A Problematic Post

I am not the kind of person who scrolls through social media looking for posts that will make me angry. And I’m certainly not the kind of person who likes the idea of calling someone out on their perceived wrongs via social media (or any other medium) because I think that it’s usually not constructive.

But I am the kind of person who thinks that word choice matters. So when I saw Autumn Calabrese, a celebrity fitness and nutrition expert, post the following text on Instagram, I got pretty upset. (Click photos to see them more clearly).

I’m not going to lie, I was pretty upset by this post. I’ve followed Autumn on Instagram for almost two and a half years now, ever since I subscribed to the popular Beachbody workout app. I really like her 21 Day Fix workout program because it kicks my butt every time in just 30 minutes. She comes across as a fun person who is really passionate about her job and enjoys the opportunity to help others, which is why I decided to follow her Instagram profile. Normally, I enjoy her posts because they’re filled with motivating fitness and eating tips that promote a healthier lifestyle. She definitely knows what she’s talking about when it comes to exercise and eating properly.

But after seeing this post, I think that Autumn – and people like her who are not educated in the minutiae chronic conditions like diabetes – needs to step off her soapbox.

She is using her post to say that diabetes – mind you, just generic “diabetes”, there’s no mention of any of the many types – is a lifestyle killer. She says that “the worst part about it is that you are 100% in control of if it happens to you.”

OMG. No, no, NO.

Forget that she was using the current coronavirus outbreak to promote her healthy eating plan (which in itself is a pretty weird way to advertise something) – she came after the diabetes community with this post. Now, I’ll never know what her true intent was, and I don’t care if Autumn was talking about a specific type of diabetes here. That doesn’t make a damn difference. The problem with this post is that she is perpetuating diabetes stigma and alluding to a myth that an individual has control over whether or not they get diabetes. Posts like this are the reason why there is so much confusion and misunderstanding when it comes to all types of diabetes, and I think she should be ashamed of herself for putting this on her profile.

It’s even more upsetting that she immediately got defensive when people started writing comments under her post, trying to inform and educate her. I was one of those people, and I think that I kindly and respectfully directed her to learn more by visiting beyondtype1.org so she could be better informed on all types of diabetes and maybe find out why what she wrote was harmful. Sadly, I never got a response, and her post remains on her profile, unchanged.

You can lead a horse to water, but you can’t make it drink. You can also unfollow a person on social media and write a blog post to get your feelings out there, so that’s just what I’ll do here.

 

COVID-19, Chronic Conditions, and…Telecommuting?

First, let me apologize for adding to what seems like a never-ending cycle of news and media about COVID-19, a.k.a. the coronavirus. But I wanted to write this post because a friend of mine works for a company that sent out a communication about it that I found…interesting, to say the least.

The email in question was about the company’s current coronavirus protocol. The following is an excerpt from the email, provided by my friend:

If you have or live with someone who has a medical condition that the WHO has highlighted as being at higher risk for complications from the virus (elderly, immunocompromised state, chronic conditions such as diabetes, chronic lung disease, and cardiovascular disease), you are strongly urged to work from home if possible with your job function. If you cannot work from home, please consult with your manager.

So…the wording of this email struck me as a little odd for a few reasons. If I worked for this company, I’d wonder: 1) Just because I have one of the named chronic conditions, does this mean I must seriously reconsider my present working environment even though nobody in my office travels internationally? 2) What exactly does “strongly urged” mean, anyways? and 3) What is a manager expected to do if someone cannot work from home, for whatever reason? Make up their own set of rules? Force someone to come in or not come in? And if the latter is the case…would a paycheck have to be forfeited?

hugging the cactus - a t1d blog
I’m absolutely amazed that I managed to find a stock image that wasn’t terrifying for this particular blog post and topic…

As I pondered the answers to these questions, I also started to think that there was a chance I was overreacting to the wording of the email. So I asked other friends how they felt about it and they reacted the same way I did. Everyone was generally confused by the message that this was saying (or not saying) about people living with chronic conditions and how they should handle a situation like this.

Plus, I can’t shake the feeling that emails like this just add to all the hype/panic that we’re already being inundated with, and if I were to receive something like this, it certainly wouldn’t do anything to ease my normally-anxious mind. It’s getting more and more challenging to tune it all out…

…but on the bright side, at least I know how to properly wash my hands and sneeze/cough into my elbow. So I’ll continue those common-sense practices every day, and when I’m doing my own work, I’ll be glad it’s from the comfort of my own cubicle.

“Real People” Sick

I’m sick. I’ve just got a cold, but my throat and head are aching so much that it’s knocked the wind out of me.

I spent the weekend confined to my bed, only getting up to blow my nose, use the bathroom, and eat something every now and then…not that I’ve had much of an appetite.

I think this is my body’s way of punishing me. It’s trying to force me to slow down, and I have no choice but to heed its commands.

