The night of the first low, I was “good” and treated with glucose tablets.
The night of the second low, I shamelessly treated with a leftover Halloween candy blondie (okay, two of them) that I had made earlier that day.
The night of the third low, I was exhausted. And feeling nothing other than a desire to sleep, I treated with both glucose tablets AND sour patch kids, because my body decided it needed that many carbs in order for my blood sugar to level out for the rest of the night.
By that third night, I was so dang tired. I’d had to go downstairs to get the sour patch kids, and by the time I was done eating them, I couldn’t fathom walking all the way back up the stairs to get into my big, comfy bed. So I just crumbled onto the couch, pulling a blanket over me, and snoozed there for a bit. I probably could’ve curled up into a ball on my carpet and slept just as soundly, even if only for awhile, because I was so spent from being woken up in the middle of the night for the third evening in a row to treat a low blood sugar.
I hate having my sleep – which seems harder and harder for me to get enough of as I get older – interrupted by something as stupid as a low blood sugar.
I hate having to eat in the middle of the night and ruining the minty taste leftover from my brushed teeth prior to bedtime.
I hate that sometimes, the low is bad enough that I get woken up one or two or even three more times in the same night because I’ve got no choice but to consume more carbs.
It seems fitting to write about this – how disruptive my diabetes has been to my sleep over the course of three nights, let alone my entire life with diabetes – during National Diabetes Awareness Month. Because I don’t think the rest of the world really understands that diabetes truly does not have an “off” switch. People who live with diabetes don’t have the luxury of sleeping peacefully without having a single worry about diabetes: It can and will disturb the soundest of sleeps, and it’s frustrating, inconvenient, and annoying every time it does.
My blog post earlier this week probably made it very clear to you that I work for a nonprofit called the College Diabetes Network – but in case you didn’t know, now you know.
In my position with the organization, I semi-regularly interact with current college students living with type 1 diabetes. This causes me to reflect every now and then on my college experience and what I would change, knowing what I know now, about how I managed my diabetes when I was in college. I came up with 3 things that I wish I’d known then that would’ve likely made life on campus a lot easier for me – and it seems very appropriate to share these things this week, which is College Diabetes Week. Here’s what I wish I knew…
I wish I knew then that an insulin pump would greatly benefit me. Hands down, this is the biggest diabetes regret that I have when I think about my time at college. I can’t tell you how many times it was inconvenient for me to whip out my insulin pen in the middle of the dining hall and inject before every meal. My rationale at the time was that there were already too many changes happening in my life (because as we all know, the transition from high school to college is huge), and that I didn’t want to toss learning a new piece of diabetes technology into the mix. Plus, I was stubborn – I figured that my then-current MDI regimen was doing a good enough job for me and my diabetes. If I’d only known that a pump would’ve allowed me so much more freedom…
I wish I knew then that I should’ve asked my parents sooner to let me take over ordering diabetes supplies. All throughout college – and admittedly, for a few years post-graduation – my mom took care of reordering my diabetes supplies for me. She’d keep track of how much insulin I had left in the fridge, and my main responsibility was to let her know when I was running low on test strips or CGM sensors. I really wish I’d asked her (before I turned 26) to let me order supplies on my own, or at least walk me through the process so I had a better familiarity with it by the time I aged off my parents’ insurance plan. I had to learn a lot, and very quickly, when age 26 came around, and I could’ve avoided the steep learning curve if I’d been more proactive about it at a younger age.
I wish I knew then that I could’ve avoided many diabetes mistakes by doing more research and getting more involved with the diabetes online community. Namely, I wish I’d known more about how to “party safely” with T1D. I went into college not having a single clue about how alcohol would affect my diabetes – and that is something that is incredibly dangerous. I learned a couple lessons the hard way in college, and I’m lucky that I didn’t have to pay any serious consequences. Knowing what I know now, I should’ve turned to the diabetes online community for guidance, tips, and tricks from people who could’ve helped me avoid some scary highs and lows I had after a weekend of partying. Imagine what I could’ve learned from Reddit threads, had I known they were available!
