This post originally appeared on Hugging the Cactus on June 18, 2018. I wanted to republish it today because my dad (and all fathers of T1D children) should be recognized for everything they do for us. I also wanted to give my dad a little extra shout-out, as this is the first Father’s Day that I’m not there to celebrate him in-person.
Father’s Day was yesterday, but as I did the day after Mother’s Day, I want to use today’s blog as an opportunity to express my appreciation for dads: Namely, my own father.
Besides being the family patriarch, my dad is a firefighter/EMT. He makes his family feel safe with his emergency preparedness knowledge and skills. He also deals with his diabetic wife and daughter on an almost-daily basis, which warrants, at the very least, a ginormous golden trophy with his name engraved on it in fancy script.
That’s because he sees the ugly side of diabetes from time to time. The side that causes blood to spurt out of mom’s abdomen when she removes a pod that struck a vein. The side that causes me to lash out, because my blood sugar won’t seem to come down from a sticky high, no matter what I do. The side that causes mom and I to lose sleep, because we’re treating another middle-of-the-night low blood sugar. The side that forces mom and I to be prepared for any and every possible diabetes scenario that could occur while traveling. The side that causes us to cry, because we just can’t deal with diabetes today.
And he’s there through it all.
He’s there to apply pressure and gauze to the bloody site. He’s there, feeling just as upset as I am, because he just wants my blood sugar levels to come back down, too. He’s there to make sure mom and I have enough glucose tablets or juice to bring our levels back up. He’s there, keeping us calm as we pack for our next trip and taking care of all the travel arrangements. He’s there to comfort us when we need him to, and he hates that we live with diabetes – probably even more than we do.
He’s the kind of guy who says he’d trade his pancreas with us in a heartbeat if it meant we wouldn’t have to live with diabetes anymore.
He’s the kind of guy I’m proud to call my dad.
Thanks, Dad, for helping me handle my diabetes over the years, and supporting every venture (diabetes and otherwise) that I pursue.
I can always count on diabetes to make life’s most joyous occasions just a bit more challenging…so I shouldn’t have been surprised when my diabetes threw several curve balls at me on my cousin’s wedding weekend.
There was the moment at the rehearsal dinner when I stood up to get something and hit my leg against a chair, literally knocking my pod off my thigh. (But I didn’t even realize it for another 20 minutes.)
There was the moment later that night, after the rehearsal dinner, that I discovered my blood sugar was high and that my mealtime dinner bolus probably was never delivered.
There was the moment the next morning that I realized my breakfast options were limited to a giant, carb-y bagel or a massive, sugary blueberry muffin.
There was the moment when I was with the bridal party – applying makeup, styling hair, and trying to calm the bride down – that it hit me that I had no idea what to do with my backpack (a.k.a., my diabetes bag) during the ceremony, as I had to be standing up there with the other bridesmaids during the vows.
There was the moment I psyched myself out big time by wondering what the hell would happen if I passed out in the middle of the ceremony in front of all of the esteemed guests.
There was the moment I went a little too overboard on drinking Prosecco at the reception…and a few more cocktails at the after party.
There was the moment I woke up the next day with a high blood sugar and hangover from hell.
Needless to say, there were quite a few diabetes “moments” over the course of an otherwise beautiful weekend. As a result of them, I’ve decided to document some wedding dos and don’ts for myself, as this won’t be the first time this year that I’m a bridesmaid in someone’s wedding. Here’s my unofficial roundup.
Do have plenty of back-up supplies. I got lucky this time around because my parents were a phone call and short car ride away from me when my pod fell off. I should’ve been carrying insulin and a spare pod on me, but at least it was within my mother’s reach at the hotel room.
Don’t sweat the small stuff. Things happen, and I’ve got to learn to accept them more quickly so I can better adapt to a situation. It took me awhile to forgive myself for the pod snafu at the rehearsal dinner, and if I hadn’t snapped out of it, then it could’ve ruined the night for me.
Do try to plan meals when possible. I knew that I should avoid a high-carb breakfast on such a busy morning, but I can’t resist a blueberry muffin, especially when it’s one of two breakfast options I had. I wish I’d thought to bring food that had accurate carb counts on it so I could’ve had more predictable blood sugars throughout the day, but I did come back down from the sugar-induced high relatively promptly.
Don’t forget that family and friends are willing to help. My “problem” with my backpack was solved by handing it off to my boyfriend about 30 minutes before the ceremony started. I didn’t miss any photo opps with the bride and bridesmaid during the hand off and I felt better knowing it was in good care.
Do remember that time flies. I had to keep myself in context; after all, I was standing up in front of the guests for less than 30 minutes. I knew there was relatively little insulin in my system and that I was starting to level out somewhere in the 100s by the time the ceremony started. The odds of me passing out were slim, and I needed to give myself that reality check.