I guess I shouldn’t be surprised…I’ve purposely kept myself as busy as possible in the last month. I’m always involved in something, whether it’s making plans with people, distracting myself with a new pet betta fish (his name is Tyrion and I love him), or crafting up a storm (I’m almost done knitting my first sweater and I’ve made two hats within the last two weeks). I’ve had a rough start to the year and unconsciously decided at some point or another that the best way to cope was to not cope at all. Hence, my body is rebelling against me, making it impossible for me to engage in any of the activities that would keep me busy.

And I’m annoyed.

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A sick PWD must have these essentials: a fully loaded test kit and a cup of tea made with honey and lemon. (Don’t forget to bolus.)

The silver lining is that my blood sugar/my diabetes don’t seem to be bothered by the cold. I’m sure my numbers would be better if I was exercising regularly, but that’s to be expected.

So I’m what we, people with diabetes, call “real people” sick: I’m definitely fighting something, but since it’s not affecting my blood sugars, it doesn’t have anything to do with my diabetes. And that’s a relief. Because handling sickness ON TOP OF out-of-control blood sugars/diabetes would be enough to drive me insane right now.

It’s almost nice that my blood sugar isn’t the first thing I’m worried about at the moment; instead, my priority is on relieving the pressure in my head and catching up on sleep. But I admit that it’s also frustrating because slowing down means that all of my other concerns, bothers, and feelings have time to catch up with me.

I guess all I can do now is practice being patient with myself (ha) so I can resume my routine of going from one thing to the next as soon as possible. And hey, I’ve had a genuine excuse to lay in bed and binge-watch Sex and the City for hours, so it can’t be all that bad, right?

Managing Diabetes When Sick

This post initially appeared on Hugging the Cactus on February 26, 2018. Since I’ve already dealt with two bouts of congestion and coughing this cold and flu season, I figured it was appropriate to republish this post to remind myself of my philosophy when I’m run down with illness: Don’t push myself and give my body time to rest as much as it needs in order to get better faster. 

The inevitable finally happened: I caught a cold. It really didn’t surprise me, because 1) it’s cold season and 2) I’ve been running around like a mad woman the past couple weeks and missing out on sleep.

Though it was expected, it certainly wasn’t welcome. I can’t stand being limited with my activity levels, and it’s been tough enough to get by recently due to my broken arm. Alas, I spent about three full days doing nothing but sleeping and binge watching Gilmore Girls as I nursed myself back to health.

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My best friend during my cold? This box of tissues.

During this time, I was extra concerned about my blood sugar levels. They tend to be better when I’m active, so I was worried about how they would fare when I was moving so little.

I admit that I probably did the wrong thing by not eating much during this time. It seemed like I needed to pump myself up with a heftier dose of insulin any time I was eating a meal, likely to compensate for the lack of movement. Even so, I seemed to spike a little too much for my liking after meals. So I really cut back on food. In hindsight, it wasn’t my best move, because even when I did eat it was not healthy (few fruits/veggies, mostly breads and fats).

But I do give myself credit for staying hydrated – a crucial step in getting better. I drank so much water, Powerade, and tea that I felt like I was constantly taking trips to the bathroom. It was worth it, though, because it’s easy to become dehydrated when sick and make a bad situation worse.

Also, I think I made the right move by taking some sick time from work. The day I woke up with a tingly throat, I thought I could soldier on and work a full day, but it became clear the moment I sat down at my desk and couldn’t focus that it would be best to just go home. I took a sick day the following day and was able to work from home the day after that, so I’m grateful that I have a flexible and understanding employer who knows that health is a priority over everything else.

As much as I loathed being mostly confined to my room for 72 hours, it was the smart call. It reminded me how important it is to listen to my body and to not push it when I’m not feeling 100%. There’s no shame in self-care.

When Diabetes Isn’t Responsible for an ER Trip

If something unexpected happens to me in terms of my health, I can almost always safely blame diabetes for causing whatever it may be. But when I absolutely, definitely cannot blame my diabetes, I can’t help but feel angry at my body for rebelling at me in ways that it shouldn’t. Particularly when those ways end up with me making a trip to the emergency room.

Let me set the scene: It was a Tuesday evening, around 7:45 P.M. My partner and I were watching an episode of Stranger Things (we’re not caught up yet so please, don’t spoil it for me). Suddenly, I felt an itch on my upper left arm. Like anyone would, I scratched it. But then it got more intense. Like, really, seriously itchy. I rolled up my sleeve so I would be able to scratch with greater ease, and was surprised to feel some bumps emerging on the itchy patch of skin.

I peeled off my sweater and stepped into better lighting in the bathroom so I could examine the area better. There was a large patch of red, inflamed skin on my arm that was covered with bumps that looked like hives. I was dumbfounded. Unsure of what triggered the hives, but alarmed by how swollen and irritated my arm looked, I shot a couple text messages to my EMT father and nurse best friend, who both advised me to get my arm looked at stat.