While I can’t change anything about the way I took care of my diabetes in my college years, I can say that I’m proud of myself for eventually gaining these insights about it. I may have done better had I known about these things sooner, but what matters is that I did find out about them in due course, which has led to positive changes in my diabetes care in the long run.
This year, National Diabetes Awareness Month is an especially important time to me as it’s the first one that I’m celebrating as an employee of the College Diabetes Network. I’m commemorating the occasion by celebrating College Diabetes Week (which begins today and runs through November 14, World Diabetes Day) with all of our Chapters and by fundraising for CDN. Let me explain (as concisely as I can) why your support matters and how CDN makes me “feel 100”.
I’m a former CDN Chapter leader, past volunteer, and now a current employee. CDN has obviously shaped my career, but it has also had a tremendous impact on my physical and mental well-being as a person with type 1 diabetes.
Without CDN, I never would have realized the power of peer support in managing a chronic illness that is as demanding as T1D. I would have severely struggled to find the confidence and independence in my adulthood that is necessary in order to live and thrive with T1D. I would not be the diabetes advocate that I am today, I definitely would not have a successful blog about T1D, and I never would have made so many incredible friendships and connections that CDN helped make possible.
Those are just some of the ways that CDN helps me “feel 100” about life with diabetes. “Feeling 100” is a colloquial term that describes feeling your absolute best and at your optimal level of happiness. That’s why it was chosen as the overarching theme of College Diabetes Week this year – we all want to feel 100, especially when managing the many challenges that comes with living with T1D while in college.
CDN has given me so much. Please consider helping me give back to CDN. Help me raise $100 (or more) and that money will go towards CDN Chapter stipends for the year, outreach kits, the ability for us to provide grants and sponsor Chapter activities, and so much more. We appreciate your support as we continue to empower and make positive changes in the lives of young adults with diabetes across the country.
…and it went well. Much better than I anticipated, both to my surprise and delight.
I’ve written here and here about my long overdue endocrinology appointment and my struggles deciding whether or not to pursue a new doctor. I eventually settled on taking an appointment with a nurse practitioner at my current endo’s office (mostly because I wanted advice from a professional sooner rather than later).
But my expectations for the appointment were low. I was doubtful that the NP would take the time to listen to, let alone address, my concerns. Fortunately, she proved me wrong.
After we introduced ourselves to one another, I opened up to her that my previous appointment with the endocrinologist had been disappointing. I’d like to think I was gentle but brutally honest in my approach: Using kinder words than this, I explained to her that I felt like my last appointment was a waste of time and that I disagreed with the doctor’s assessment that I was doing just fine with my diabetes management. My sentiments were met with sympathy as the NP let me vent to her about where I felt I was lacking in terms of my diabetes care in the last several months.
The appointment lasted roughly 20 minutes or so, and by the end of it, several things happened: 1) I was given a new test kit and test strip prescription (I told the NP that I distrust my Livongo meter and want a reliable back-up for when I’m not wearing my CGM), 2) I had a referral to see a podiatrist due to concerns I expressed about my feet, 3) We agreed on a minor tweak to my correction factor that will hopefully help eliminate some mid-morning highs I’ve been experiencing, and 4) We set up a follow-up appointment with one another to take place in 3 months in addition to an appointment 6 months from now with the endocrinologist to make sure all of my bases are covered and I don’t have to go so long without seeing a doctor for my diabetes again.
I can’t remember the last time that I felt so heard by a diabetes clinician (or even any kind of clinician).
As the appointment concluded, I told the NP that I’m the type of person who relies on accountability in order to stay on top of my diabetes, and this appointment was the exact sort of accountability wake-up call that I needed to hold me over for the next few months until my next one.
And I daresay…thanks to the affability and receptiveness of this NP, I’m actually looking forward to our next visit in early 2022.
It’s that time of year again – National Diabetes Awareness Month!
