelet, something that was a standalone medical ID but wasn’t a total eyesore.
Enter my Lauren’s Hope medical ID bracelet, which I’ve been wearing for about three years now.
I love this bracelet. It is very obviously a medical ID, but it’s delicate and dainty. I wear it on my right wrist, separate from all my other bracelets, and I love that you can see all of my essential information engraved on the back of it with just a quick flip of the charm.
Now, I’m going to guess that you’re saying, okay, Molly, we get it…stop summarizing your medical ID history and tell me why it’s so important for a person with diabetes to wear one.
You got it!
It’s important for people with diabetes to wear medical IDs – at all times – not just because it’s helpful to first responders and bystanders in case of emergency, but also because it should provide a source of comfort and reassurance to a T1D.
I mean, I know that I feel safer whenever I go out in public wearing my medical ID. I’m a paranoid person to begin with (streams of “what if…” constantly swim through my mind), but I can’t help but wonder what might happen if I didn’t wear my medical ID and an emergency struck. Would people assume that I was drunk and not help me? Would they not realize the severity of the situation? Would I be able to get myself out of whatever situation it may be? I don’t want to risk a negative answer or outcome to those questions, so of course I wear my medical ID everywhere I go. I know it gave me great peace of mind when I traveled to Las Vegas with my girlfriends last year; if I’d faced a situation in which they couldn’t help me in time, at least someone near me could see my medical ID and learn that I have T1D (and figure out how to help me from there).
So with that said, I’ve come to see the medical ID as a security blanket and just as much of a crucial piece of equipment as my blood sugar meter or Dexcom. If you don’t have one because you were stubborn like me and didn’t want the reminder of your diabetes, please…do me a favor and check out your options online. I promise there are so many more styles than there were a couple decades ago, and there’s something to suit everyone: You don’t have to like shiny or sparkly things in order to wear a medical ID.
Oh, and before I go: Tomorrow is WORLD DIABETES DAY! I’ll be celebrating by doing a “diabetes in real time” segment on my Instagram. Tune into my profile throughout the day to catch it! Use the Instagram link at the top right hand corner of the website to get there, or navigate to Instagram on your own and find my page by searching my handle: @huggingthecactus.
It’s November 11th which means that it’s Day 11 of the Happy Diabetic Challenge! Today’s prompt is about go-to meals. What’s the best meal for my diabetes? The answer might surprise you…
I don’t have a go-to meal for my diabetes. Does that surprise you?
I know plenty of people from the DOC who eat virtually the same things each day for breakfast, lunch, and dinner. That seems to work well for those people, so more power to ’em!
On the other hand, I do my diabetes best when I eat a wide variety of foods. My ideal day of food will consist of a medium amount of carbohydrates, a good mix of fruits, veggies, and proteins, and probably a little something “naughty” – a square of dark chocolate or a cookie for dessert. I eat around 20-40 carbs at breakfast and lunch, and anywhere between 30-60 carbs for dinner. It really just depends on what I have on hand in the kitchen and how well-behaved my blood sugars are on a given day.
I suppose that, if I had to describe my go-to diabetes meals, it would look a little something like this:
Breakfast – Either a smoothie with protein powder, almond milk, and frozen fruit; eggs with toast/an English muffin and veggies; or plain oatmeal made with water, cinnamon, and sugar-free syrup
Lunch – Either a salad with tofu/deli meat and a piece of fruit (sometimes with peanut butter spread on it) or a sandwich with cut-up veggies and hummus with a piece of fruit
Dinner – This one varies the most, but my usual is a protein like chicken or turkey with a large serving of veggies and maybe a scoop of brown rice, quinoa, or a bread on the side, with a little something sweet to end the meal
I’ll share my current dinner obsession with you: roasted vegetables with sweet Italian sausage. I cut up a carnival squash (the yummiest variety out there – you can find it at local produce stands), bell peppers, a yellow onion, and a few baby potatoes, toss it all in olive oil, salt, pepper, and thyme, and spread it on a sheet pan. I add whole sweet Italian sausages on top and roast it all for 30 minutes at 425. Then I tear up some kale, toss it with olive oil and just a dash of salt, and throw that on top of the veggies and sausage and cook everything for an additional 15 minutes, turning over the sausages before sliding the pan back into the oven. And that’s it. It’s so tasty and easy to make, and very gentle on my blood sugars – which usually allows me to indulge a bit more on a sweet at the end of the meal.
What’s the go-to meal that works best for you and your diabetes?
It’s November 8th which means that it’s Day 8 of the Happy Diabetic Challenge! Today’s prompt is about diabetes and the workplace. Here are my top three tips on how to handle diabetes in a professional environment…
Diabetes can be the most annoying coworker in the world. It can interrupt the flow of my workday, breaking my concentration with a low or a high blood sugar that needs correcting. It can trigger alerts and alarms of all sorts that catch the attention of my other coworkers, prompting questions and confusion. And it can be a very tricky subject to bring up to management/bosses. I want them to know that for the most part, I peacefully coexist with my diabetes, but they should expect some (infrequent) occasions in which it will take my attention away from work temporarily so that I can address whatever situation I might be experiencing.
