Have You Heard About “Ask Me About My Type 1”?

You should definitely know all about “Ask Me About My Type 1”, the podcast, by now.

And no, it’s not just because I appeared in a recent episode (although I totally did, and if you haven’t listened to it yet, keep reading for a direct link to it).

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The podcast’s logo!

Let me tell you the reasons why I think you should know about “Ask Me About My Type 1”:

  • Readers of this blog know that I like to spread the word when I try or experience something great within the DOC. I want others to see how awesome that person or thing is, too, so that’s why I’m talking about the podcast in this post.
  • There’s like, a lot of T1D podcasts out there. Way more than I ever realized or expected. How the heck are you supposed to find out about them? Why, word of mouth works wonders! I know there are a couple of podcasts that might be considered well-known, and these podcasts deserve it…but so do the podcasts that are lesser known. Especially “Ask Me About My Type 1”.
  • This podcast really resonates with me because the focus of every episode is different: If you have a special interest within the DOC, such as marathon training, then you can bet that there’s an episode on the topic. You can also be sure to find episodes on subjects that you never really knew about before, such as politicking with T1D, taking dietary supplements as a T1D, and sex/love/dating with T1D (ooh la la). The show’s host, Walt, goes out of his way to find people within the fabulous diabetes community who offer different perspectives and insights on just about every aspect of life with diabetes, which makes the entire podcast truly important and meaningful.
  • Speaking of Walt – he’s the host of the podcast and he’s a great guy with a story of his own to share. You might recognize him from Team Bike Beyond, but besides being a mega-skilled bike rider, he’s also an incredibly talented podcast host. He asks thoughtful questions, blends his own narrative into every episode, and puts an obvious amount of time and energy into making all of his episodes. When he interviewed me and my friend, Emma, for the show, we honestly forgot that our conversation was being recorded because he did such a seamless job moderating the discussion. That’s a quality that not every podcast host has, and Walt (modestly) rocks it.

Those are just some of the reasons why I’m a firm believer in this podcast (and again, let me emphasize that I am not saying all this because I was a guest – at the end of the day, I truly just want others to know about DOC gems that I’m aware of because I have gained something positive from them).

So now I bet you’re just wondering how you can start listening – and I’m here to help! Simply search for “Ask Me About My Type 1” on Apple podcasts, Stitcher, Spotify, or just about any other place you can listen to podcasts. Check out an episode on whichever topic intrigues you the most and I can guarantee you’ll be back for more. Keep up with Walt and new episodes of the show by following @askmeaboutmytype1 on Instagram and visiting his website here, too!

Oh…and here is the link to my episode, in case you were holding out for that (wink, wink).

Do We Take Medical Technology for Granted?

Before I dive into this post, I want to make it abundantly clear that I don’t know the answer to this question. I’m not judging how anyone reacted during the recent Dexcom G6 outage, nor am I stating that there was a “right” or a “wrong” way to handle the situation. I merely think it’s important to ask ourselves questions like this when things don’t go according to plan with diabetes care/management.

Alright, now that I’ve got THAT out of the way…

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Many variations of this graphic have floated around the Internet in the days since the outage. I am not mocking anyone by posting it here; rather, I am using it as an example of ways in which we cope with diabetes difficulties. This example, to me, is an attempt at using humor to deal.

For the last several days, the DOC has been in a bit of a panic. And when I say “bit” I mean “a helluva lot”. That’s because the day after Thanksgiving, Dexcom Follow stopped working. This means that parents/caretakers who rely on the technology to monitor their child’s/loved one’s blood sugar levels were left in the dark. It sparked confusion, outrage, and downright fear, all of which only seemed to intensify over the weekend and into this week when the problem was only partially solved for most users.

Rather than coming together to support one another, the DOC swiftly divided into two camps: The first consisted of individuals who sought to gently remind others that this technology is still pretty new. It hasn’t even been around for two decades. That meant that for many years before then, people with diabetes were doing things the “old school” way, and getting by just fine. Doesn’t this mean that we should all be able to make it through unexpected technology blackouts, knowing that we have our blood sugar meters to fall back on?