I’m not sure if it’s because I work for a diabetes organization now, but sheesh, this month seems to have arrived more suddenly than it ever has. I’d say it’s caught me off guard, but after literally months of preparing for it as part of my job, it’s really just got me marveling over how fast time flies.
It’s also got me reflecting on how I’ve participated in NDAM in the past. Previously, I’ve done daily postings on my Hugging the Cactus Instagram account and replied to various prompts throughout the four weeks here on the blog.
This year, I’m not so sure I have the bandwidth to dive so deeply into the spirit of the month – but that doesn’t mean I’m mentally checking out of it altogether.
Rather, I’m plan on being more intentional in my approach. Instead of replying to daily prompts (that, over the course of the month, start feeling like homework – in other words, an unenjoyable task), I’d like to post when I feel like I actually have something to say. I don’t want to post filler content, I want to post things that are meaningful and capture my feelings about diabetes, NDAM, and the broader diabetes community.
That’s not a knock on the everyday post inspiration that many members of the DOC take part in – I think it’s wonderful that they have fun with it and use it as a very effective way to raise diabetes awareness throughout the month. It’s just that for me, as someone who’s been part of digital NDAM activities for the better part of a decade (!!!) now, it’s time that I mix up my routine a bit and also step back so I don’t spend all of my mental diabetes energy on NDAM in lieu of my actual diabetes care.
Here’s to deliberate diabetes awareness and care this month!
Halloween is just a few days away, and even though I don’t have any specific plans, I’m really looking forward to it.
Now that I’m in my late 20s, Halloween is less about the candy – though I still very much enjoy that part – and more about having fun dressing up, even if it’s just for my own entertainment. But this is also my first Halloween at my condo, so I hope that I get to see a decent number of trick-or-treaters and cool costumes.
Thinking about Halloween as an adult got me thinking of Halloween and haunted happenings from my childhood, and I’ve got to say, T1D never once got in the way of my enjoyment of the spooktacular holiday. Sure, there were plenty of other things to do besides trick-or-treat – I watched the Charlie Brown Halloween special (and still do) every year and I almost always make a point of carving a pumpkin or two each October – but collecting (and feasting) on candy was still a key component of Halloween for me that diabetes couldn’t take away. In fact, I think that it helped me feel a little more “normal”, like I had something in common with my peers without diabetes.
I’ve seen posts over the years about treats that T1D kids can be given in lieu of candy – things like pencils, sugar-free sweets, fruits or vegetables, and stickers – and that’s perfectly okay. But I think it’s also totally okay for T1D kids to have a break from worrying about diabetes and how it makes them different from everyone else every now and then, especially on a night like Halloween. I guess what I’m trying to say is that I’m really grateful that I always had super positive experiences around Halloween throughout my childhood that were never tainted by memories of anyone telling me I can’t eat a piece of candy or that I shouldn’t partake in the holiday because of my chronic condition.
So that’s why I’m excited to celebrate it just as I always have this Halloween weekend…though maybe with the added trip to the store the day after to see how much of a discounted low blood sugar/emergency candy stash I can accumulate.
So I’ve got an update on my whole I-haven’t-seen-my-endocrinologist-in-8-months situation.
It’s not exactly the update I was hoping for, but it’s one that I believe just might push me into making some positive change around my diabetes care.
As it turns out, my endocrinologist is on leave and not taking appointments until February 2022, at the earliest.
I found this out after contacting her office and receiving a message back that I could either wait until that time to see her, or I could schedule an appointment with a doctor at a different location that the office would suggest to me.
At first, I wasn’t sure what the right move was. I was almost certain that I couldn’t (and shouldn’t) wait another 4 months to see someone about my diabetes; after all, I’ve been unhappy with my management for most of this year. But even though I have been similarly unhappy about my relationship with my current endo (it’s practically nonexistent), I admit that I felt fear over the prospect of seeing someone new because any other provider would only know me based on the information available to them in my records. In other words, they would only know me based on numbers, not based on who I am and my personal diabetes management style/beliefs.