It can be really hard to walk that fine line between letting coworkers and bosses know that diabetes isn’t something they should worry about most of the time, but that it is kind of a big deal because it’s not going away any time soon.
Since joining the workforce ten years ago, I’ve had to navigate just about every situation you could possibly imagine when it comes to dealing with diabetes at work. I’ve made mistakes and learned lessons that helped me come up with the following three tips on how to navigate diabetes and work:
1) Tell at least one other person at work about diabetes as soon as possible. Through conversation with other T1Ds, I realize that the whole “I-have-diabetes-and-it’s-not-a-super-big-deal-but-I-do-have-some-special-needs-that-I-can-almost-totally-promise-won’t-interfere-with-my-work-performance” talk can be daunting, especially when it feels like your career is on the line. But I can’t emphasize enough how much it’s helped me by approaching the topic immediately before or after starting a new job.
Granted, I’ve only had two jobs – the one I worked when I was in high school at the local movie theater, and my current job as an editor – but I made sure that my diabetes was known from the outset. I got the job at the movie theater thanks to a cousin who also worked there (yay Caitlin), and while I struggle to remember details, she may have mentioned it to the general manager before my interview. It didn’t affect the hiring process whatsoever, seeing as I think my work ethic mattered more to the GM than anything else. Regardless, I can still remember talking to the assistant GM (who I’d be dealing with almost every shift I worked there) and letting her know the basics. I reassured her that I would be able to keep up with everyone else, and I figured I’d just have to prove it over time. And I sure did – I quickly garnered a reputation as an “A.P.P.” (all-purpose person) who could sell concessions, rip tickets, sweep up theaters, and swap out movie posters and times with just as much speed, if not more, than anyone else who worked there.
And with my current job, my diabetes actually came up during the interview. That’s because my resume highlighted my experience writing for an online diabetes magazine. I was asked how that came about and I remember launching into an explanation. Neither of my interviewers seemed fazed; on the contrary, they were fascinated by my obvious knowledge on it and pleased that I’d had some level of professional writing experience. Clearly, I made an impression on them…because what started out as a summer internship evolved into a full-time job at the company and I’m still there today!
So I guess I’d sum up the whole diabetes conversation by saying that it’s as big of a deal as you make it. If you approach it nonchalantly, then others will probably treat it similarly. By contrast, if you’re sweating bullets and can’t really describe what your diabetes means to your prospective employer, then they might start to doubt you when you say that it won’t hinder your work performance. Keep calm and keep all lines of communication open on the diabetes front and I bet that the odds are in your favor.
2) Keep a diabetes supply stash somewhere – anywhere – and make sure that at least one other person knows how to find it. I cannot emphasize enough how first-hand experience with this taught me that it’s crucial that others know how they can help you when hypoglycemia comes a calling. Without getting into too much detail to maintain a semblance of anonymity, a coworker from one of my gigs also has T1D. This fellow T1D experienced a severe low blood sugar one day, and the people around the T1D didn’t know how to react. Luckily, someone thought to reach out to me, and after my colleague described the T1D’s symptoms, it dawned on me that we were dealing with something pretty serious. I was able to get to them in time, but when I searched around for the other T1D’s glucometer, I realized I didn’t know how to use this particular model – and what was worse was that I couldn’t find the fingerstick device. I remember running back to grab my supplies, using a fresh lancet to check the other T1D’s blood sugar, and gasping when a 26 appeared on the screen. Things happened very quickly after that: Someone called 911, a few people came over to help me try to pour regular soda down the incoherent T1D’s throat, and I tried not to panic.
I’m happy to say that all ended well; the T1D recovered in full and thanked me profusely for my help the next day. And then it became a policy to have an emergency stash and make others aware of its location and how to use the various things in it. It went quietly unsaid that if we had known where the T1D’s supplies were kept in the first place, then perhaps we never would’ve needed the ambulance to show up, but the bottom line is preparation is key. Just get some supplies together and keep them wherever they’ll be safe. Label them with things like “do not touch – emergency T1D supplies” so nobody is tempted to lay a grubby paw on any sugary sweets that might be in there.
3) Turn innocuous comments into teachable moments. Oooh, I can’t even begin to comprehend how many straight-up stupid comments people have made over the years in regards to my diabetes…here’s a sampling of ones I can think of off the top of my head, followed by the somewhat less-than-calm responses that I gave:
Molly’s diabetes is the reason why she’s so cold around the office all the time.
Um, no, it has to do with the fact that my desk is directly under a vent that blows ice-cold air on me all day long.
Molly, you can’t eat that popcorn or drink from the soda fountain – there’s sugar in there!