Don’t forget to drink plenty of water. Duh, that’s drinking rule #1! I’m embarrassed to admit that I maybe had two glasses of water during the entire reception and after party. It’s not like there wasn’t water available, so I don’t know what I was thinking. But I do know that I was incredibly lucky to hold onto stable blood sugars well into the night, despite my lack of hydration.
Do have a plan for hangovers. Sometimes, they happen, and they’ve got to be dealt with swiftly. After some consultation with my mother, I set a temp basal to fight against my high blood sugar and downed glass after glass of water. By early afternoon, I was feeling much better. And even though I had a bellyache, I didn’t yak, so I suppose that’s a silver lining.
And one extra “do”…do have fun with diabetes devices! I decked out my pod in a Pump Peelz sticker that had an image of the lighthouse we were near on it. Sure, it wasn’t visible to anyone but me (and a few people I couldn’t resist showing), but it still made me feel extra special and coordinated with the wedding venue. Sometimes, its the little things in life.
So besides taking several valuable dos and don’ts away with me from this weekend, I’m also walking away with a wonderful first experience as a bridesmaid to a cousin who’s always felt more like a sister to me. When it comes down to it, my irritation with diabetes doesn’t matter – it’s the love and celebrations I felt all weekend long that do matter.
This post originally appeared on Hugging the Cactus on May 14, 2018. I wanted to republish it today because my mom (and all mothers of T1D children) should be recognized for everything they do for us. I also wanted to give my mother a little extra shout-out, as this is the first Mother’s Day that I’m not there to celebrate her in-person.
I know Mother’s Day was yesterday, but mothers deserve more than a Hallmark-card holiday in order to be adequately recognized. (They also deserve more than just this blog post; however, I can only express my admiration for moms using my words.) Let me explain my appreciation for moms.
All of the mothers I know, especially my own mom, work tirelessly to support their families in multiple ways. This is especially true of mothers of children with diabetes. They spend so much time counting carbs, losing hours of sleep, injecting insulin, attending doctors’ appointments, and dealing with difficult diabetes emotions all on top of normal mom duties. And many of the diabetes moms I know work(ed) full-time jobs, to boot!
I think my mom is particularly amazing because she did all of the above, all while managing her own diabetes, too. Now that I’m an adult, I can’t help but marvel over how she did it all with such capability, humor, and unconditional love. I’m blessed to have an incredible mom who taught me what it means to be a dia-badass.
Clarence the Shetland Sheepdog joined our family almost one year ago, and he’s brought us nothing but joy and unconditional love ever since then. Well, he’s also brought us a few headaches (when he has been disobedient) and some panic attacks (when he chews things he shouldn’t), but that’s besides the point – this little puppy is adored beyond his own comprehension and he fits in perfectly with us.
But something else that Clarence doesn’t quite understand is…yep, you guessed it, diabetes. Realistically speaking, he’s probably totally unaware of it – the bliss of being a dog. I wish he had some sort of grasp of it, though, because there are times when it gets in the way of my interactions with him. How? I’ll get really specific here with my list of things that I wish my little peanut knew about diabetes:
I wish that he knew my pods/CGM sensors aren’t chew toys! He doesn’t often grab at them, but every now and then, he’ll notice them on my body and nudge them curiously. And since he’s a mouthy guy (being a puppy and all), he has tried nipping at them a couple of times, which always leads to me yelling at him and shoving him away. So it’d be nice if he could recognize that these things help me stay alive and shouldn’t be played with.
I wish that he knew how to fetch glucose tablets or raisins for me/my mother when we’re dealing with low blood sugars. Man, that’d be awesome! But knowing Clarence, if I tried to train him how to do that now, he’d be way more interested in drinking or eating anything intended to remedy a low blood sugar, rather than bringing it over to me or my mom.
I wish that he knew how to react, period, to any sort of blood sugar “event”. For example, if we’re out walking and I need to take a break in order to check my levels, it’d be swell if he could wait patiently rather than tug on the leash to keep the walk going. I can’t blame him, he’s just trying to continue his exercise. But if he knew WHY we had to stop – if he could understand in any sort of way – that would be hugely helpful.
I wish that he knew that, on the occasions that I can’t play with him, it’s not because I don’t want to. It’s because I HAVE to do something medically necessary, whether it’s change my pod or bolus for dinner, that takes my attention away from him.
And I wish that he knew that sometimes, diabetes can take a mental toll on me and my mom, and that there’s not much he can do about it besides continuing to be his sweet self. It’d certainly be convenient for him to realize that his impish side just exacerbates things when one of us is dealing with a stubborn high or shaky low.
That’s my list of wishes, but there’s one thing that I never had to wish for or teach Clarence when it comes to diabetes…and that’s his innate ability to bring us comfort in just about every situation with his mere presence.
I’ve said it before and I’ll say it again: Attaboy, Clarence.