So I sat on this news for a few days as I pondered whether or not to take this as a sign that it’s time for me to find a new permanent endo, despite the mere thought being incredibly daunting to me.
During my pondering period, I happened to get a call from my endo’s office that wound up making my mind up for me.
They called to let me know about an available appointment with the nurse practitioner who works closely with my endo – an appointment that I could get this week.
I hesitated for a moment (I really hadn’t anticipated getting an appointment before the end of the month) before agreeing to take the open slot. And I’m glad that’s what I decided to do, because 1) at least I can talk to someone about what I think I’m lacking in terms of my current diabetes management; 2) I might end up getting some quality advice that will redeem my endo’s office in my eyes; and 3) even if I don’t see eye to eye with this person, it will be the push I need to start actively pursuing a new endo that will more closely match my diabetes care style.
Roughly six months ago, I wrote a blog post in which I gave diabetes supply company Byram Healthcare a glowing review.
Now, I take back everything I said then (and have since updated the post with a preface).
I truly believe that Byram gave me the worst customer service that I’ve ever experienced as it relates to my diabetes…and maybe that I’ve ever had in life, in general.
It’s a long, messy story – one that spans half of this year – but I’ll break it down for you.
Basically, I found it in January 2021 that Dexcom would no longer be directly supplying their products to customers. I’d be automatically transferred to Byram Healthcare, a medical equipment distributer. However, I didn’t want to use Byram and called them after I got my first order in the mail a few months later to see if I could 1) return the supplies to them, 2) get a refund for said supplies once they were returned, and 3) cancel my account because I wasn’t going to be using them.
At that time, I was told yes to all three of those things. I got a return label from them so I could mail back the supplies, which I did within days of making that phone call to customer support. That way back in early May.
Imagine my surprise when I started receiving bills from Byram in June that stated I owed them $263 for those same Dexcom supplies that I had mailed back and was told I wouldn’t have to pay for because I never used them – I never even opened the original box!
So of course I contacted Byram. I was told to ignore the bill, that a note would be made on my account (mind you, the account that I’d closed) that I didn’t owe any money. Sounds like it was simple and easy to take care of, right? Oh, so very wrong. I received at least two more bills in the mail from them (which immediately reignited my anger both times). Naturally, I called on both of those occasions and was assured TWO MORE TIMES that I didn’t owe money and that I should ignore those bills because they were being automatically generated by their billing system, which was being falsely triggered because my mailed-back supplies weren’t checked in at the warehouse yet.
Stupidly, I believed them and assumed that the whole nightmare was over when the bills stopped coming in the mail…but everything changed the day that I got the collection notice.
Yup, that’s right – Byram had a collection agency COMING AFTER ME because according to them, I had failed to pay the $263 bill THAT I NEVER OWED IN THE FIRST PLACE. The moment I read that notice, I felt pure rage roiling in my core. I couldn’t believe my eyes. I thought this whole saga ended months ago! Now I’d have to use time I didn’t have – because it was a workday afternoon and I was trying to get real-life stuff done before the weekend – to sort this mess out.
I was beyond upset. Life with diabetes is hard enough, but throw this BS into it and it’s just not fair that getting my regular 90-day supply of a key component of my diabetes toolkit turned into something so stressful and potentially expensive. I was determined to get answers and get reassurance once and for all that they were in the wrong here, not me.
I was able to look up the USPS tracking number for the mailed-back supplies which turned into the proof I needed for both Byram and their collections agency that I had, indeed, done my end of the bargain this past May. When I finally got into contact with their billing department after nearly 30 minutes of being on hold (oh, and after a first attempt to call them during which I “held my place in line” using that option on the service line, only to never get a damn phone call back), I heard the lamest excuse for the whole thing about how they’d recently switched warehouses for this sort of thing, which explained why the billing system wasn’t registering my returned order…
…how do you think I reacted to that news? Like that’s MY fault for their company’s obvious disorganization!?