ACTUALLY, I can and I will eat that popcorn. It has carbs, but I can take insulin for them. And when I’m drinking regular soda from the fountain, that probably means that my blood sugar is low, in which case I desperately need fast-acting carbs.
Molly, you have diabetes and you’re always baking sweets! You can’t eat those!
OMG *palm, meet face* I really enjoy baking just as you might enjoy watching a particular TV show or gardening. It’s a hobby of mine. And guess what? Just because I have diabetes doesn’t mean I can’t indulge on the treats I make! I just have to rely on portion control and taking the right amount of insulin.
Molly, you’re beeping again – does that mean you’re going to explode?! LOLOLOLOL.
NO DAMMIT I’M NOT GOING TO EXPLODE AND I’M SICK OF THAT JOKE. *Ahem* Very funny, but those beeps and alarms are nothing to worry about. It’s just a reminder that my insulin pump will need to be changed in a few hours, or that my blood sugar is creeping above/below my target thresholds.
Okay, I think that’s enough of a sampling – you get the idea. Basically, my advice is to treat any ignorant comments with a smile and the truth. I think that one of the best ways to fight against diabetes stigma is to take the time to explain things to people who just don’t get it or who aren’t familiar with it. More often than not, what starts out as a ridiculous comment turns into a genuine conversation in which I can help someone learn about diabetes, and then it turns into a win-win.
Diabetes in the workplace is one of those subjects that I could go on and on about (clearly). I guess the most important thing is to be honest and open to conversation about it. When people doubt your ability to do your job well with diabetes, prove ’em wrong by showing that it doesn’t prevent you from doing anything – it just means you’ve got an extra thing to consider when making everyday decisions. NBD, right?
It’s November 6th which means that it’s Day 6 of the Happy Diabetic Challenge! Today’s prompt asks us to name our diabetes hero/heroine. Well, I have more than one…
My diabetes hero is not just one person. It’s a small group of people that I call my family. (Awwwww, how sweet.)
My mom, dad, and brother are all-too familiar with diabetes. My mom is T1D, like me, and my dad and my brother were the lucky ducks who got to live under the same roof as us for many years. All three of them are diabetes heroes to me, but in some very different ways.
Let’s start with my brother. He is three years older than me and I’d say we were fairly close to one another in our shared childhood. Though he doesn’t share a diabetes diagnosis with me, he grew up with diabetes just as much as I did. And do you know what’s amazing about that? I’ve never once heard him complain about it. If he has ever felt any fear or worry for my mom and I, he definitely has done a good job of internalizing it. He treats us like we have normal, functioning pancreases, and I think the reason for that is he knows that we are more than capable of taking care of our diabetes ourselves. Although his thoughts and feelings about our diabetes have yet to be verbalized, I appreciate his unique brand of support for us and I continue to be wowed that he never seemed to be bothered by the extra attention I got as a child due to my diabetes. No unhealthy sibling rivalry there!
Next up is the other Type None in our family: my dad. I’ve written about my dad in a couple of previous blog posts. He is truly the Mr. Fix It in our family. If there is a problem, he wants to solve it – especially if it is something that is causing his loved ones emotional distress. He has had more than his fair share of situations in which my mom or I were seriously struggling with our diabetes. I can only imagine how he feels when all he can do is just stand by and let us work through our issues: It’s probably a combination of helpless, angry, and worried. He’s said numerous times over the years that he’d give my mom and I his healthy pancreas if he could, and I’ve never questioned the sincerity behind that sentiment. I know he means it, and to me, that’s the kind of heroism that nobody else in my life can even begin to compete with.
And then we’ve got my diabetes partner-in-crime, my mom. How on earth she managed to deal with her OWN diabetes, in addition to mine, all throughout my childhood is completely beyond me. Besides being there for me as a source of unwavering emotional support as someone who really “gets it”, my mom’s attended practically every single endocrinology appointment with me, encouraged me to start using an insulin pump, ordered alllllll of my supplies for many years (and kept track of the stacks of associated paperwork), and helped keep me as calm as humanly possible throughout my terrifying insurance transition that took place late this past spring. Let me just restate that she did all of this and still does all of this while still dealing with her own diabetes!!!!! It’s sort of mind-blowing to me that she can stay so much calmer about her diabetes than I ever could when it comes to either of ours, but she does it, and that makes her a heck of a diabetes hero to me.
What’s really neat about my diabetes heroes, as a collective unit, is that diabetes has never and will never define our family. It’s something that lingers there in the background, for sure, but it almost never steals our attention away from our time spent together. I can’t recall a single instance in the last 22 years that diabetes really, truly disrupted our family rhythm (maybe my parents would disagree with that and count in my diabetes diagnosis, but I barely remember that).
It just goes to show that even as something as life-altering and disruptive as diabetes only made my family stronger when it hit us with a double dose.