The second camp was in a greater fury over the issue. This camp relied on the Dexcom G6 system because those within it simply didn’t know a life without the continuous glucose monitoring technology. For them, the outage was a bit like asking them to Google something without access to the Internet – it’s pretty much impossible, unless you’ve got an Encyclopedia handy. Oh, and it’s MUCH higher stakes, because people who don’t recognize symptoms of low or high blood sugar need this technology to work in order to stay on top of fluctuating blood sugar levels. Let’s not even get into how much is PAID for this expensive piece of medical equipment…one would argue that the high cost of supplies means that the technology should work at all times, no matter what.

If you’re like me, you can see that both of these groups have perfectly valid points. I’ve had diabetes long enough that I didn’t even use – and didn’t see the point in using – continuous glucose monitoring or insulin pumps until a few years ago. I took care of my diabetes the old fashioned way growing up: doing fingerstick checks multiple times per day, treating low blood sugars with 15 carbs then waiting 15 minutes, checking blood sugar levels about an hour after injecting insulin to make sure highs were coming down the way they should. This way of handling diabetes worked for me for a long, long time…throughout elementary, middle, and high school, right up to college.

Then I got a continuous glucose monitor (I believe it was the Dexcom G4) just before starting my freshman year of college. And I haven’t really been without a CGM device since then. It’s changed my life and helped me navigate adulthood with diabetes. Whenever I do experience periods of the technology not working the way it should, it’s infuriating because I feel like it’s not worth throwing away buckets of cash on it in those periods of inconsistency and inaccuracy.

But here’s what I’m wondering, as a result of this Great Dexcom G6 Outage of 2019…do we take this technology for granted?

Do we truly appreciate the times that it works the way it should?

Do we expect too much from something that, technologically speaking, still has a long way to go in terms of working perfectly?

Do we rely too heavily on continuous glucose monitors to provide us peace of mind when, in reality, they simply provide us with real-time updates of our blood sugar levels (i.e., it’s a stream of data)?

I don’t have answers to these questions. I can reflect on my own answers to them; furthermore, I can ponder how and why the DOC gets so divisive in these times where we should try to come together, listen to (and learn from) differing perspectives, and figure out what we can do to best support one another during trying times.

 

Thank You

Today’s blog post is intended to be short, but sweet: I want to take this as an opportunity to say thank you.

To my sweetie,

 

Since I published my post last Friday about being “dia-feated”, a dozen or so members of the DOC – and even a couple nonmembers – have reached out to me via social media to share their words of encouragement with me:

“…I enjoy your blog posts and your voice is important to me”

“…your blog reached one person, and that’s enough (for me)”

“I read your blog all the time, and it helps me.”

Each message expressed similar sentiments using different words: Don’t give up. My voice matters to someone.

Again, the intention of that post was never to drive traffic to my blog or messages to my inbox. I was merely trying to express some sentiments that I’d been feeling for a few weeks now. But the fact that so many people DID, in fact, take the time to reach out to me and exchange a few messages with me meant the world. I found each one to be uplifting and truly touching, and if you were one of the individuals who wrote to me, I can’t thank you enough.

It’s funny – but truly wonderful – how kind words from friends and strangers alike can do so much to revitalize your soul and make you see what’s right in front of you: an amazing, supportive community who just gets it.

Thank you.

Why Online Communities Aren’t Always the Best Source of T1D Support

Before I jump into this post, let me make this unequivocally clear: The DOC (Diabetes Online Community) has been an incredible source of support, advice, and education to me ever since I discovered it (roughly seven or eight years ago). This post isn’t necessarily about the DOC; rather, it was inspired by a recent experience I had with a totally different online community. But what I’m about to say here can be applied to just about any kind of virtual support group in existence…

In addition to the DOC, I consider myself a member of a few other online communities. One of them is focused on fitness. (I’m not going to specifically name the group here, mainly because I’d like to maintain its privacy as well as the privacy of its members.)

Anyways, said group was formed to provide members with a place to post about their respective fitness journeys. Members are encouraged to post daily about their workout routines, nutrition plans, and any emotions that might arise as they work toward building a healthy lifestyle. It’s common for members to interact with one another and show support when someone is struggling, as well as applaud victories big and small as they’re met. Unsurprisingly, negativity and criticism aren’t welcome in this group, as it can be detrimental to the goals that each member has for himself/herself.