HUGGING THE CACTUS - A T1D BLOG
Stranger things have happened in my life with diabetes (just had to sneak a pun in there)

And that’s how I found myself in a crowded emergency room, tearful and furious at my body, on a random weeknight. Part of me was relieved that my diabetes didn’t seem to have anything to do with this (but see my recent post on Metformin and you’ll understand that I have some theories about that being the cause). But the other part of me was so pissed off that my body just couldn’t be normal for once. I felt that my body was lashing out at me like an unruly child, declaring its anger towards me in the form of an incredibly itchy, ugly rash. I couldn’t help but stew over the whole situation the entire time I waited to see a doctor.

Long story short, a dose of Benadryl cleared up the hives within an hour. The doctor was unable to determine a cause, since I couldn’t think of anything new introduced to my diet or any new scents/lotions/detergents used in my household. And insect bites got ruled out because the doctor was certain that a bite would be more localized and not spread in a giant patch on my arm. I’m still perplexed at how it happened, but I guess I just have to make peace with the fact that it did and be grateful for 1) making a total recovery from it and 2) not experiencing any issues with my blood sugars as a result of it.

When diabetes isn’t responsible for an ER trip, it means that it’s okay to still be upset about it, but also glad for not having to explain the intricacies of diabetes to every doctor and nurse that walks into the room…because I can’t think of a single PWD that would ever feel happy about taking on that happy task.

Starting Off on the Wrong Foot

“How are you today, ma’am?” The man behind the Dunkin’ Donuts counter smiled and looked at me expectantly, as I started back at him blankly.

I wasn’t sure how to answer. My mental state wasn’t great, that was for sure. I’d just come from a visit to a walk-in clinic, where I’d had X-rays of my foot taken to see whether or not it was fractured.

The previous 24 hours had been a bit of a whirlwind. I’d worked and gone to my first-ever kickboxing class, which was an awesome experience. I’d had dinner with my partner and started playing video games soon after as a way to unwind after the long day. That’s when pain in my foot flared up, suddenly and significantly.

Could I have injured it in the kickboxing class, without even knowing it? Was I overdoing it on exercising, in general? How and why did the pain just start up like that? Almost immediately, I plopped myself down onto the couch with an ice pack and extra cushions, hoping that I could stop the pain as quickly as it started.

No such luck. I went to bed early that night, but the pain was so severe that sleep was virtually impossible. I tossed and turned for hours, wondering what the hell was going on and coming up with a plan to get it checked out A.S.A.P.

That’s how I found myself at a walk-in clinic, a little over 12 hours after I first felt the pain. I was evaluated by a nurse practitioner who told me that “the likelihood of a fracture was low” (thank goodness) and that it was “probably tendinitis.” I was given instructions to rest, ice, and elevate my foot for the weekend, and take non-steroidal anti-inflammatory drugs (otherwise known as NSAIDs, like Ibuprofen or Aspirin) as needed.

Hugging the cactus - a t1d blog
I’m trying to put my best foot forward as I deal with this injury.

That meant hours and hours of being sedentary.

That meant no exercise of any kind – I even had to keep walking at a minimum.

That meant my spirits were crushed.

I was glad that it wasn’t worse, and proud of myself for not waiting to seek medical treatment. But that didn’t mean I was thrilled with the outcome. Basically, I had to take the wait-and-see approach. Time will tell how long the pain lasts, and I can’t stand not knowing. I also can’t stand not being able to be active. Daily exercise is a key element to maintaining good blood sugars. Sitting around idle doesn’t do my diabetes any favors, but it’s not like I had any other choice.

I left the clinic, trying to process this information. This certainly wasn’t the way I wanted to kick off the long Memorial Day weekend. It definitely could have gotten off on a better foot. (Okay, okay, I’ll stop with the puns.) I found myself at a nearby Dunkin’ Donuts minutes later. I hobbled in, hoping that an iced coffee might lift my spirits somewhat.

I blinked, bringing myself back into the moment, and smiled wryly at the Dunkin’ cashier. “I’m okay,” I said to him. It wasn’t just a response to his question, it was also a reassurance to myself. I’m okay and I will be okay. I won’t let this get me down.

Hello, 26…and Goodbye, Health Insurance

Well, today is my 26th birthday. As I alluded to a few months ago in another blog post, I’ve pretty much been dreading this particular birthday.

Love always wins.

Today’s the day I’ve got to switch health insurance carriers. I’m going off my parents’ plan and signing up for the employee plan offered by my company.

Am I nervous? Yes. Am I scared? Hell yes. But am I alone? Hell, no. I’m lucky enough to be able to say that I’ve got so many resources in my life – family, friends, the DOC –  who will help me navigate the confusing world of health insurance.

I’m also well aware that many, many other T1Ds have been in this position before me. While it’s impossible to forget the horror stories about people who have been unable to afford their medication due to a lack of insurance coverage, or who have a hard time paying for insulin and other diabetes supplies in spite of having health insurance, there’s so many more people who have found ways to make it work without having to sacrifice their health or general well-being.

So I’m going to focus on how blessed I am to have resources all around me, as well as a job that offers decent health insurance (or just a job, period…there’s plenty of jobless people out there who have double the hurdles to jump over compared to someone like me). Today, I won’t dwell on my fears and anxieties about health insurance. Instead, I’ll celebrate another year of life and enjoy the day.