Needless to say, I didn’t care about excuses, I just wanted assurance that this whole nightmare would go away as soon as possible and they’d do everything possible to accomplish that…which I received in a short amount of time after speaking with the customer service rep.
So yeah, to say that I am displeased and untrusting of Byram Healthcare is a bit of an understatement. I thought it was important to share this story here on Hugging the Cactus not because I want to damage this company’s reputation, but because I want to help anyone else with diabetes who gets Dexcom supplies to avoid going through anything similar. Take my experience as a reminder to advocate for yourself and always hold onto records and receipts from your supply distributors…
…because you never know when you might need them to defend yourself.
I’m gonna forewarn you now – this blog post is gonna have a bushelful amount of puns. If you don’t find that appealing, then it might be fruitful for you to walk away now – I’ll seed you out.
OKAY JUST KIDDING, I actually think I used up all of my good apple puns in that opening paragraph. I can’t think of any evercrisp ones at the moment…
For real, I’m done now (at least for the time being).
So the title of this blog post (and all the ridiculous puns) will indicate to you that I recently went apple picking! And turned some of those apples into yummy pies!
But that’s not all, folks – I did both of those activities, in addition to actually eating slices from those pies, while maintaining excellent blood sugars!!
To this day, I still don’t really understand the sorcery that must’ve been at work in order for me to accomplish such a feat. I have a theory when it comes to the apple picking – I was walking all around a large orchard for like an hour, on a quest for the most perfect apples possible – and all that roaming up and down the rows of apple trees kept my blood sugar levels steady, even as I sampled upwards of 10 different types of apples (and I even had to eat an entire apple as I exited the orchard because my blood sugar was, in fact, beginning to dip). So that helps to explain why my blood sugars were so good when I was picking the apples.
But with the baking and eating of the pies…I have no idea how I dodged a high blood sugar. My boyfriend and I made the most decadent apple pies we could think of – one had a peanut butter crumble topping and the other was a brown sugar bourbon apple pie with an ooey gooey caramel sauce. Surely, I thought as we chopped apples, folded ingredients together, and did latticework with our crusts, my blood sugar is gonna suffer when we dig into these pies later tonight.
Much to my utter befuddlement and delight, though, my blood sugar never rose above 150, even after I had two decently portioned slices of pie with caramel sauce generously drizzled over them.
Maybe I nailed the carb counts. Maybe I know my body’s reaction to pies – which I only ever eat at Thanksgiving, normally – better than I thought I did. Who knows, but there’s one thing that’s for sure…
I was happy to my core over my delicious pies and sweet blood sugars!
By chance, I was looking through some old lab results on my endocrinologist’s online patient portal when I noticed something.
I was (and still am, as of this writing) way overdue for an endo appointment.
The last time I saw my doctor was at a virtual appointment back in February – more than 8 months ago. This gap in time between appointments feel especially significant because most of my life with diabetes, I’ve gone to the endocrinologist 4 times per year. It was only when I started seeing this new endocrinologist (who I’m not a particularly big fan of, BTW) a couple of years ago, and it was at her suggestion that I dropped down to twice yearly appointments.
From the beginning, I haven’t loved that recommendation.
I’ve realized that I am the type of person who kind of relies on regular visits with my endocrinologist in order to keep my diabetes (and myself) in check. This doesn’t mean I actually enjoying going to see my endo – because who honestly likes to go see any doctor – but it does mean that I feel like there’s been a missing component to my diabetes care lately.
I guess I’ve just been too busy (traveling, working, trying to maintain a semblance of a social life) to slow down and really notice the absence in my diabetes care and management.
But what bothers me more is that my endo’s office hasn’t even tried to contact me to schedule an appointment. What gives?! The moment I knew that I was way past due for an appointment, I messaged their office, and I still haven’t received a response back.
So in addition to it being time for my endocrinology appointment, it may also be time for a new endocrinologist, period.