Thanks for the love!

In keeping with the spirit of the group, I posted a photo a few weeks back of myself (making a grumpy face) after a particularly challenging cardio workout session. In the caption, I wrote: “Excuse my pissed off expression…I had to cut cardio fix short because my blood sugar was getting too low. Only worked out for about 20 minutes this morning. I really wanted the full one cuz I treated myself with food just a tad too much yesterday…but I don’t totally regret it because it reminded me that I just don’t feel good when I snack unnecessarily. I’m always struggling to remember to only eat when I’m hungry or if my blood sugar is low, not because I’m bored or emotional. I know one day I’ll fully accept this and practice it!”

I wasn’t seeking sympathy or anything, I was just being honest with the other members of the group and channeling a bit of my frustration. Regardless, a few people did comment on the post with some reassuring words, like “you’ve got this”, “thank you for sharing”, and “one day at a time”, which I appreciated.

But what I did not appreciate was the comment thread that followed and involved myself and two other group members (my thoughts as I initially responded to this chain are denoted by asterisks):

Group Member #1: Oh no, be careful! Do u usually run low?
Me *Not wanting to dive into a long explanation*: I’m pretty well controlled for the most part, but exercise can make me go low sometimes! 
Group Member #1: do u have diabetes?
Me: yes, type 1 diabetes for 21 years now
Group Member #1: oh wow! Be careful!! Do u carry glucose tabs with you?
Me *Rolling my eyes as I respond, and adding a “haha” to keep it light*: of course! Haha I’ve had T1D for a very long time so managing it is second nature.
Group Member #1: okay good! Just making sure. Sorry, this was the pharmacist in me asking (an annoyingly cute monkey-with-hands-over-eyes emojis PLUS smiley face emoji followed this comment)
Group Member #2: The nurse in me wondered the same. 🙂
Group Member #1, responding to Group Member #2: haha! (followed by a stupid heart emoji)

What exactly is my issue with this thread? It starts with the “be careful”. It was probably an innocuous comment on the poster’s end, but I thought that me telling her that I’ve had diabetes for 21 years might signal that I know a thing or two when it comes to managing it. It also mildly irked me that she was qualifying her comments to me by saying that she was a pharmacist. That’s great and all, but that doesn’t make her an expert by any stretch of the imagination on diabetes…same thing to the girl who also chimed in by saying she was a nurse.

Now, you might be thinking that I’m overreacting to this whole thing – and part of me agrees, I’m sure that both girls just had pure intentions and wanted to offer support in their own ways – but if that’s the case, then this is a perfect example of how things can get misconstrued in an online setting. My interpretation of this thread is that both girls were trying to tell me that their expertise in their respective fields meant that they knew a good bit about diabetes, and rather than come off as supportive, the comments felt like show-offish (like, oh, look at me and how much I know!) and as if they thought I couldn’t take proper care of myself. Again, my interpretation may or may not be true, but it’s fact that we all need to be careful when choosing our words in situations like this. Even better, when something isn’t totally clear, we can choose to say nothing rather than chime in with a comment that might come off wrong or sounds misguided.

With that in mind, I now get why some people say that online support just isn’t for them. Personally, though I appreciate and like being part of online communities, this experience did teach me a lesson about being careful with my interactions in these spaces, and that I should always try to remember…it’s impossible to gauge tone/emotion in the comments section, and coming across as a know-it-all isn’t a good look on anyone.

The DOC: The 24/7 Support System I Never Knew that I Needed

I’ve lauded the DOC (Diabetes Online Community) time and time again for connecting me with individuals globally who are also affected by type one diabetes. And I don’t foresee an end to my desire to express gratitude for this amazing community, because over and over, members of it continue to blow me away with their words of encouragement and gestures of friendship.

My latest wave of gratefulness was spurred when I arrived home from work on Monday to a cheerful, Tiffany-blue envelope waiting patiently for me to open it. It was a delightful little package from my friend Sarah, who I “met” via Instagram over the summer. Besides diabetes, we share common interests in fitness, wellness, our pet dogs, and bright colors, among other things.

Sarah went out of her way to mail me a few goodies (shown in the picture), including a cute T1D key chain and an adorable cactus card with a message of support written inside. I was incredibly, pleasantly surprised by all of it. It wasn’t about the material items for me (though they are totally my style, and I can’t wait to make use of them). It was more so how she took the time to put it all together for me, cleverly incorporating some of the things that introduced us to one another in the first place, that really blew me away.

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Sweet trinkets from a sweet friend!

It got me thinking about the larger diabetes community I’ve met and harvested friendships with in the last several years. And as hard as it is for me to properly describe the level of richness, knowledge, and support that those friendships have given to me, it’s beyond easy for me to say that I am infinitely thankful for all of them, and I hope that in return, I am able to offer at least a fraction of the same to others.

With all that said, it’s even more mind-blowing to me that I resisted this community for such a long time. For the first 14 years or so that I lived with diabetes, I rejected the notion that I needed peer support to help me manage the emotional and physical aspects of diabetes. I turned down offers to go to diabetes camp. I didn’t interact with the only two other diabetics in my school’s district because I feared social isolation. In some situations, I even pretended that I didn’t have diabetes, because my yearning to be normal like everyone else overpowered my need to make my health a priority.

That’s why I don’t think it’s a coincidence that things started to turn around when I met other T1Ds my age. That marked the point where I could have open, honest conversations with others who were going through similar life events at the same time as me, without the judgments or criticisms I may have had to endure if I had those same conversations with family or doctors. While I know that I need to give myself and my personal growth some credit for improving how I manage my diabetes, I would be remiss if I did not also attribute some of that credit to the members of the DOC who have made meaningful contributions to my life and my outlook on it.

It’s funny that something special in the mail made me contemplate all of this, but Sarah’s thoughtful package to me is a tangible representation of how connections within the DOC have changed me for the better.

Thank you, Sarah, and another big thank you to those of you in the DOC that I have met, as well as those I have yet to meet.

Memory Monday: That Time I Created a Diabetes Lesson Plan for Middle School Students (Part 2)

One Monday per month, I’ll take a trip down memory lane and reflect on how much diabetes technology, education, and stigma has changed over the years. Remember when…

This is a continuation of last month’s Memory Monday, in which I reflected on what it was like to work on a diabetes-oriented community action project when I was a freshman in high school. There were two main components to my project: running a School Walk for Diabetes, and educating a group of middle school students on type one diabetes.

Ugh, the thought of presenting to a group of middle school kids horrifies me now, but I guess I wasn’t so afraid at the time – you know, because I was a cooler, older, more sophisticated 14 year old lecturing the immature 12-year-old children.

*I’ll pause to allow you a moment (or several) to laugh at that mildly ludicrous notion.*

The easiest part of prepping to talk to the students was devising a lesson plan. My project partner and I put together a beautiful slideshow (complete with Comic Sans font, how professional) that we would use in the first half of the presentation. During the second half, I would show the students all of my medical equipment and demonstrate things like priming an insulin pen and testing my blood sugar. We also provided students with examples of healthy snacks for a person with diabetes and when to eat them. The formal presentation would end with us giving students the chance to ask questions.

Sounds pretty neatly put together for just a couple of freshmen, right?

Turns out, it really did go over well with the students! There were a couple technical difficulties (blast those LCD projectors), but my partner and I knew our presentation like the back of our hands, so nothing deterred us from accomplishing the goal of our lesson plan: for the students to have a greater knowledge of diabetes.

We felt like our hard work was worth it when we received completed evaluation cards from the students. We’d asked them to tell us: 1) The best part of our lesson, 2) The worst part, 3) Rate it on a scale of 1-5 (1 being worst; 5 best), and 4) Write one fact about diabetes they learned. Our average rating wound up being 4.2, which made us feel like rock stars! All these years later, I still have some of the best comment cards preserved in a binder about my project:

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Personally, I really love how one student thought that diabetes is spelled “diabedes”. And I’m amused by how another student didn’t seem overly crazy about the PowerPoint (it must’ve been that damn Comic Sans font that ruined it).

But joking aside, this whole project still resonates with me ten years later because I think it marked the beginning of my passion for diabetes advocacy. It was one of the first times that I willingly shared my diabetes with others and let a real conversation take place about it with no holds barred.